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Living with ALS (2024) / Chapter Skim
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Appendix A: Public Session Agendas
Pages 185-192

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From page 185...
... Welcome and Introductions ALAN I LESHNER, Committee Chair Chief Executive Officer, Emeritus American Association for the Advancement of Science 1:35 p.m.
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From page 186...
... Welcome and Opening Remarks ALAN I LESHNER, Committee Chair Chief Executive Officer, Emeritus American Association for the Advancement of Science SESSION 1 WHAT TOOLS DO ALS NONPROFITS NEED TO BE MORE EFFECTIVE AND IMPACTFUL?
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From page 187...
... Medicare and Medicaid TERRI POSTMA Senior Medical Officer, Centers for Medicare & Medicaid Services Home Health Care for Veterans Living with ALS RENEE GOLDEN Regional Director, Military & Federal Homecare, Maxim Healthcare Services Private Insurance LISA M LATTS Senior Medical Director, Value Based Care, Optum Health Medical Office 12:35 p.m.
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From page 188...
... Discussion with Committee SESSION 3 PERSPECTIVES ON NEEDS AND OPPORTUNITIES IN THE ALS MULTIDISCIPLINARY CARE MODEL 2:05 p.m. ALS Multidisciplinary Care Model -- ALS Association Certification LORI BANKER-HORNER Senior Director, Clinical Programs, ALS Association ALS Multidisciplinary Care Model -- MDA Certification NORA CAPOCCI Vice President, Healthcare Services Chief Privacy Officer, Muscular Dystrophy Association 2:25 p.m.
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From page 189...
... Welcome and Opening Remarks ALAN I LESHNER, Committee Chair Chief Executive Officer, Emeritus, American Association for the Advancement of Science SESSION 1 UNDERSTANDING LIVING WITH ALS Sarah Lunsford, Moderator 12:15 p.m.
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From page 190...
... Welcome and Opening Remarks ALAN I LESHNER, Committee Chair Chief Executive Officer, Emeritus, American Association for the Advancement of Science
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From page 191...
... COLLIN HOVINGA Vice President, Rare and Orphan Disease Programs, Critical Path Institute ALS Therapy Development Institute (TDI) FERNANDO VIEIRA Chief Executive Officer and Chief Scientific Officer, ALS Therapy Development Institute Panel Session Remarks • Michael Benatar, Professor of Neurology and Executive Director, the ALS Center, University of Miami • Neil Thakur, Chief Mission Officer, ALS Association
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From page 192...
... Break SESSION 5  PANEL ON LESSONS LEARNED FROM OTHER DISEASE AREAS Lessons Learned -- The Evolution of Cystic Fibrosis Care 3:10 p.m. ALBERT FARO Vice President, Clinical Affairs, Cystic Fibrosis Foundation Patient-Reported Outcomes and Preferences NORAH CROSSNOHERE Assistant Professor, General Internal Medicine, Ohio State University College of Medicine Integrating Research and Clinical Care -- Pediatric Oncology WILLIAM WOODS Professor Emeritus, Department of Pediatrics, Emory University School of Medicine 3:45 p.m.
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Key Terms

  • als association
  • als multidisciplinary
  • multidisciplinary care
  • sarah lunsford
  • public session

  • muscular dystrophy
  • dystrophy association
  • medical director
  • als drug
  • als sarah

  • therapy development
  • als care
  • development institute
  • cystic fibrosis
  • senior medical

  • neil thakur
  • als therapy
  • drug development
  • crossnohere assistant
  • neuropalliative care

  • caregiver experience
  • woods professor
  • desi kessler
  • als renee
  • association als

  • chief privacy
  • session remarks
  • benzi kluger
  • development pipeline
  • cell biology


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