Dave’s health is on the decline. Despite surgery, chemotherapy, radiation, and hormonal
treatments, his prostate cancer has metastasized to his bones. When he’s been in and out of …

Background: Palliative care principles are known to support the experiences of children and
their families throughout the illness trajectory. However, there is little knowledge of the …

The standards for medical education in the United States now go above and beyond
traditional basic science and clinical subjects. Bioethics, health law, and health economics are …

We administered a 7-question survey on drooling to PD patients and age-matched controls.
Each subject was assigned a drooling severity score and categorized as a “drooler” or a “non…

Previous works have shown that effective communication between parental caregivers and
child patients has many benefits to the children, such as providing emotional support and …

Effective patient-provider communication is critical to promote patient satisfaction, encourage
patient involvement in care, and improve health outcomes. Although prior HCI works aim to …

Autonomic symptomatology is prevalent in Parkinson's disease (PD) and impacts quality of
life, yet little data exist on the presentation of autonomic dysregulation. This study measures …

Background: Cancer remains the leading cause of death by disease for children in the United
States. It is imperative to optimize measures to support patients and families facing the end …

Desmoplastic small round cell tumor (DSCRT) is a rare malignancy most often seen in the
abdomen or pelvis of young men. Unfortunately, this disease is usually metastatic at diagnosis …

Background Palliative care is an important component of pediatric oncology care, especially
for children who will not be cured of their disease. However, barriers remain to integration of …