Do I Have Chronic Fatigue Syndrome
Do I Have Chronic Fatigue Syndrome
Do I Have Chronic Fatigue Syndrome
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By Adrienne Dellwo
Updated July 05, 2016
The terms "chronic fatigue" and "chronic fatigue syndrome" often are used
interchangeably, but they're actually two very different things:
1. Chronic fatigue is a symptom of just about every illness and a consequence of
lifestyle choices and factors, such as not getting adequate rest or being
extremely busy. It just means that you're tired all the time.
2. Chronic fatigue syndrome is a disease with specific diagnostic criteria and a
lengthy symptoms list that includes fatigue that's not relieved by rest, exercise
intolerance (post-exertional malaise), flu-like symptoms, and cognitive
dysfunction.
When you're trying to learn about your illness and find treatments for it, it pays
to make sure you're looking at information about the disease and not the
symptom.
Understanding Fatigue
Fatigue is one of the most common complaints doctors hear. Much of the time it's
caused by stress, lack of sleep, overexertion, or minor illness, such as a cold.
Typically, fatigue goes away when you get rest or recover from being sick.
In both chronic fatigue and ME/CFS, fatigue is extreme and constant. It makes it
difficult or impossible for you to function at even the most basic level. Think of
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the way you felt the last time you were seriously ill, severely sleep deprived, or
coming out from under anesthesia that's the kind of fatigue we're talking
about.
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Organ disease
Fibromyalgia
Sleep disorders or ongoing lack of sleep
High stress levels
Nutritional deficiency
Some causes of chronic fatigue (such as lack of sleep, nutritional deficiency, or
short-term infection) have an obvious solution and are somewhat easy to correct.
When caused by a chronic illness, chronic fatigue can be treated but not cured.
In some cases, doctors can't figure out the cause of chronic fatigue, but the
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person doesn't meet the diagnostic criteria for ME/CFS. Those cases are diagnosed
as idopathic chronic fatigue. (Idiopathic means without known cause.)
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It's in your best interest to pay attention to whether websites and other
information sources are talking about the symptom or the disease. It might seem
like they're just using a shorter form of a long name and are really talking about
the same thing.
Sometimes, that may be true. However, other times, it may be used to deceive
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you. Say a website claims that a certain product is proven to "relieve chronic
fatigue." Which one are they really talking about? If they're talking about the
symptom, that product is unlikely to be much help for ME/CFS. The language
might be used intentionally to make you think it could work for you.
People who are educated about ME/CFS know to use the proper abbreviations,
whether that's CFS, ME/CFS, CFS/ME, CFIDS, or SEID. Dropping the "syndrome"
out of the name is frowned on in the patient/advocate/research community
because it's inaccurate. When it comes to your health, you can't afford to fall for
deception or listen to inaccurate sources.
Sources:
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June 2003 National Institutes of Health. "Chronic Fatigue Research: Challenges and
Opportunities."
2007 University of Maryland Medical Center (UMMC). All rights reserved. "Chronic
Fatigue Syndrome"
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Diagnosing Chronic
Fatigue Syndrome
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Do you feel like you're tired all the time, to the point that you are starting to
worry that something is seriously wrong? Have you begun to wonder if you could
have chronic fatigue syndrome?
Chronic fatigue syndrome and diagnosing whether you are suffering from it is
difficult, and it depends on multiple factors.
First, you need to understand that there's a difference between the symptoms of
chronic fatigue (being tired all the time) and the illness known as chronic fatigue
syndrome.
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months. Then, any other possible causes of the fatigue (and other symptoms you
may be experiencing) need to be ruled out.
That means a set of basic blood tests and, if indicated, further tests to check for
chronic infections, such as mononucleosis and tuberculosis; autoimmune
diseases, such as lupus or multiple sclerosis; emotional or psychiatric conditions;
and the nervous-system disorder fibromyalgia, which is similar to ME/CFS.
Without going through this process, it's impossible to say whether somebody has
ME/CFS. However, looking over the Centers for Disease Control and Prevention
(CDC) guidelines can help you determine whether it seems to fit your specific
case.
Identifying ME/CFS
Do you have:
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Four or more of the following symptoms for the past six months or more?
1. Impaired memory or concentration
2. Extreme, prolonged exhaustion and feelings of illness after physical or mental
activity (post-exertional malaise)
3. Unrefreshing sleep
4. Muscle aches and pains
5. Joint pain with no swelling or redness
6. A new type of headache or a change in your headache pattern
7. Frequent sore throat
8. Tender lymph nodes in your neck and near your breast
Still saying yes? Then ME/CFS may be something to bring up with your doctor.
Keep in mind that these criteria are just a starting point. Your doctor will still
need to do a lot of testing before determining whether you have ME/CFS.
Sources
Chronic Fatigue Syndrome: Diagnostic Tests to Exclude Other Causes. Centers for
Disease Control and Prevention.
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Diagnosing Chronic
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Understanding ME/CFS
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By Adrienne Dellwo
Updated May 19, 2016
A 2015 report from the Institute of Medicine put forth new diagnostic criteria
(along with a new name, SEID) based on their review of more than 9,000
scientific studies. These criteria are similar to the Canadian Consensus Criteria,
which advocacy groups have long called for in the U.S.
The new criteria include:
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The previous criteria included fatigue plus four or more symptoms from a list that
included all of the above except orthostatic intolerance as well as several other
symptoms, including sore throat, joint pain, headaches, and tender lymph nodes.
However, it was possible under the old criteria to diagnose chronic fatigue
syndrome without any of the symptoms (save fatigue) required by the new
criteria.
Learn more about the report: New Name, Criteria for Chronic Fatigue Syndrome
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complete list of your symptoms can help your doctor diagnose you. It's helpful if
you first become familiar with the full range of chronic fatigue syndrome
symptoms and then start keeping a symptom journal.
To date, no medical specialty has "claimed" this condition. It's up to you to find a
doctor who's knowledgeable about it.
Source:
Centers for Disease Control and Prevention, May 3 2006. "Diagnosing CFS"
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By Adrienne Dellwo
Updated April 08, 2016
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People with chronic fatigue syndrome also have other symptoms, including severe
pain, cognitive problems such as memory loss and confusion, and post-exertional
malaise.
Post-exertional malaise causes intense fatigue, pain and muscle weakness for up
to 48 hours following exercise or other forms of exertion.
Things like injury, illness and stress (emotional or physical) can make symptoms
worse. Some people have specific triggers (things that increase symptoms), such
as foods or chemicals.
People with chronic fatigue syndrome also frequently have coexisting conditions,
including fibromyalgia, irritable bowel syndrome, myofascial pain syndrome and
multiple chemical sensitivity.
People from every culture and socioeconomic level get chronic fatigue syndrome.
It's most common in women, but men and children can come down with it as
well.
Chronic fatigue syndrome, by different names, dates back to the 1700s.
Throughout the centuries, it's been falsely attributed to various causes and is only
now beginning to be understood by medical science.
More than 1 million people in the U.S. are known to have chronic fatigue
syndrome, but some experts and advocates estimate that many people are
undiagnosed and that the number is actually much higher.
Many people with chronic fatigue syndrome are too disabled to work.
The Social Security Administration does recognize chronic fatigue syndrome as a
potentially disabling condition. However, having a disability claim approved is a
long and difficult process that can be complicated by the ambiguous nature of
chronic fatigue syndrome symptoms and the lack of a diagnostic test.
Chronic fatigue syndrome goes by several names, including chronic fatigue and
immune dysfunction syndrome (CFIDS), myalgic encephalomyelitis (ME),
ME/CFS, and systemic exertion intolerance disease (SEID).
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The FDA has yet to approve any drugs for chronic fatigue syndrome.
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No medical specialty has "claimed" this disease, which can make it difficult to
find a doctor knowledgeable about diagnosing and treating it.
People with chronic fatigue syndrome sometimes see massage therapists,
chiropractors, physical therapists and other complementary and alternativemedicine practitioners.
They may also see a psychiatrist or psychologist to deal with the difficulties of a
debilitating condition and possibly for depression.
Depression is common in people with chronic fatigue syndrome, as it is in
debilitating pain conditions overall. Chronic fatigue syndrome, however, is not a
psychiatric condition.
Learn more: Treating Chronic Fatigue Syndrome
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"Possible Causes"
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Chronic Fatigue
Syndrome vs.
Fibromyalgia What's
the Dierence?
SEID - Systemic
Exertion Intolerance
Disease
Chronic Fatigue
Syndrome, ME, SEID &
Other Names: Why I
Use What I Use
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Understanding ME/CFS
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