tmpB4EC TMP
tmpB4EC TMP
tmpB4EC TMP
Hannah Bradby
Sociology Department
Uppsala University
Cite as: Bradby, Hannah Taking Story Seriously Social Theory and
Health 2017 doi: 10.1057/s41285-017-0028-3
Abstract
In narrative approaches to health and illness, a distinction between narrative and
story has been lost or occluded. This paper considers how the terms narrative and
story are defined and how they are used in practice in order to focus on
rehearsed or worked up stories, including fiction, rather than minimally
defined narrative fragments. Story written, spoken and shared is a powerful
way of contextualising health and illness in a wider landscape of human values
and interests and, as a form of enchantment in the face of scientific
rationalization, a human necessity. Some reasons why sociology, and
particularly medical sociology, has avoided defining fictional stories as part of
its material and its method are explored. The reasons why a sociology of health,
illness and medicine might want to include fictionalised story are sketched.
Complex moments of human experience, including sick physicians experience
of alienation from both themselves and their medical treatment necessitate
metaphor-laden and sometimes fictionalised writing to represent the subjective
contradictions. Story, including fictionalised story, represents a means of
including imaginative elements of human life in sociological view.
1
People think that stories are shaped by people. In fact its the other way round
(Pratchett, 2005).
Introduction
Stories of illness and suffering - the encounter with healing professionals
leading to an uncertain outcome - are fascinating within and beyond the
academy. The appetite for illness narratives is not confined to sociology, with
illness memoires (e.g. Cockburn & Cockburn, 2012) and patient reportage (e.g.
Diski, 2014b) proving compelling reading for a popular as well as an academic
audience. This paper revisits how health social scientists use the terms narrative
and story, to argue that sometimes at least, a story is much more than a narrative
fragment, in being a polished, shaped account designed to entertain, captivate
and enchant. Stories represent the experience of illness and the medical
encounter in ways that are affecting, encapsulating the subjectivity of suffering
with the techniques of fiction. Fiction is not (with exceptions (Longo, 2016))
the realm of sociology and sociological writing that exhibits too many of the
features of fiction has been treated as suspiciously lacking in serious intent
(Clifford & Marcus, 1986). The lack of over-lap between sociology and
fictionalised story is a loss to sociology in terms of the paradoxical and absurd
subjectivity of the human experience of both illness and health and in the range
of futures that can be imagined.
2
might be relevant evidence. Stories with a fictional flavour offer sociological
possibilities for understanding health, illness and the encounter with medicine
that go beyond the interview and everyday speech that preoccupy narrative
approaches to health and illness.
3
through the future-oriented ideology of science. The potency of this promise
was confirmed by the astonishing effectiveness of penicillin, steroids and birth
control that appeared in the mid-twentieth century; therapeutic effects that did
not depend on obeisance to a god or belief in the supernatural. Medicalization,
whereby existential and relationship problems are treated bio-medically, is part
of the secular, rationalization that endorses value-neutral scientific
understandings in the pursuit of rational goals (Weber, 1963).
Sociologys dual rationalist and romantic origins are part of its emergence in the
intellectual landscape in a location between experimental science and literature.
At the start of the nineteenth century social realist novelists such as Honor
Balzac (1799-1850) and George Eliot (1819-1880) were tracing changes to
institutions, including gender and class, exploring how society was developing.
Indeed Emile Zola (1840-1902) proposed an experimental novel that, by way
of close documentation, offered a dispassionate observation of the world. For
Zola, an experimental naturalist novel would draw upon a database of primary
4
research material akin to an ethnographers field notes to offer insight that
could not be otherwise attained.
the logic of the simulacrum, the disappearance of man as creative subject, the
cult of pastiche and parody of times past as tokens of a depthless, ahistorical
present (Kearney, 1988) page 20.
5
The dearth of imagination in modern social theory is accounted for historically
with reference the failure of H.G. Wells to secure an institutional position as a
founder of British sociology (Levitas, 2010). The imaginative possibilities of
utopian thinking are held up as the means of reinvigorating theoretical
approaches to re-imagining a good society (Levitas, 2013). Levitas argues for
utopian thinking with an internal coherence that is theoretically (if not
politically) possible, as crucial to maintaining a progressive social theory that
keeps sustainable social justice in view. Utopia may never be realized, but the
process and practice of imagining it are nonetheless important.
This paper considers the sociology of health and illness and the particular
reasons why fiction has been ignored, connected with its location in the
interstices between the citadel of medicine and the suburb of sociology
(Horobin, 1985) page 95. Below, what is meant in theory and in practice by the
terms narrative and story, is considered. Fictionalised stories as method, evidence
or theoretical approach to understanding the human processes around illness
and healthcare tend to have been avoided and this paper makes the case that
sociology should take stories seriously.
6
(Corrine Squire, 2005). Narrative can be understood in terms of its function -
why is the story being told - and its structure - how a series of clauses are linked
temporally and causatively. A widely employed minimal definition of story has
two events that are linked sequentially such that re-ordering the events changes
the meaning of the story as follows:
compared with
Story can be defined in terms of the minimum elements that should be present
- complicating action and resolution - but may include others such as abstract,
orientation, evaluation, coda (Labov & Waletzky, 1967; Thornborrow & Coates,
2005): 4. A minimal definition of a narrative unit tends to be two complicating
action clauses where verbs are in the past and where we can infer that the order
of the clauses matches the order in which the recounted events took place. The
small story of everyday apparently inconsequential small-talk is contrasted
with grand narrative (Georgakopoulou, 2006) and the big/small story contrast
is taken up elsewhere to classify interviews as big story (Sools, 2012). The
current paper does not contribute to the classification of narrative nor the
methodology of analysis but rather discusses the conceptual work of stories
(Corrine Squire, 2005).
The relationship between narrative and story is unclear in much research, with
the terms regularly used interchangeably, sometimes taking the meaning of story
for granted (Thornborrow & Coates, 2005): 3. Beyond individuals
representation of their own experiences to themselves and their immediate
interlocutors to create coherence and construct, display and reinforce a sense of
self (Cheshire & Zeibland, 2005), is the relationship of this self to the wider
social world (Bruner, 2004). The social processes of narrative, in which
collective knowledge (or folk psychology) connects events through stories, can
be contrasted with paradigmatic knowledge based on classifying and
categorizing, characteristic of the natural sciences (Bruner, 1986). This paper
attempts to survey neither how structures and functions of narrative interrelate
(Thornborrow & Coates, 2005), nor how theories of narrative relate to other
theories (Murray, 2002). Its intention is rather, within the profusion of narrative
research, to make a case for story as a worked up and not necessarily
documentary account of the self in the world of health and illness.
7
Aristotles definition of a story as having a beginning, a middle and an end does
not necessarily depend on events being reported in the past (as has been
claimed e.g. Cheshire & Zeibland, 2005: 21), since the story might be projected
into the future, have a disrupted time-line and the tripartite form may be
acknowledged through disregard. A human tendency to organize events and
time according to the logic of narrative (Ricoeur, McLaughlin, & Pellauer,
1984) means that story not only conveys sequenced information (I got ill. I
recovered), but goes further in terms of structuring information to interpret
and make meaning. Beyond making meaning, some stories not only instruct but
also entertain and by constructing a world that holds the attention of the
audience, captivate and even enchant. Story is a form of knowledge that is
readily retained and recalled: anecdotes with characters, plots, motivations, and
actions provoke human interest. Story goes beyond the medium in which it is
delivered, recognisable in written, spoken, sung, acted, danced and pictorial
representations. In the course of communicating something, a good story has
more elements than the minimally defined narrative clause, including; metaphor,
aphorism, simile, irony, sarcasm, over-exaggeration for comic effect - all the
tricks of an entertaining storytellers toolbox. And it is these elements of a
story that disqualify such accounts from being reliable, valid sources of
sociological evidence, betraying as they do, the hand of embellishment and
rehearsal. It is the artfulness that makes them inauthentic as sociological
evidence in empirical research.
Story as human
Stories are a way of being human (Bruner, 1990), a means to express and
explore a shared humanity, with their form ranging from epic oral poems to
online graphic novels. Philip Pullman underlines the centrality of the human
need for stories, stating that after nourishment, shelter and companionship,
stories are the thing we need most in the world. Stories permit us to
communicate with long-dead generations of forebears in their function as
machines for the suppression of time (Doja, 2008) and by compressing time,
accounts have persisted beyond the length of a human life time in the absence
of written forms. Stories represent an expression of yearning for the great
escape from death (Tolkien, 1947) and a form of escapism from the grim
inevitability which has taken religious, fantastic and magical forms. Escaping
the limitations of a human life a story can enchant, transporting listener and
teller beyond the space-time constraints of quotidian, embodied life. Stories
comfort our fear and dread at the prospect of our short and limited lives as well
as providing answers to the big metaphysical questions of our existence: our
origins, our nature, our relationship to the animal, the divine and the
monstrous (Kearney, 2002). Stories form humanity in that they are not only a
8
way of organising knowledge, but they are constitutive rather than descriptive
(Game & Metcalfe, 1996): page 40.
Military metaphors of the body under threat of invasion while valiantly fighting
the unwanted interloper constitute another clich for the cancer diarist to
dodge. Illness as a generic rebuke to life and hope, risks the ill person being
seen as morally failed, inadequately happy or positive. Illness acts like a sponge,
illness soaks up personal and social significance from the world of the sick
person (Kleinman, 1988). The author who labours with metaphor and simile
9
may create a context to re-interpret the disorder of disease, re-making meaning
to reassert humanity in the midst of disorder. Arthur Frank describes the re-
interpretation of the sense of an embodied life as falling into three patterns,
characterizing these structures of meaning-making as quest, restitution or
chaos (Frank, 2013). The quest to overcome the illness or wound might
ultimately constitute a restitution whereby some order is restored or re-
established, with the assault on wellbeing absorbed into a new story. The
possibility of chaos continuing to characterise the story suggests how illness and
suffering can resist attempts to contain their meaning in story-form.
The urgent need to make sense of experience in terms that are neither clinical
nor scientific is particularly stark with professionals who struggle to make sense
of a bodily failing, when their previous strategies of self-determination fail (e.g.
Conway, 1997). For physician authors the transition to being recipient of,
rather than provider of services (Greene, 1971) and the limitations of scientific
and technical expertise to comfort existential pain and suffering can be deeply
troubling. If accounts of life in the alien kingdom of illness are compelling,
then reflections of the ill physician are captivating because s/he should have
mastered the culture, language and rituals of the modern hospital. And yet
Even the doctor, fluent in the language and customs of the place, finds herself
a stranger in the land of backless gowns, plastic bracelets and helplessness
when she becomes a patient (Laqueur, 2016).
Confronted with a lung cancer diagnosis in his thirties, Paul Kalanithi, familiar
with others mortality through his work as a neurosurgeon, did not expect his
own to be so disorienting, so dislocating (Kalanithi & Verghese, 2016). The
strangeness and unfamiliarity of being a patient is not confined to physicians
with a terminal diagnosis. Oliver Sacks describes the lack of comfort to be
gained from his physicians insights and advice on the occasion of a serious
injury to his leg. While Sacks recognises the logic that informs his medical care,
it does not assuage the suffering which amounts to more than damaged nerves,
flesh and bone, consisting in psychic violence done to his sense of bodily and
social integrity (Sacks, 1986). Even though Sacks broken body is well met by
surgical and orthopaedic technique, such that bones and ligaments mend, he
experiences horror, alienation and disorientation. His distress is not assuaged
by expert information, nor is it encompassed in a depression and anxiety score
and it cannot be adequately described as symptoms of shock. As a writer and
storyteller Sacks communicates the contingency, vulnerability and alienation of
injury; the complexity of suffering that ensues even apparently straight-forward
somatic problems (Sacks, 1985).
10
Written accounts of a formerly well person encountering pain, suffering and
uncertainty offer a glimpse of the land of the sick, an exotic spectacle in itself.
When the ill or injured person is also a physician, the double-alienation of
being ill or injured and of being disconcerted in a world that should be familiar,
adds to the exotic spectacle. Stories laced with metaphor explore contradictions
and overlaps of doctor-as-patient. Even more exotic than insight to the land of
the sick is the unavoidable and premature encounter with death. Posthumously
published accounts of living with fatal illness have a dramatic tension built in as
the narrator approaches death (Kalanithi & Verghese, 2016; Nobel, 2005). The
finality of death can be overcome, for instance when the narrative voice is
taken over by the dead persons partner (Kalanithi & Verghese, 2016). After
Ruth Picardies death her pathography concluded with a description of her last
days written by her husband, Matt Seaton (R. Picardie, 1998), who went on to
write his own account of her death and its aftermath (Seaton, 2002). Ruths
sister Justine wrote the story of her desperation to make contact with her dead
sister leading her to seek out spiritualists, mediums and psychics in a sort of a
ghost detective story where the central mystery is the process of mourning (J.
Picardie, 2001).
The enormous gap between the experience of mental illness and the psychiatric
and psychological service provided has been explored in various fictional
genres. The verisimilitude of the experience of mental illness, is rendered
through the techniques of fiction (Galloway, 1990; Piercy, 1979) and poetry
(Plath, 1966). The urgent need for non-medical sources of support and succour
such as booze and fighting (Burnside, 2006) which may appear self-destructive
to a medical view, can be rendered logical with a metaphorical representation of
the experience of anxiety and depression. The techniques of concrete poetry
whereby marginal notes disappear into the books binding illustrate the
narrators disintegrating sense of self in a fictionalised version of a nervous
break-down (Galloway, 1990). Janet Frames poetry, short stories, novels and
autobiography covered her experience of despair and severe mental illness and
its treatment in psychiatric hospitals, including ECT, insulin and a lobotomy
that was scheduled and then cancelled. The entangled interconnectedness of
distress from early family life, symptoms and their brutal treatment showed
how medicine regularly compounded rather than alleviated despair.
The distress and alienation occasioned by medical treatment, even when the
patient knowingly and willingly consents to procedures that are ethically and
professionally administered, is a feature of various cancer diaries. Jenny Diski
describes the assault on her personhood of radiotherapy, including how the
11
cool, disconnected attitude of staff added to her own existential distress (Diski,
2015). The account suggests that had staff attended to Diskis basic bodily
comfort during the procedure, she would have avoided being cold and
unnecessarily naked, which might have made matters less horrific. However,
the subtlety of the writing holds out the possibility that the terminal diagnosis
and harsh treatment regimen might be inherently awful.
Bodies in health
The subjective experience of health is no less problematic than illness and
injury: as a multidimensional, contingent and complex quality, its evaluation
varies by gender and across the lifecourse (Blaxter, 1990). Health is a chimera
a quality that is hoped for, yet which is illusory or impossible to attain, but
the unfeasibility of attainment does not reduce its desirability. A narrative
approach can make sense of the interaction of health with other life issues, its
temporal nature and the way that it is regularly taken for granted (Sools, 2012).
While the role of narrative in health and medicine (Greenhalgh & Hurwitz,
1998) has been covered, the possibility of story, with its uncertainty around
truthful valid and reliable characteristics, has been less considered.
without prescription.
12
(Bradby, 1996). The widely-held conviction of the disastrous consequences of
having a baby outside a family-sanctioned marriage contrasted with the rare
cases where such a pregnancy had actually taken place, where the circumstances
had been normalized. As a qualitative researcher, I recognised the cultural logic
of womens fears around unplanned pregnancy, and was engaged with mapping
how the gendered policing of young peoples behaviour had implications
beyond reproductive health (Bradby, 1999). The strong sense of the calamity of
unplanned pregnancy for an unmarried girl was relevant for understanding
smoking, drinking (Bradby, 2007) and access to health services (Bradby et al.,
2007). Taking my lead from an exceptional woman who took an unplanned
pregnancy in her stride, I wrote a fictionalised account of a pregnancy
conceived within the cultural constraints that young women described, but that
was ultimately positive. The freer interpretation of material from interviews and
participant-observation gave rise to a sociologically plausible but optimistic
version of the possibilities for a pregnant woman (Bradby, 2005). The
fictionalised representation of womens stories included insights that could not
easily appear in empirically-justified analyses either because they compromised
anonymity or because they consisted in dreams, jokes and speculations, rather
than observable behaviours and their justification.
Closing questions
Sociologys emergence as an institutionalised discipline alongside the rise of
natural sciences as the source of authoritative knowledge and the development
of the European novel, may account for its reluctance to make use of
fictionalised representations of the social world. The emergence of the
experimental sciences as the most authoritative knowledge source is part of
why fictionalised story cannot qualify as trustworthy evidence. With science
asserting the universal truth of its knowledge claims, story offers more
ambiguous, paradoxical approaches to establishing the workings of the social
world and the place of self, in times health, illness, injury and madness.
13
Physicians stories of dual alienation from both themselves and from the
practices of medicine in the face of serious injury and terminal diagnosis
represent the type of contradictory existential experience that is not easily
represented in scientific documentary evidence. Poems, memoire and novels
about the complex suffering of serious depression and anxiety, compounded by
medical treatment show how stories can represent paradoxical dimensions of
subjectivity.
Could sociology admit fictionalised stories as part of its evidence base? Would
vulnerable and occluded populations and their healthcare needs be well
represented through story? What sociological stories would emerge if we were
unhampered by the necessity of asserting scientific authority that would fit into
the form of the existing evidence-base? Would our ability to understand and
represent the human verisimilitude of a situation be supported by techniques of
fiction? Would recognisably sociological stories emerge as a genre?
14
How can sociology grapple with stories as evidence, especially those that do
not claim to be documentary? How might fictionalised stories be incorporated,
without harming the truth claims of research? Could criteria for assessing the
suitability of ficitonalised sociology be developed? Story offers a means, not
only of exploring different view-points, but of configuring alternative forms of
collaborative knowledge production.
Bradby, H. (1996, April). Cultural Strategies of Young Women of South Asian origin in
http://theses.gla.ac.uk/2105/1/1996bradbyphd.pdf
Macmillan.
Bradby, H. (2007). Watch out for the Aunties! Young British Asians accounts of
identity and substance use: Young British Asians accounts of identity and
https://doi.org/10.1111/j.1467-9566.2007.01011.x
Bradby, H., Varyani, M., Oglethorpe, R., Raine, W., White, I., & Helen, M. (2007).
British Asian families and the use of child and adolescent mental health
15
services: A qualitative study of a hard to reach group. Social Science &
https://doi.org/10.1016/j.socscimed.2007.07.025
https://doi.org/10.1177/1077800409332030
University Press.
Bruner, J. S., 1915. (1990). Acts of meaning. Cambridge, Mass: Harvard Univ. Press.
https://doi.org/10.1007/s12108-010-9096-8
http://site.ebrary.com/lib/alltitles/docDetail.action?docID=10087046
Clifford, J., & Marcus, G. E. (Eds.). (1986). Writing culture: the poetics and politics of
16
Cockburn, P., & Cockburn, H. (2011). Henrys Demons. New York: Simon and Schuster.
Collyer, F. (2010). Origins and canons: Medicine and the history of sociology. History
Conway, K. (1997). Ordinary Life. A memoir of illness. New York: W.H.Freeman and
Company.
Diski, J. (2014a, September 11). A Diagnosis. London Review of Books, pp. 710.
Diski, J. (2014b, December 4). The Screaming Gynaecologist. London Review of Books,
pp. 2325.
Diski, J. (2015, February 5). Was that when it was beaming me? London Review of
https://doi.org/10.1177/0263276408097810
Durkheim, E., Lukes, S., & Halls, W. D. (2014). The rules of sociological method: and
selected texts on sociology and its method. New York: Free Press.
Eggins, S., & Slade, D. (2006). Analysing casual conversation. London: Equinox.
Frank, A. W. (2013). The wounded storyteller: body, illness, and ethics (Second
17
Game, A., & Metcalfe, A. W. (1996). Passionate Sociology. London: Sage Publications.
Retrieved from
http://site.ebrary.com/lib/uppsala/docDetail.action?docID=10567145
Georgakopoulou, A. (2006). Thinking big with small stories in narrative and identity
Greenhalgh, T., & Hurwitz, B. (1998). Narrative based medicine: dialogue and
9566.ep10831386
Kalanithi, P., & Verghese, A. (2016). When breath becomes air. London: Bodley Head.
Kleinman, A. (1988). The illness narratives: suffering, healing, and the human
18
Labov, W., & Waletzky, J. (1967). Narrative analysis: oral versions of personal
experience. In J. Helm (Ed.), Essays on the verbal and visual arts (Vol. 1966, pp.
Law, J. (2004). After method mess in social science research. London; New York:
http://public.eblib.com/choice/publicfullrecord.aspx?p=200755
Lepenies, W. (1988). Between literature and science: the rise of sociology (Vol. 10).
Levitas, R. (2010). Back to the future: Wells, sociology, utopia and method. The
Levitas, R., 1949. (2013). Utopia as method: the imaginary reconstitution of society.
Longo, M. (2016). Fiction and Social Reality: Literature and Narrative as Sociological
USA: Routledge.
McHoul, A. (1988). Sociology and literature: The voice of fact and the writing of
19
Nobel, I. (2005). Like a Hole in the Head: Living with a brain tumour. London: Hodder
and Stoughton.
Piercy, M. (1979). Woman on the edge of time. London: The Womens Press.
Renwick, C. (2012). British Sociologys Lost Biological Roots: A History of Futures Past.
Palgrave Macmillan.
Ricoeur, P., McLaughlin, K., & Pellauer, D. (1984). Time and Narrative. Chicago:
Sacks, O. (1985). The Man Who Mistook his Wife for a Hat. London: Picador.
Seaton, M. (2002). The escape artist: life from the saddle. London: Fourth Estate.
Sools, A. (2012). Narrative health research: Exploring big and small stories as
https://doi.org/10.1177/0533316405049373
Squire, C. (2012). Narratives and the Gift of the Future. Narrative Works: Issues,
20
Thornborrow, J., & Coates, J. (Eds.). (2005). Sociolinguistics of Narrative. Philadelphia,
http://site.ebrary.com/lib/alltitles/docDetail.action?docID=10087046
http://www.excelsiorclassical.org/wp-
content/uploads/2011/04/Tolkien_On-Fairy-Stories.doc
Turner, B. (1995). Medical Power and Social Knowledge (2. ed. /). London: Sage.
21