Living with ALS (2024) / Chapter Skim
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Appendix B: Biographical Sketches of Committee Members and Staff
Appendix B: Biographical Sketches of Committee Members and Staff
Pages 193-204
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From page 193... ...
Suma Babu is Assistant Professor of neurology at Harvard Medical School and co-director of the Neurological Clinical Research Institute at Massachusetts General Hospital (MGH) and provides clinical care for people with ALS and other motor neuron diseases at the multidisciplinary ALS 193
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From page 194... ...
of the Healey ALS platform trial. She serves as faculty of the MGH clinical coordinating center for the gene therapy consortium for gene-based clinical trials conducted within the National Institute of Neurological Diseases and Stroke (NINDS)
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Dr. Carter serves on the Care Services Committee for the ALS Association.
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From page 196... ...
He is a board member of Target-ALS, a nonprofit enterprise dedicated to accelerating drug discovery and development in ALS, and the Massachusetts Biotechnology Council (MassBio) , and he is on the scientific advisory boards of Vigil Neuroscience and the Packard Center for ALS Research at Johns Hopkins.
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From page 197... ...
Holly Fernandez Lynch is Assistant Professor of medical ethics and law at the University of Pennsylvania. She pursues conceptual and empirical scholarship regarding clinical research ethics and regulation, access to investigational medicines outside clinical trials, and U.S.
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From page 198... ...
Dr. Howard is currently providing her expertise as part of an AANEM effort to develop expert-based consensus guidelines for an ALS home health and durable medical equipment medical standard.
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Previously, Dr. Paz was Professor of medicine at the Renaissance School of Medicine, Stony Brook University, where he was also Executive Vice President for Health Sciences and Chief Executive Officer of Stony Brook University Medicine.
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Dr. Sattler serves in uncompensated advisory roles for the Robert Packard Center for ALS Research, Milken Foundation, LiveLikeLou Foundation, Spinogenix Inc., and Korro Bio Inc.
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From page 201... ...
He served as Chief Resident in Primary Care Internal Medicine, Fellow in Geriatric Medicine, Attending Physician at Strong Memorial Hospital, and Site Medical Director in the University of Rochester Primary Care Network. He was a clinical educator and practiced primary care internal medicine for 31 years until his ALS diagnosis in 2016.
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, Assessment of Strategies for Managing Cancer Risks Associated with Radiation Exposure During Crewed Space Missions (2021) , and Necessity, Use, and Care of Laboratory Dogs at the U.S.
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Lyle Carrera is Research Associate for the Board on Health Care Services at the National Academies of Sciences, Engineering, and Medicine. He has provided research support for several workshops and consensus studies, most recently including Sustaining Essential Health Care Services Related to Intimate Partner Violence During Public Health Emergencies and Study and Recommendations on the HIMS, FADAP, and Other Drug and Alcohol Programs within the USDOT.
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From page 204... ...
She has been the recipient of the Cecil Medal for Excellence in Health Policy Research, a Distinguished Service Award from the National Academies, and the Institute of Medicine staff team achievement award as team leader. Clare Stroud is Senior Board Director for the Board on Health Sciences Policy at the National Academies of Sciences, Engineering, and Medicine.
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