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The family: in the spiral of rare diseases
By Reptilian, Cindy Roch and Enzo Herbette
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About this ebook
As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare diseases.
Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient.
"In the world of rare diseases, this manga becomes a beacon of hope. Through its stories, it highlights the challenges, resilience and victories of families affected by myasthenia gravis. A powerful testament to the strength of the rare disease community. We are grateful to Fondation Ipsen for its essential support."
Michael Wilbur
Director of Operations, EURORDIS-Rare Diseases Europe
"This is the story of three heroes: Enzo, his sister and his mother. Through them, we see courage, strength, solidarity and eternal love."
James A. Levine
MD, PhD, Professor, Fondation Ipsen, President
ABOUT THE AUTHOR
At the age of 20, Céline Gaudet decided to transform her passion for manga into a profession. She left Montreal to take courses under the direction of a Japanese manga teacher, at AAA-Ecole de Manga. She writes under the pseudonym Reptilian.
Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient.
"In the world of rare diseases, this manga becomes a beacon of hope. Through its stories, it highlights the challenges, resilience and victories of families affected by myasthenia gravis. A powerful testament to the strength of the rare disease community. We are grateful to Fondation Ipsen for its essential support."
Michael Wilbur
Director of Operations, EURORDIS-Rare Diseases Europe
"This is the story of three heroes: Enzo, his sister and his mother. Through them, we see courage, strength, solidarity and eternal love."
James A. Levine
MD, PhD, Professor, Fondation Ipsen, President
ABOUT THE AUTHOR
At the age of 20, Céline Gaudet decided to transform her passion for manga into a profession. She left Montreal to take courses under the direction of a Japanese manga teacher, at AAA-Ecole de Manga. She writes under the pseudonym Reptilian.
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