The Autism Program of Illinois

Fourth Quarter Report (April 1, 2012-June 30, 2012)

FY 2012
1
FY 2012
The Autsm Program of Illinois
Quarter Four
April 1, 2012-June 30, 2012
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
2
Public Act 95-707
Be it enacted by the People of the State of Illinois, represented in the General Assembly:
Section 5. The Mental Health and Developmental Disabilities Administrative Act is amended by
adding Section 57.5 as follows:
Sec. 57.5 Autism diagnosis education program
a. Subject to the appropriations, the Department shall contract to establish an autism diagnosis
education program for young children. The Department shall establish the program at 3
different sites in the State. The program shall have the following goals:
1. Providing, to medical professionals and others statewide, a systems development
initiative that promotes best practice standards for the diagnosis and treatment
planning for young children who have autism spectrum disorders, for the purpose of
helping existing systems of care to build solid circles of expertise within their ranks.
2. Educating medical practitioners, school personnel, day care providers, parents, and
community service providers (including, but not limited to, early intervention and
developmental disabilites providers) throughout the State on appropriate diagnosis
and treatment of autism.
3. Supporting systems of care for young children with autism spectrum disorders.
4. Working together with universities and developmental disabilities providers to
identify unmet needs and resources.
5. Encouraging and supporting research on optional services for young children with
autism spectrum disorders.
In addition to the aforementioned items, on January 1, 2008, The Autism Program shall expand
training and direct services by deploying additional regional centers, outreach centers, and
community planning and network development initiatives. The expanded Autism Program
Service Network shall consist of a comprehensive program of outreach and center development
utilizing model programs developed by The Autism Program. This expansion shall span Illinois
and support consensus building, outreach, and service provision for children with autism
spectrum disorders and their families.

b. Before January 1, 2006, the Department shall report to the Governor and the General
Assembly concerning the progress of the autism diagnosis education program established
under this Section.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
4
Contents
Executve Summary 6
The Autsm Program at a Glance 8
The Autsm Program FY2012 Third Quarter Center Highlights 9
The Autsm Program Administratve Highlights 11
Appendices
A. Network Actvites Outcome Summary
B. Output Defnitons
C. The Autsm Program Service Network
D. Budget
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
6
Executive Summary
The Autsm Program Service Network contnues to demonstrate an ongoing commitment to the systems
development mandate outlined in its enactng legislaton, along with contnuing to demonstrate outcomes that
are strong across the state. The Autsm Program (TAP) focuses on providing a variety of direct services and
contnues to provide support to children, families and other service providers such as teachers, schools, social
groups, early interventon providers and graduate students from several state wide universites.
TAP focuses on regional centers and coordinated, family, focused care atempts to eliminate duplicaton of efort
along with maximizing utlizaton of potentally scarce resources. TAPs outcome data supports a solid impact
in each region regarding social skills clients, screening performed, diagnostcs completed, family treatment,
educator consultatons, and trainings. It is impossible to ignore the negatve efects of not only experiencing
funding delays; however the more than 50% reducton of the original funding proposal of $10.2 million. The
overall efect of these funding cuts has slowed services to children and families along with impaired overall system
development in underserved areas. One goal on our strategic plan is to work toward restoring reinstatement
of funding to TAP partners across the state so that all children and their families will not have be without the
necessary services that they desperately require.
The result of this has been the ongoing implementaton of a Service Network with half as many partners as
originally designed; however one which contnues to provide training to providers and direct service to children
and families who are dealing with the many aspects of ASD. When reviewing the services provided this quarter,
the benefts of maintaining this Service Network with the successful collaboraton among the many independent
agency partners becomes abundantly clear. In an atmosphere of declining state fnancial support, it is obvious
that this Network has been able to refocus resources along with decreasing duplicaton of services to contnue
to provide a growing number of Illinois children and families the services they require to be successful. Can you
imagine the impact we could have if the TAP Service Network originally envisioned by the Illinois Governor and
Legislature were in place today?
Comparison to prior periods: The Autsm Program Service Network contnues respond to the ongoing fscal
crisis faced in Illinois; an analysis of the data indicates the impact is being felt at the level of both TAP Partners
and clients. Although the demand for services contnues to increase, limited resources have resulted in some
necessary shifs in services along with ongoing waitng lists at some centers; demonstrated clearly by Screening
and Diagnostc services. A screening by a qualifed professional is required before a diagnostc assessment
can be performed. Screenings this quarter increased 13% over last, and 8% over FY11Q4. At the same tme,
Diagnostc Assessments this quarter were the same as FY11Q4, and increased 8% over last quarter, while all
centers that provide this service have waitng lists of several months. This indicates that Diagnostc Assessments
are limited by capacity rather than demand. While these Assessments are the most costly and resource-intensive
service provided by the TAP Service Network, a diagnosis is needed to initate a number of services in the school
and community, as well as at TAP Service Centers. Consequently, Partners are making every efort to maintain
maximum capacity even if that means reducing capacity in other areas.
Child Treatment, including Social Skills, contnues to increase, with 31% more clients enrolled in social skills
groups in Q4 than in Q3. Also during this tme, Family Treatment has shown an approximate 20% increase in both
client and contacts for Q4 over Q3. Although more will be stated in the Annual Report, it must be mentoned
that in spite of this increase, Family Treatment Contacts for the year have decreased. In most centers, the same
individuals provide both Family Treatment, Family Consults, and Social Skills. This overall decrease in contacts
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
7
most likely indicates that the capacity of centers, hit by decreased funding, has been reached, and Partners
are working diligently to impact the greatest number of clients with increasingly limited resources. Trainings
provided decreased 14% over FY11Q4, but only 2.5% over Q3, suggestng that the current level most likely
refects that more trainings were provided earlier in the year (overall, training increased over 11% from FY11 to
FY12) and/or the current number of training programs refects the capacity of the Network at this tme.
Finally, a decrease in FCRR Visits of 6.8% comparing FY11Q4 and the current quarter is noted. Even more striking
is the 14% decrease in FCRR Visits this quarter when compared to last. Again, this refects a resource issue.
Several partners have worked diligently to increase the number of hours their resource room is open to the
community, expanding into several evenings and Saturdays. These expanded hours have resulted in increased
utlizaton of the Resource Rooms, as many parents work during usual business hours, and many teachers have
difculty travelling to a resource room before it closes for the day. However, when it was necessary to re-
evaluate the use of resources in light of additonal funding cuts for FY2013, these expanded hours were cut back,
resultng in a decrease in visitors.
As reported last quarter, TAP and the Service Network have responded to funding cuts through the reallocaton
of resources, maintaining a high level of service provision. However, contnued funding cuts will impact the level
of services available, and will result in some service oferings decreasing in order to meet the demands in other
areas. This quarter is the frst demonstrate that clearly demonstrates the impact of sustained funding cuts. TAP
and all members of the Service Network remain commited to providing high quality services to our clients and
communites; however, as resources decrease, maintaining the quality of services provided will result in further
decreases to the quantty of services provided.
Funding and Advocacy: As a program funded by the State of Illinois, TAP and the Service Network contnue to
share the pain of the states fscal crisis. The need and demand for services, educaton and resources have
grown at an even faster pace than the 78% increase in ASD prevalence reported by the CDC.
ES Metro Chicago held their 2nd Annual Autsm Awareness Ride in collaboraton with Alpha Dogs Motorcycle
Club in April. The money raised at this event will assist their program in so they can contnue to provide quality
services to those who need them. ES Metro contnues to be a part of the policy and advocacy work through
the Enhancing Developmentally Oriented Primary Care (EDOPC) which is a partnership of Advocate Health
Care Healthy Steps Program and the Illinois Chapter of the American Academy of Pediatrics (ICAAP). They also
partcipate in the Early Childhood Policy and Legislatve Advisory Commitee through ICAAP to share informaton
about ongoing work related to early interventon policies and autsm advocacy initatves.
Foundatons for Adult Services for Today and Tomorrow (FASTT) located in Maryville held a fund raising event
called Walk FASTT for Autsm in April in which they raised $3,000.00. This funding was applied toward ongoing
programmatc needs. Parents of FASTTs clientele willing made the trip to Springfeld to the state capital to
advocate on behalf of their loved ones who are in desperate ongoing need for adult services.
Trinity Services, Inc. apples and received a small grant from TAP which enabled them to reach out to local
physicians, in order to increase their clinical capacity by expanding their assessment tools and conduct additonal
training for staf. They contnue to pursue private and 3rd party billing for clinical services in additon to providing
free or reduced services for families in dire fnancial need. Trinitys clinical services have been almost 100%
covered by 3rd party reimbursements and private pay for services. Trinity has submited for a $10,000 grant
to purchase additonal assessment materials, items for clinical services, resources for parents and to support
technology.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
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The Autism Program at a Glance
79
19,699
Contacts wltb Parents ano Famlly Members (count)
16,360
Contacts wltb Scbools & Scbool Personnel, |nolvloual Provloers,
Communlty Groups, ano Otbers (count)
3,339
1,564
Number ot Learnlng Alos Provloeo at No Cost
21,462
116
2,654
301
139
925
348
vlslts to TAP Network Partner FCRRs tbrougbout tbe Network (count)
Cblloren recelvlng olrect servlces (Cbllo Treatment)
Cllnlcal Consultatlons Conoucteo (Loucator / Famlly Consultatlon, Unlque Cllents)
Training Prograns
Tralnlngs Conoucteo (count)
Partlclpants Tralneo (count)
CIinicaI Prograns
Cllents Screeneo (unlque count wltbln Q)
Comprebenslve Dlagnostlc Lvaluatlons Conoucteo
Network Activities in Quarter 4 FY 2012
Nunber of lIIinois Counties lnpacted by The Autisn Progran 5ervice Network in Q4
5ysten DeveIopnent
Contacts between TAP Network Partners ano tbe Communlty (count)
FaniIy Connunity Resource Roon {FCRR}
UCP Heartland developmental department raises funds through special events giving and grant writng to support
all services. Grants have been awarded to UCP Heartland from the Alton foundaton, Madison County Mental
Health Board, and St Clair County Mental Health Board. These funds support operaton costs and also provide
fnancial assistance for services to families in need. UCP also accepts private pay and third party payments for
services such as Camp Free To Be.
TAP and all Service Network Partners contnue to be actvely involved in advancing the needs of individuals with
ASD and their families through an involvement in a number of task forces and organizatons at both the local,
state and natonal level. TAP Central Ofce is an actve member of the natonal Steering Commitee for Advancing
Futures for Adults with Autsm, the Illinois Autsm Task Force, and the Training and Clearinghouse subcommitees
of the task force. Additonally TAP leadership is working actvely to build a strong ally base with many of the
agencies that are not part of our Service Network so as to be able to work in collaboraton, and build stronger
community links (Autsm Speaks, Answer Inc., Beth Lacey Center, etc)
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
9
The Autism Program FY2012 Third Quarter Center Highlights
The TAP Service Network, with its coordinated regional system of care approach, strong university
partnerships, intensifed focus on coordinated care, and consistent work on systems development contnues to
preserve many essental services for individuals with Autsm. TAP Partners are all improving the diversifcaton
of funding for local centers, sharing resources, and working collaboratvely with other organizatons in their
communites to advance the development of systems of care across the state.
Systems Development
TAP and the Service Network Partners contnue to have a decisive focus on developing stronger Systems of
Care around the state. All Partners are actve members of at least one Transiton Planning Commitee, and
provide training programs to a wide variety of community agencies. In additon, TAP and the Partners are
developing new initatves, programs, and relatonships to further improve systems in local communites. The
Director of the TAP Center at Kreider serves as the Secretary of the Steering Commitee for the Community
that Cares, a group of agencies across a 4-county region working together to improve services for children and
families through collaboraton. Easter Seals Metropolitan Chicago works in partnership with the Advocate
Health Care Systems Healthy Steps program and the Illinois Chapter of the American Academy of Pediatrics
(ICAAP) to enhance primary services to children 0-3 and improve communicatons between physicians and
parents through the Enhancing Developmentally Oriented Primary Care initatve. TAP at Trinity Services
provided developmental screening informaton, tools, and other resources to 40 physicians in a 5-county area,
and are working with one practce to develop and ongoing, formalized training and consultatve relatonship.
Resource Sharing, Effcient Division of Labor and Referral Agreements
A key beneft of the collaboratve nature of the TAP Service Network is the ability of Partners to share
resources, knowledge, and experience. This has resulted in an improved quality of services and ofen
decreases the need for duplicatve resources. UCP-Heartland and the Foundaton for Autsm Services Today
and Tomorrow (FASTT) contnue to strengthen their relatonship, with UCP-H providing training and access
to their resource room for FASTT staf and families, while FASTT clients increase their job and social skills
doing light janitorial work at the UCP-H Center. The developmental pediatrician at TAP Easter Seals Peoria/
Bloomington is now working with the diagnostcians at TAP Southern Illinois University, Hope, and Kreider to
provide medical consult and diagnosis through the use of telemedicine. TAP at Charleston Transitonal Facility
contnues growing Autsm Connect, a collaboraton of several agencies in the region. In additon to developing
a website, Autsm Connect and others jointly sponsored an Autsm Resource Fair at the local YMCA.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
10
Educational Supports
Have Dreams, a TAP Collaboratve Partner, provides training in Structured Teaching for educators throughout
Illinois, from 2-day introductons to a 5-day intensive class and ongoing mentoring. All TAP University Partners
and Service Centers provide resources and consultatons for their local school districts and educators. Family
and Community Resource Rooms are able to assist teachers in developing specialized supports for students
with an Autsm Spectrum Disorder. This quarter, TAP Partners collectvely provided over 400 hours of
consultaton tme to teachers, for a total of more than 1800 hours of consultaton this fscal year. This is in
additon to the more than 600 educators who received training provided by TAP this quarter alone!
Diversifcation of Funding & Fiscal Effciencies
Every member of the TAP Service Network is required to develop and maintain a blended funding model
for their services. Several, like TAP at Easter Seals Rockford hold small fundraisers to maintain the ability to
provide support materials like visual schedules, picture-assisted communicaton cards, social stories, and tp
sheets to teachers and parents without charge. TAP at the University of Illinois Urbana/Champaign augments
their staf with undergraduate and graduate interns, developing a new Autsm Practcum in conjuncton with
the Universitys Psychological Services Center. TAP at the University of Illinois Chicago is working with the
Universitys Department of Psychiatry to provide psychiatric services to TAP clients through the expansion
of an existng psychiatric rotaton. TAP Central Ofce is increasing the use of videoconference technology
to decrease the amount of travel that has been needed to support the Network, and has located low-cost
computer sofware that provides full videoconference capability for smaller Network Partners.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
11
The Autism Program Administrative Highlights
This fnal quarter of the fscal year began with Autsm Awareness Month in April, which quickly transitoned
into May a period where the Administratve staf met with each of the TAP Service Network Partners to
review and renew..
Outreach
TAP Central Ofce staf held several meetngs with Wendy Ross, MD, FAAP- developmental and behavioral
pediatrician from Wynnewood , PA in order to begin collaboratve eforts regarding training of individuals with
ASD, specifcally in using airports and traveling on airplanes. Dr. Ross is working with United Airlines in Chicago
as well to launch a program called High 5. They are hoping to identfy 5 families in Chicago in order to launch
this initatve, which will be the frst city on the tour. The tour will include 5 families in 5 cites across the US.
Central Ofce staf has been working closely with the Chicago Childrens Museum at Navy Pier to assist them in
revisitng the 2009 Play for All We have been able to work closely with the staf to revise that editon of the
accessibility guide for children and families living with ASD. The fnal document will be completed by the end
of August 2012.
Central Ofce staf is contnuing their discussions with Western IL University in Macomb, IL in hopes that this
will lead to a great collaboratve efort in that area. Discussions with a current faculty member who is also
a mother of two (2) sons on the spectrum have assisted in advancing this very important initatve. We are
extremely interested in opening channels in that area so as to be able to provide a service for them, along with
assistng them in their needs.
We are contnuing to strengthen our outreach eforts in the Danville area. Sheila Krein, parent liaison for
central IL coordinated a parent caf forum in that area with the assistance of IATAPP. The purpose of this
was to empower parents and to give them support. Parents were able to connect and discuss issues that
were of concern to them, especially IEP issues and supportve services. Jose Ovalle, parent liaison from the
Chicago area, was the guest speaker at the C-U Autsm Network in Champaign. He spoke to the Spanish group,
afer presentng the Spanish version of Understanding Autsm video, which he assisted in translatng from
English. Jose is a parent with twin sons on the spectrum therefore he speaks from his heart on many issues
surrounding autsm.
Jose Ovalle, parent liaison was the driving force in coordinatng an outreach efort with Representatve Lisa
Hernandez, from Chicago. Speakers at the event included personnel from UIC, Autsm Society of IL, TAP and
Groupo Salto. At the end of June, a very productve meetng was held with Debra Vines, Executve Director of
Answer Inc. We are going to be able to support this group in terms of their Dads group through helping to pay
for speakers. Our parent liaison, Jose Ovalle is also assistng them and will atend several of the meetngs, and
is introducing them to the basis concept of understatng autsm.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
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Collaboration
The TAP Director contnues to be an actve partcipant on the Leadership Council of AFAA. This is a very
important initatve for all of us as our children are beginning to age out of enttlement programs and we
need to be planning for their future in terms on adequate employment, housing and community supports.
The TAP central ofce is collaboratng with the Natonal ES program by co hostng the recepton for the AFAA
meetng that is being held mid July in Chicago. Have Dreams is providing the place for the recepton to be held;
speakers for the evening include the CEO of Walgreens and Have Dreams has partnered with them to provide
a training area in which to teach adults with ASD to learn all aspects of working in a Walgreens store.
We have been successful in completng the Birds and Bees training in Rockford, Dixon, and Peoria. The training
is taking the summer of and we will resume these trainings across the network in the fall. These trainings have
been well received and highly supported by each community. This is a partnership with a graduate student
through UIUC and has been well received throughout the Network thus far.
For the last several years, Litle Friends from Naperville, IL has been subcontractng through UIC; however we
are so pleased to be now be able to call Litle Friends a true partner as they have contracted directly with
us. We are so pleased this has occurred and look forward to a productve partnership in the coming years.
TAP central Ofce has been able to build out a permanent training center which is located at HILA. This training
center will be utlized for the structure TEACHH trainings that are ofered through Have Dreams. Additonally
it will be available for all other trainings that might be ofered throughout the year. It is our desire to provide
easier access to CPS and regional teachers to trainings.
Special Initiatives
As noted last Quarter, TAP has identfed Early Identfcaton and Interventon as an area of special concern. In
response, three Network Partners developed pilot programs to evaluate new ways to improve these services,
especially in rural Illinois. These programs have all been successful, and both TAP and the involved Network
Partners look forward for further expansion of these three programs in the coming year.
Throughout Illinois, obtaining diagnostc services for Autsm Spectrum Disorders is a challenge. Most qualifed
professionals are located in the larger, urban areas of the state, and the demand for evaluatons exceeds the
space available. In additon, a medical diagnosis (not just a diagnosis from a psychologist) is currently required
in Illinois if parents hope to access their health insurance to cover valuable interventon services. There are
few physicians prepared to give a child an ASD diagnosis, and even fewer (if any) are within a reasonable
distance of much of rural Illinois. To address this concern, Easter Seals Peoria/Bloomington and Southern
Illinois University Carbondale have initated a Telehealth-based diagnostc service, utlizing a developmental
pediatrician at Easter Seals and the experienced diagnostc team at SIU-C (which lacks a physician). As a pilot
program, a small number of diagnostc evaluatons have been conducted utlizing this model. All individuals
involved clients and staf felt the use of Telehealth was successful, and worth pursuing further.
Before a diagnostc assessment is initated, a child must frst be screened for signs that suggest the likelihood
of an ASD or other Developmental Delay. As part of improving the overall community system of care, TAP
has been working to provide training and support to community providers so that those providers are more
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
13
comfortable conductng screenings and making appropriate referrals for further services. As part of this years
special projects, two TAP Partners have been evaluatng new ways to meet this goal. Trinity Services provided
materials developed by the Illinois Chapter of the American Academy of Pediatrics to local pediatricians and
other primary care physicians, as well as providing them with training and consultaton services. Trinity served
42 physicians, more than double their goal of 20. Several have requested ongoing training and consultaton,
and one has asked Trinity to consider placing a Trinity clinician in the medical practce one day weekly to
expand services to his patents. SIU-C initated a program of training Physician Assistant students during their
pediatric rotaton in conductng throughout developmental screenings. Utlizing a proven, behaviorally-based
program of training, coaching, and consultaton, this program has trained 2 students with 3 more to be trained
prior to the end of July. Follow-up measurements will be conducted during the fall academic semester.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
14
Appendices
A. Network Actvites Outcome Summary
B. Output Defnitons
C. TAP Service Network Partners
D. Budget
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
15
Q1 Q2 Q3 Q4 YTD
75 75 75 78
116 118 128 139 501
1855 1882 2048 2224 8009
244 242 266 301 1053
231 255 278 347 1111
1523 2095 2259 2522 8399
137 168 159 190 654
451 777 367 501 2096
270 222 329 300 1121
1131 1670 2370 1654 6825
35 36 40 48 159
87 67 83 106 343
242 300 243 349 1134
95 179 120 118 512
1737 1762 2909 2666 9074
3 9 1 1 14
0 0 0 0 0
2 0 4 4 10
1 4 0 0 5
5 3 11 5 24
1 3 0 0 4
2 2 0 4
0 1 2 2 5
81 157 102 106 446
1387 1772 1822 1564 6545
22048 21193 20222 21462 84925
17866 17704 14834 14796
65200
116 483 200 234
1033
1552 2385 1766 2487
8190
Face to Face ano L-Mall Contacts tbrougb FCRRs tbrougbout tbe
Network
Contacts wltb otber agencles, provloers, parent groups wltb tbe purpose
ot bullolng a system ot care or collaboratlve to plan ano conouct events
plannlng ano oellver programs & servlces to reouce oupllcatlon
Attenoees ln collaboratlve contacts
vlslts to TAP Network Partner FCRRs tbrougbout tbe Network
Free Learnlng Alos Provloeo
Larly |nterventlon Tralnlng
Tralnlng ln Autlsm tor Parents ano Protesslonals (TAPP)
Otber Tralnlngs
Telebealtb Consultatlons ano Skllls Spotllgbts Hosteo
Flrst Responoer Tralnlng
Resource & ReferraI: Parent, FaniIy, Provider, & Connunity Outreach
Contacts (trequency, count)
Training Prograns and 5ervices
Clossroom Consultoton (unlque classroom count wltbln Q's)
|CAAP Tralnlng
Tralnlngs Provloeo (count)
Total Partlclpants Tralneo (count)
ADOS Tralnlng
Communlty Plannlng ano Network Development
Day Care Tralnlng
Tronngs Provded
Report Period Ending:
5ervice VoIunes
Direct 5ervice VoIunes by ChiIdren (unlque count wltbln Quarters)
Nunber of lIIinois Counties inpacted by The Autisn Progran (unlque
count wltbln Quarters)
The Autisn Progran 5ervice Network FY2012
Hours (lncluolng report wrltlng, ouratlon)
Screenng l lntoke (unlque count wltbln Quarters)
Chld Treotment (unlque count wltbln Quarters)
Dognostc Assessment (unlque count wltbln Quarters)
Stuoents ln Classroom (count)
Contacts (trequency, count)
Contacts (trequency, count)
Iomly Treotment (unlque count wltbln Quarters)
Contacts (trequency, count)
ducotorlIomly Consultoton & Cose Monogement (unlque cllent
count wltbln Quarters)
Appendix A: Network Activities Outcome Summary
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
16
Appendix B: Output Defnitions
Children receiving direct services (unique count within Qs)
Any services delivered that directly impact the child and /or the childs family. The child is counted within
each quarter only once, regardless of how many diferent direct services he or she may receive within
that quarter.
Diagnostc Assessment (unique count w/in Qs):
An in-depth assessment, including social /clinical history, behavioral and cognitve assessments, and
assessments specifcally designed to capture symptoms of ASD. A multdisciplinary team meetng with
the family and referral agency is held following the evaluatons to discuss the results of evaluatons and
recommendatons.
Screening / Intake (unique count w/in Qs):
Parents are interviewed regarding their childs health history and the concerns of the referring agency. If
appropriate, the child is scheduled for a diagnostc assessment.
Child Treatment (unique count w/in Qs):
Any services provided for the child, where the child was present and the primary intenton was treatment
of the child. The same treatment hour is not counted for child and family treatment.
Family Treatment (unique count w/in Qs):
Any services provided for the family (parents, extended family, and/or siblings), regardless of whether
or not the child was present. While the service may beneft the child, the primary intenton for the
interventon is at the family level. Examples include individual and group parent training.
Educator / Family Consultaton (unique count w/in Qs):
Any services where program staf consulted with school personnel, the family, or other providers (health
care providers, etc.) regarding the child, whether in person or by indirect communicaton. This does not
include tme in Team Meetngs or Feedback
Sessions already counted as part of diagnostc assessment.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
17
Appendix C:
The Autism Program (TAP) of Illinois Service Network
University Partners
TAP at University of Illinois Chicago
Chicago, IL 312-413-4624
Director: Jennifer Gorski, Ph.D.
TAP at Southern Illinois University
Carbondale, IL 618-536-2122
Director: Ruth Anne Rehfeldt, Ph.D
TAP at Illinois State University
Normal, IL 309-438-7439
Director: Karla Doepke, Ph.D.
Co-Director: James Thompson, Ph.D.
TAP at The University of Illinois
Urbana, IL 217-244-1395
Director: Linda Tortorelli
Service Centers
TAP at Charleston Transitonal Facility
Charleston, IL 217-348-3869
Director: Kristn Elie
TAP at Easter Seals CDC Rockford
Rockford, IL 815-395-5566
Director: Lori Davie
TAP at Easter Seals Metro Chicago
Chicago, IL 312-491-4110
Director: Colleen Shinn, COTA/L
TAP at Easter Seals Peoria-Bloomington
Peoria, IL 309-686-1177
Bloomington, IL 309-663-8275
Director: Jamie Hollis
TAP at The Hope Insttute
Springfeld, IL 217-525-8332
Director: Julie Alderman, M.A., LCPC
TAP at Kreider Services, Inc.
Dixon, IL 815-288-6691
Director: Laura Waters
TAP at Trinity Services, Inc.
New Lexon, IL 815-462-4273
Director: Kelly Vinquist, Ph.D.
TAP at UCP-Heartland
Maryville, IL 618-288-2218
Director: Amanda Mart

Collaborative Partners
Foundaton for Autsm Services Today
and Tomorrow (FASTT)
Maryville, IL 618-960-4663
Director: Cathy West
Have Dreams
Park Ridge, IL 847-685-0250
Director: Kristna Johnsen, M.A.
Litle Friends, Inc.
Naperville, IL 630-355-6533
Director: Pat Boheme, LCPC
Resource Center for Autsm and Developmental
Disabilites (RCADD)
Chicago, IL 312-746-5447
Director: Maureen Meehan, Ph.D.
The Autism Program of Illinois
Fourth Quarter Report (April 1, 2012-June 30, 2012)
FY 2012
18
ILLINOIS DEPARTMENT OF HUMAN SERVICES
Program Name The Autism Program
Federal Grant Name N/A
Catalog For Domestic Assistance (CFDA No.) N/A
Program Grant Period (FY) Begin 7/1/2011 End Period 6/30/2012
Quarterly Program Status Report Period: April 1, 2012 to June 30, 2012
Agency Name (Contractor, Not for Profit, etc) The Hope Institute for Children & Families
Contract Number 40CM001715 Total Contract Amount 4,296,045 $
Prepared by Rick Wilson Date 8/9/2012
Does your Agency Utilize a Cost Allocation Plan? (Y/N) N
Expense Area: Annual Budget Quarterly Cost
(4/1/2012 to
6/30/2012)
Quarterly Direct
Cost
Quarterly
Indirect Cost
A. Total Expenses
1. Salaries, Consultants & Network Partners
a. Salaries & Wages 177,000.00 $ $53,780.87 $53,780.87
b. Payroll Taxes & Benefits 39,648.00 $ $11,897.75 $11,897.75
c. Program Consultants & Contractuals 4,968.00 $
d. Other Consultants & Contractuals
2. Consumable Supplies
a. Supplies 4,500.00 $ $8,257.71 $8,257.71
b. Printing $138.95 $138.95
c. Postage 3,000.00 $ $0.00
d. Other _Subscriptions & Reference Materials 367.00 $ $22.62 $22.62
e. Telephone
3. Occupancy
a. Rent 53,247.00 $ $12,332.52 $12,332.52
b. Utilities 872.00 $ $0.00 $0.00
c. Building Maintenance $0.00 $0.00
d. Telephone 10,000.00 $ $485.82 $485.82
e. Other Occupancy_________________________
4. Miscellaneous
a. Travel 28,000.00 $ $9,341.96 $9,341.96
b. Equipment Maintence 4,684.00 $ $2,090.22 $2,090.22
c. Conference, Meeting, etc 16,780.00 $ $7,111.03 $7,111.03
d.Training & Detection Programs 284,803.00 $ $48,763.77 $48,763.77
e. Statewide Communications 16,677.00 $ $7,987.00 $7,987.00
f. Other __Contract Fees___________ 11,898.00 $ $1,557.70 $1,557.70
g. Other _Network Partners_______ 3,295,917.00 $ $895,407.95 $895,407.95
h. Other __Indirect Cost__________ 343,684.00 $ $85,921.00 $85,921.00
Total Allocated Management & General Expenses 4,296,045.00 $
Grand Total of Expenses 1,145,096.87 $ 1,059,175.87 $ 85,921.00 $
* Indirect costs cannot exceed 15% of the total
budget
Appendix D: Budget