Occupational Therapy Feeding and Eating Manual For Parents of Children With Oral Motor Deficits
Occupational Therapy Feeding and Eating Manual For Parents of Children With Oral Motor Deficits
2007
Genevieve Ziegler
University of North Dakota
Recommended Citation
Kovacevich, Jessica and Ziegler, Genevieve, "Occupational Therapy Feeding and Eating Manual for Parents of Children with Oral
Motor Deficits" (2007). Occupational Therapy Capstones. 113.
https://commons.und.edu/ot-grad/113
This Scholarly Project is brought to you for free and open access by the Department of Occupational Therapy at UND Scholarly Commons. It has been
accepted for inclusion in Occupational Therapy Capstones by an authorized administrator of UND Scholarly Commons. For more information, please
contact [email protected].
OCCUPATIONAL THERAPY FEEDING AND EATING
MANUAL FOR PARENTS OF CHILDREN WITH ORAL MOTOR DEFICITS
by
A Scholarly Project
of the
i
This Scholarly Project Paper, submitted by Your Name(s) in partial fulfillment of
the requirement for the Degree of Master’s of Occupational Therapy from the University
of North Dakota, has been read by the Faculty Advisor under whom the work has been
done and is hereby approved.
________________________
Faculty Advisor
________________________
Date
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PERMISSION
iii
TABLE OF CONTENTS
ACKNOWLEDGEMENTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . V
ABSTRACT . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . VI
CHAPTER
I. INTRODUCTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 23
III. METHODOLOGY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26
IV. PRODUCT . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29
V. SUMMARY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 81
REFERENCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84
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ACKNOWLEDGEMENTS
The authors wish to thank our advisor Dr. Gail Bass for the guidance,
direction, and support for this scholarly project. We also wish to thank all
have all taught us the subject matter and skills needed to be successful in both the
thanks to our peers who assisted us in many ways through support and
encouragement. This project could not have been completed without the
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ABSTRACT
Having a child with feeding and eating difficulties can be a very stressful event
for parents, and the process of occupational therapy assessment and treatment may also
be stressful and confusing for the parents. Most parents are not familiar with feeding and
eating difficulties in children, and many parents do not know where to find the
information that they need to learn about their child’s diagnosis. After an initial review
of literature, it was found that parents of children with special needs have few resources
for eating and feeding strategies and approaches for oral motor deficits. It was also found
that information about assessment and intervention for working with children who have
oral motor deficits is readily available for occupational therapists, but most resources are
not written in terms that can be easily understood by parents and caregivers.
After an extensive literature review and with input from occupational therapists
working in an out-patient pediatric therapy clinic, we decided that parents may benefit
from a manual designed to assist them to prepare for and understand the initial
methodology for the development of the manual was an in-depth review of current
resources, literature, and research in the area of eating and feeding strategies for children.
This manual was designed for use by an occupational therapists and it can be
given to parents prior to the first occupational therapy visit. The manual includes
professionals that provide treatment for feeding disorders and their role, and a detailed
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description of the occupational therapist role. It also includes information for parents on
how to prepare for occupational therapy assessment and intervention, and a description of
their role in assessment and intervention. The manual includes definitions of terms,
additional resources, forms for parents to fill out prior to the initial occupational therapy
information organized.
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CHAPTER I
INTRODUCTION
Project Background
The incidence of feeding and eating disorders in infants, toddlers, and children
and the interventions to treat them have been increasing steadily in recent years. This
medical technology, and increased survival rates of high risk infants. Occupational
therapists need to keep up with the ever-changing trends in treatment of these disorders.
interaction with the parents or caregivers of these children. The initial occupational
therapy evaluation can be a very stressful time for parents because of a lack of knowledge
and education about their child’s disorder, an uncertainty about what the future holds for
them, and what their role will be in the treatment of their child. The literature and
research reviewed in Chapter II of this document and first-hand experience indicates that
a manual that can provide the parents or caregivers with education about feeding
disorders and about the professionals that will be working with their child would help the
assessment and intervention process. The purpose of the project was to develop an
1
occupational therapy feeding and eating manual for parents of children with oral motor
deficits.
Occupational Adaptation
The theory guiding this scholarly project was the theory of Occupational
Adaptation (OA). OA was developed by Schkade and Schultz (2003), and was described
with feeding difficulties, the normal process of feeding and eating is interrupted by either
stage for the parents of the child to be the agent of change in facilitating normal
occupational functioning. The occupational therapist sets the stage and gives the parents
the tools they need. Together the occupational therapist and parents evaluate the process
the intervention strategies. The overall goal is for the parents and children to demonstrate
Summary
The parent manual which is the product of this scholarly project had its
develop the manual and Chapter IV contains the manual in its entirety. Chapter IV
recommendations.
2
CHAPTER 2
REVIEW OF LITERATRE
Introduction
eating disorders with infants and children. According to McCurtin (1997), this may be
through research, and the importance of the multidisciplinary team approach. Children
with medical problems are also living longer because of the advancements in medical
The purpose of this scholarly project was to develop a manual for parents of
children with oral motor deficits that prepares and guides them through the occupational
therapy evaluation and treatment process. In order to support the validity of the project,
the development of the manual had its foundation in current research and literature. The
following chapter is a review of that research and literature and it is divided into the
following sections: normal eating and feeding development, types of feeding disorders,
3
Development
understand the normal processes and the development of neurological, anatomical, and
involved, thus contributing to the complexity of treating individuals with feeding and
eating disorders.
Neurological Developmental
aspect of the infant movement until the infant's neurological system has matured enough
to develop motor control” (p. 4). Some of the initial reflexes diminish as the infant's
neurological system develops, but can potentially recur with neurological injury such as a
The infant's rooting reflex is present at birth, causing the infant to seek out the
nipple. “The suckling, swallowing, and tongue reflexes are used by the infant to obtain
and manage the fluid expressed from the nipple” (Chapman Bahr, 2001, p. 4). The infant
should automatically be able to coordinate sucking and swallowing with breathing; the
infant stops breathing during the swallow. Sucking immediately followed by a swallow
sequence together is referred to as the suck-swallow-breathe rhythm (p. 20). The grasp
reflex is used by the infant to hold onto the mother with their hands while feeding. The
gag reflex is present at birth, and present throughout life; it is extremely sensitive during
the first few months of birth, but becomes less sensitive when the infant develops
4
chewing skills. The cough reflex, also present at birth, is present to close the vocal cords
of the infant in order to prevent materials from entering the airway (Winslow, 1994). The
bite and transverse reflexes assist the infant in establishing the movements needed for the
2001).
the movements of the muscles in the mouth, lips, tongue, cheeks, and jaw. Oral motor
skills include the functions of sucking, biting, crunching, chewing, and licking” (p. 15).
succeed in the occupation of feeding. There are multiple oral motor characteristics that
children may exhibit during different developmental stages. Infant and toddler oral motor
information is from Ernsperger & Stegen-Hanson (2004, pp. 17-30) and Chapman Bahr
(2001).
0-3 months
At 0-3 months, an infant has a small, slightly retracted jaw. The oral space is
small, because of the limited amount of food that enters it. An infant has sucking pads in
the cheeks, and these larger cheeks and tongue take up the majority of the oral cavity.
The larynx sits high in the neck to eliminate the need for complex laryngeal closure. The
eustachian tube lies in a horizontal position, and will move into a more vertical position
5
as the infant moves toward adulthood. The infant moves the jaw, tongue, and lips as one
unit.
4-6 months
At this stage of oral motor development, the infant is constantly putting objects in
their mouth for oral exploration. The infant develops an up and down chewing pattern of
the jaw, and the tongue is able to flatten out. Because the infant's gag reflex diminishes,
the child is able to take into the mouth and swallow soft solids.
7-9 months
At 7-9 months, the infant has lateral closure of the lips. The jaw works
independently from the tongue and lips, and the tongue is able to differentiate between
collecting the food entering the mouth and swallowing the food. Tongue movement is
becoming more complex, and the infant has the ability to move food from the center to
the edge of the tongue and back. Teething usually starts at this stage, and the sensation of
teeth piercing the gums causes the infant to want to put objects in their mouth.
10-12 months
By the time the infant reaches this stage, the bite is usually well-developed, and
the infant is able to consume food with lumps that require chewing before swallowing.
Infants explore the use of utensils and cups at mealtimes and use hand-eye coordination
to bring these objects to the lips. These movements are not necessarily smooth and fluid
often leading to messy mealtimes where the infant frequently spills the liquids and food
all over.
6
13-15 months
At this stage the child is able to chew by using coordinated jaw movements. The
muscles around the lips and cheeks are more developed to assist with controlling the
movement of food. The infant has the ability to elevate the tongue in order to explore the
roof of the mouth. The overall mealtime may be less messy because the infant has
16-18 months
At 16-18 months the child perfects the oral motor skills listed in the above stages.
The child is better able to regulate the skill during feeding and drinking contributing to
25-36 months
By 2 years, the child's oral motor skills continue to be refined and adapted to the
growth changes of the child. In this stage, the child uses the tongue to move food that is
stuck in different places of the oral cavity such as in the space between the lips and teeth.
Three different chewing patterns are used during the chewing process; these patterns are
explored in order for the children to adequately practice the recently developed oral
Oral motor skills developed in infancy are essential for success in the occupations
7
Phases of Swallowing
According to Miller and Willging (2003), pediatric feeding difficulties may occur
in one or more of the phases of swallowing. There are three phases of swallowing
referred to as the oral, pharyngeal, and esophageal phases. The oral phase is when the
child ingests or masticates the food in the mouth to form a bolus. The bolus is pushed to
the posterior aspect of the mouth before swallowing. The pharyngeal phase involves the
trigger of the swallow and transfer of food or liquids through the pharynx. As food passes
through the pharynx to the larynx the airway should close in order to prevent aspiration.
The esophageal phase allows for food or liquids to pass through the esophagus into the
stomach.
Rudolph and Link (2002) reported that feeding problems occurred in 25% to 35%
of normal children and with 40% to 70% of infants who were born prematurely or who
have some other type of medical condition. Feeding and eating disorders can be mild and
children may grow out of them, or they can be severe enough to affect the child for his or
the most common classification method of feeding disorders is the dichotomy of organic
versus non-organic failure to thrive. Organic feeding disorders include factors associated
8
Non-organic feeding disorders include factors related to the social environment
(Burklow, 1998). Feeding disorders may potentially be caused by one independent factor
classification fails to consider that multiple factors, both physiologic and environmental,
medical, oral and/or behavioral instead of using the dichotomy organic versus non-
organic. Because there are multiple factors that contribute to feeding and eating disorders
Digestive Disorders
There are several disorders associated with digestive problems in infants and
toddlers. The most common types include dysphagia, aspiration, constipation, celiac
disease, motility disorders, Hirschsprung disease, short bowel syndrome, food allergy
reduced motivation to feed are all symptoms that can indicate a digestive disorder
(Manikam, 2000).
pharyngeal, and esophageal. Oral dysphagia deals with defects either in the physical
structure of the mouth or defects in the central nervous system; an example is low tone in
the cheeks which can cause pocketing. Pharyngeal dysphagia is caused by enlarged
9
Conditioned dysphagia is a term used to describe children developing hypersensitivity to
touch and defensive posturing when food is brought to their mouth, due to medical
procedures performed around the face and mouth (Miller & Willging, 2003).
pediatrics. It can cause discomfort, irritation, and pain when not treated properly.
(Manikam,2000).
the lungs.” (p. 12) Aspiration is classified in 3 ways: which stage of swallowing is child
at when aspiration occurs, type of occurrence, and severity of occurrence. Aspiration can
occur before, during, or after the swallow. Aspiration occurring before the child
swallows is caused by oral motor deficits, usually poor tongue movement. Aspiration
continually occurring aspiration; state related, which is when the child is respiratorially
compromised; fatigued, which is when the child wears out during feeding; or silent,
which is not evidenced by the child's behavior, but can be detected by radiological testing
Oral Motor
A child with oral motor deficits lacks the ability to coordinate and initiate
movements needed for normal eating and feeding. These problems may be caused by
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and cardiorespiratory problems. An example of a structural abnormality may be a cleft
lip, which interferes with proper lip closure. A neurological condition may be cerebral
palsy which may cause problems such as poor tongue movements, aspiration, and reflux .
Behavioral
emotional based difficulties (Burklow, 1998). Many times, the issues are a combination
Stress or negative external reinforcement can cause a child to develop food aversions and
parents with hectic work schedules, which leads disorganized meal times, and which can
put extra stress on the child when feeding (Ernsperger & Stegen-Hanson, 2004; Franklin
Psychosocial difficulties can stem both from the child and the parent. A negative
or dysfunctional interaction between the child and the feeder is an example of this.
Parents may become distressed and frustrated with not being able to feed their distressed
child. The child may also have feelings of distress if they do not have the adequate skills
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Culture can influence a child’s development of eating habits and behaviors, both
positively and negatively. “Don’t play with your food”, or “Use your spoon, not your
fingers”, can create a roadblock for resistive eaters. These cultural norms take away the
sensation of the food, and many children with feeding difficulties need multiple sensory
Children with feeding and eating difficulties may require care provided by a
variety of medical professionals who use their unique skills for evaluation and treatment.
The individual disciplines will contribute their skills and knowledge to the treatment
process based on the child’s needs. The treatment process starts with an initial evaluation
to determine the need for treatment and continues with interventions to aide the child in
to the complexity of eating and feeding difficulties in infants and toddlers. The team may
dietitian, and nurse. Every patient will have a team made up of different professionals,
and depending on the needs of the child, this team may change over time as the child's
needs change. The interdisciplinary team members possess different functional roles
dependent on their profession. Children with eating and feeding difficulties are initially
evaluated by their pediatrician. The pediatrician is the medical leader who examines the
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child to determine if there is a specific diagnosis that is having an impact on the child’s
eating and feeding. They may prescribe or administer treatments necessary for the
individual child's case. Pediatricians may also refer the child to other medical
professionals such as occupational therapists to get input into the evaluation and
diagnostic process and for treatment of the feeding and/or eating difficulty (Arvedson,
Examples of these behaviors during eating are gagging, vomiting, and spitting.
2006). Several standardized and normative based-instruments are available for assessing
the incidence and general nature of a feeding problem. An interview with the parents
The speech language pathologist looks at the child's oral motor skills required for
eating. They evaluate oral motor skills through clinical observation, but often
study. The speech language pathologist can also help read the infant or toddler’s
communicative signals during feeding and eating (Morris & Klein, 1987). The
occupational therapist evaluates and treats problems related to posture, tone, oral motor,
oral sensory, and self feeding. The occupational therapist’s role often overlaps with the
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The dietitian assesses past and current diets of the child to determine nutritional
needs. The dietitian may design specific meals to meet the nutritional needs of the child.
Ongoing monitoring of the child's diet will be necessary to make sure the child is
receiving the nutrition needed to support healthy growth and development (Arvedson,
2006).
The nurse is often the main coordinator for the treatment team. The nurse reviews
and records information gathered by the parents and/or caregiver prior, during, and after
clinic visits. Nurses are seen more in an acute inpatient setting or clinical setting and not
in an outpatient setting due to their role in the medical field (Arvedson, 2006 ; Miller et.
al., 2001).
Medical professionals are not the only members who make up the treatment team.
According to Pressman and Berkowitz (2003), the parents or caregivers should also be
included in the treatment team along with the professionals. Parents and/or caregivers can
provide valid subjective and objective data about the child that will aid in the evaluation
All interdisciplinary members are important for the treatment process, but the role
of the occupational therapist during the treatment process will be the main focus of this
project. According to Miller and Burklow (2001), the occupational therapist frequently
explores the use of adaptive equipment to enhance the child's ability to eat and feed. An
example of adaptive equipment may be a positioning device that provides upright posture
necessary for an accurate swallow. Occupational therapists have a unique role because
14
they look at how the child’s eating and feeding problems affect their every-day
occupations. “By taking a broad view towards the activity of eating and recognizing the
include physical, cognitive social, emotional, and cultural elements in evaluation and
assistants are uniquely positioned to meet the needs of infants and toddlers who have
problems eating and feeding. Feeding and eating are activities referred to as occupations,
which are various kinds of life activities that individuals engage in. An occupational
therapist’s main goal for treatment is to increase engagement in occupations that are
disrupted such as infants and toddlers with feeding and eating difficulties. Occupational
therapists offer a wide range of skills to evaluate and treat these infants and toddlers. The
first of these skills is the skill of activity analysis, which is a crucial part of assessing a
child’s feeding and eating patterns. Also, the occupational therapist has an “extensive
knowledge of anatomy and physiology of the phases of eating for the purpose of
assessing structural, neuromotor, and sensory factors that support or interfere with
function” (AOTA, 2000, p. 631). The occupational therapist is also skilled to educate
Evaluation
objective data in preparation for occupational therapy intervention services. This will
optimize the initial conversation and time with the occupational therapist (McNally,
15
2002). Data a parent and/or caregiver can bring into the initial evaluation scheduled with
mealtime, and 4) list of educational or research materials that have been read.
The medical history should include dates of any surgeries, previous and current
medications, diagnostic testing procedures, and any information on previous therapies the
appreciate the parents/caregivers compiling this medical information before the initial
feeding and eating performance. The journal is used to organize these observations and
will aide the occupational therapist in the treatment process. Observations recorded may
include the infant or toddler behaviors, types of foods and or amounts eaten, and
interactions with the parent and/or caregiver. Filming a child at home during a mealtime
captures a child's typical responses to foods and provides the occupational therapist with
an understanding of the child's feeding and eating patterns in the context of the home.
Parent and/or caregivers should lastly read information on feeding and eating disorders to
gain a better understanding of the child's disorder. Resources can be found on the
Internet, in books, or articles. This data combined with the occupational therapist clinical
reasoning skills will contribute to the treatment of the feeding and/or eating disorder
(McNally, 2002).
Infants and toddlers with feeding and/or eating difficulties may be referred to a
licensed occupational therapist for treatment. In preparation for the initial evaluation the
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occupational therapist will review the child's medical records to learn why the child is
referred to services and review any past medical history that is pertinent to the treatment
process. The initial clinical evaluation may include assessing a variety of feeding and
eating components. An occupational therapist will assess oral motor function, muscle
social and environmental components, and the child's physical abilities (Dmetteo, 2005).
The first thing the occupational therapist will do is review the medical history and
interpret the results to assess which areas reflect needs of the infant or toddler in therapy.
The next thing will be to assess the infant or toddler’s oral motor behaviors. In her book,
Oral Motor Assessment and Treatment, Chapman Bahr (2001) recommends several
excellent assessment for infant feeding. The Neonatal Oral-Motor Assessment Scale is
assessments are available for use in assessment, and may be used based on the
swallowing may be needed following a clinical evaluation when concerns are noted
regarding pharyngeal phase physiology and risks for aspiration with oral feeding” (p. 9).
electromyography. The VFSS is a videotaped X-ray that records how food passes into the
17
mouth through the pharynx to determine if the child is aspirating and/or penetrating their
food or liquids. According to Miller and Willging (2003), “ the VFSS analysis of the
swallow remains the gold standard of objective swallowing assessment following the
clinical feeding evaluation for confirmation of airway protection adequacy during the
swallow” (p. 443). The VFSS may not be available to use in all clinical settings. Miller
and Willging describe fiberoptic endoscopic evaluation as placing a scope down the
infant’s throat to “directly visualize the hypopharynx during the swallowing process to
assess airway protection ability” (p. 444). Functional magnetic resonance imaging is still
The initial evaluation may be a brief process or extensive and time consuming,
based on the child’s strengths and deficits. The evaluation may include all or only some
of the processes described above. Interpretation of the results of the occupational therapy
initial evaluation will be used to guide the treatment and intervention process.
Intervention
Based on the findings of the initial evaluation, the occupational therapist will
develop a plan for treatment. Included in the treatment plan are a series of unique
interventions based on the infant or toddlers feeding and/or eating needs. Described
below are common oral motor, behavioral, and sensory intervention strategies used by
occupational therapists for infants and toddlers with feeding and eating difficulties as
described below.
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Oral motor
Oral motor feeding and eating difficulties may be caused by abnormalities in the
oral anatomical structures, sucking mechanism, and swallowing mechanism. Oral motor
interventions for infants may include movement activities, whole-body massage, oral
According to Chapman Bahr (2001), “ Typical oral motor treatment sessions for
infants should begin with massage and movement activities” (p. 112). Massage benefits
the infant by increasing circulation, body awareness, bowel function, sleeping patterns,
attention, focus, concentration and comfort level. As the infant develops and matures
therapist may set up an obstacle course using tunnels, scooters, and swings that allow the
child to crawl and move about. It is crucial for the therapist to provide appropriate
movement activities based on the child's response. Some children may be more apt to
Infants and toddlers with movement and muscle tone deficits often are unable to
complete self- initiated oral motor exploration which is required for proper oral motor
development. These children require assistance in learning how to mouth their toys and
their hands and feet. An occupational therapist can implement oral motor exploration into
the treatment session by using hand over hand assistance to get objects to the child's oral
motor region. There are a variety of mouthing toys available to use that have different
surfaces, textures, and sizes. The therapist may also try different positioning techniques to
19
determine if position is inhibiting the child’s ability to bring objects to the mouth.
occupational therapist may implement different positions that help the child achieve good
alignment consists of the following: 1) neutral pelvic alignment of the trunk. Pelvis
alignment is promoted when the child sits well supported against a flat back, on a flat
seat, and on the buttox with 90 degree hip flexion and 90 degrees of knee flexion; 2) good
head, neck, and shoulder alignment with the head in slight flexion or neutral; and 3) chin
tuck with the back of the neck in a elongated position. Postural alignment through
positioning is crucial for normal oral motor movement during feeding and eating.
Handling techniques involve touch in and around the mouth and can be
implemented before and during feeding and eating treatment. Before feeding and/or
eating an occupational therapist can use the techniques of tapping, quick stretch, or
vibration to the cheeks and lips to improve muscle tone through sensory input. During
feeding, the occupational therapist can provide jaw support through finger positioning on
the chin and cheek of the child. This support will potentially enable the child to gain
adequate internal jaw control and tongue stability for eating without any physical
assistance (Case-Smith & Humphrey, 2005). During bottle feeding, touch pressure to the
cheeks can be used to improve suctioning of the nipple. Oral motor responses can also be
influenced by the placement of a spoon during eating; different spoon placements on the
tongue can inhibit tongue movements needed for the sucking response. Handling
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techniques during feeding and eating can involve physical touch from the therapist or
Behavioral
behaviors such as food refusal, food selection based on texture, not eating, and
overselectivity. Behavioral interventions are centered around two major areas: appetite
interventions such as inducing hunger, removing foods that the child is prone to eat, and
restricting all calories between meals. Contingency management includes positive and
praise, or giving the child the opportunity to play with their favorite toy or watch a
favorite movie. Positive reinforcement should be given immediately after the child
exhibits the desired behavior. An example of negative reinforcement is letting the child
“escape” as soon as they finish their food, making them think that they have won. An
acceptable form of mild punishment is a short time-out when the child refuses food
(Linscheid, 2006).
Sensory
problems exhibit hypersensitivity in and around the mouth” (p. 493). Touch in or around
the mouth causes aversive responses in these children; they also commonly react to any
textured food placed in the mouth. Reactions to touch or texture in or around the mouth
may be gagging, spitting, coughing, or crying. Infants with oral hypersensitivities “may
21
hold the food in their mouths to avoid moving it through the mouth” (Case-Smith &
Humphrey, p. 494). Starting as soon as possible, exposing the infant to textured foods
will help to facilitate acceptance of textured foods and elimination of the adversive
reflexes. Doing activities between meal times will help the therapist to establish a
relationship of trust with the child, because the child will not associate the therapist with
an unhappy event. Encouraging the infant or toddler to explore their mouth with their
hands will help them to become comfortable with touch in or around the mouth. The
therapist can also use washcloths or rubber or regular toothbrushes to rub the gums of the
infant or toddler. Dipping the toothbrushes or washcloths in food before rubbing them in
the mouth will help the infant or toddler become accustomed to the taste and texture of
different food. Firm, all-over rubbing on the infant or toddler can also help desensitize the
infant, and get them used to touch. Firm pressure sustained to the upper palate “can
desensitize the entire mouth, enabling the child to accept touch in other parts of his or her
mouth” (Case-Smith & Humphrey, p. 494). In older children, vibration may be used
During mealtimes, modifying textures of the child’s food is the first intervention
to be used. Thicker foods move more slowly through the mouth and provide more
sensory input to the child, therefore, foods can be thickened or thinned depending on the
child’s needs. The therapist also needs to assess the types of utensils being used to feed
the infant or toddler. When feeding the infant or toddler, food placement on the tongue
can often dictate the child’s response to the food. Food placed on the anterior of the
tongue rather than the posterior, and food placed in the center of the tongue rather than on
22
the sides seems to be tolerated better by the child (Case-Smith & Humphrey, 2005).
Lamm, Felice, and Cargan (2005) studied swallowing in children with dysphagia and it
was found that initiating a tactile stimulus to the child’s posterior tongue caused 100% of
treatment sessions and may be implemented into the daily routines by parents to enhance
the feeding and/or eating process at home. Interventions used for treatment will differ
for each individual child; interventions are based on the child's needs. The occupational
therapist can provide a wide range of oral motor, behavioral, and sensory interventions to
Parent's Perspective
During the treatment process, medical professionals need to consider the role of
both the child and the parent. Parenting children with feeding and eating difficulties may
potentially affect the parent's mental and physical health. Children with feeding and
eating difficulties may have other interrelated conditions, and these conditions have to be
taken into consideration. Parents face the challenge of balancing the multiple tasks in
managing the child's medical needs with other parental role. (Franklin & Rodger, 2003).
Mental health issues such as anxiety, depression, and stress have the potential to
become prevalent within the parent. Most parents want to ensure that their child is
receiving adequate nutrition to enhance development and growth. When the feeding
and/or eating process is disrupted for their child, parents may become anxious or
depressed; this then contributes to stress in the parent/child interaction during feeding and
23
eating. Strategies that will decrease and/or alleviate the psychological issues exhibited by
parents include implementing training and education on a variety of topics that will aide
in a positive parent/child interaction, and medical professionals should take time during
Rodger, 2003).
responsibilities, time, and energy it takes to parent children with feeding and/or eating
difficulties. Physically the parent may demonstrate overall fatigue, headaches, weight
gain or loss, and sleep disturbances. Parents need to take care of their physical health by
using time management skills and by getting help from others. Parents should find ways
to take time out for themselves and to balance parental roles. ( Franklin & Rodger, 2003)
along with their child's needs inorder to make sure treatment is not contributing to further
stressful situations and therefore inhibiting the child from making progress. When a
parent is affected physically or mentally, there are ways to assist them through the
treatment process. In order to find out this kind of information, it may be beneficial for
the medical professionals to ask parents to complete a reflective journal that can be used
to share their thoughts and help medical professionals make sure all the parents’needs are
being met during the treatment process. Medical professionals may gain insight on the
problems the parents are having through the reflective journals. Helping parent's access
and implementing training and education during the treatment process will aide in
24
treating the infant or toddler and assist parent's in developing knowledge of feeding and
Conclusion
Raising a child with feeding and eating difficulties can be a confusing and
stressful situation for parents or caregivers. The process of evaluation and treatment for
the child may seem overwhelming, and it is the responsibility of the occupational
therapist to help parents, as well as the child, feel as comfortable as possible. The
occupational therapist can educate and guide the parent(s) through feeding and eating
intervention as well as help them develop stress management and coping skills.
Parents are important during the treatment process since they know their child
best. The parent can provide information about their child’s behaviors that a occupational
therapist may not see in the clinical setting. The information from the parent will aide in
developing a treatment plan for the child. Parent therapist collaboration is an essential
part of the treatment process to assure all needs are being met.
25
CHAPTER III
METHODOLOGY
The topic of pediatric feeding interventions and the parent’s role became of
interest to the authors when one of the authors was on a Level-II pediatric fieldwork at
Capable Kids in Chaska, Minnesota. The author noticed that parents and caregivers who
brought their children in for therapy were often under-educated about their child’s
feeding disorders, and they also seemed to have many questions that they didn’t have
answered. The parents were given a very large binder with information from the clinic as
well as information from textbooks and medical journals to read. Because the binder was
determined that the parents needed a better way to communicate their questions with the
occupational therapist and also a better way to learn about their child’s feeding
difficulties.
review of literature, including textbooks, journals, and research articles was conducted.
Several pediatric textbooks, such as Chapman Bahr’s Oral Motor Assessment and
Treatment: Ages and Stages (2001) and Ernsperger and Stegen-Hanson’s Just Take a
Bite: Easy Effective Answers to Food Aversions and Eating Challenges were reviewed.
Also, the Harley E. French Library website was used to access the PubMed literature
26
database, OTSearch literature database, Cinahl literature database, and OTSeeker
literature database. These databases provided credible articles on children with feeding
disorders, and perspectives from clinicians and parents on this subject. The American
Occupational Therapy Association website was used to access articles from the American
approach is necessary for evaluation and treatment due to the complexity of eating and
feeding difficulties in infants and toddlers. Patients will have a team made up of different
professionals, and depending on the needs of the child, this team may change over time
as the child's needs change (Arvedson, 2006). This indicates that the parents will need
information on more than just the occupational therapist, and the feeding manual will
offer a place to give parents a brief description of each team member and what their part
broad view towards the activity of eating and recognizing the occupation that it
(AOTA, 2000, p. 629). Feeding and eating are activities referred to as occupations, which
are various kinds of life activities that individuals engage in. Occupational therapists
must help a child with difficulties in these occupations to regain normalcy or adapt to
27
Having necessary information already gathered to bring to the initial occupational
therapy evaluation will allow the parents and child to maximize their time with the OT
(McNally, 2002). This knowledge set the stage for including a feeding journal in the
manual that the parents can fill out and bring to the initial evaluation. This eliminates the
need for the OT to explain this to the parent during the first visit and then have the
parents bring the journal to the next visit; the OT can then use the information from the
Because the initial evaluation can be stressful, giving the parent or caregiver an
idea of what to expect can help to ease stress. The manual includes a section of basic
explanations of what the parent can expect during the initial evaluation. It also includes a
description of basic diagnostic testing that could possibly be used, and basic interventions
that may be used. Finding information on a feeding disorder can be difficult if the right
resources are not known to the parent; a list of educational resources for the parents is
included at the end of the manual for the parents to consult if they want to further their
knowledge.
28
CHAPTER IV
PRODUCT
The product developed for this scholarly project is a manual for parents of
children with oral motor deficits. The purpose of the manual is to prepare and guide
parents through the occupational therapy evaluation and treatment process. This manual
was designed for use by occupational therapists and can be presented to parents prior to
the first occupational therapy visit; it may also be used as a parent resource during
treatment.
that provide treatment for feeding disorders and their role, and a detailed description of
the occupational therapist role. This manual also includes the following: parent activities
role during occupational therapy services. The final section of the manual includes a
word bank, additional resources, and treatment/intervention notes pages for parents to use
The theory used to guide this product was Occupational Adaptation (OA).
Schkade and Schultz (2003) described their theory as a normative process that leads to
29
competence in occupational functioning. In children with feeding or eating difficulties,
foundation for the parents to be their own agent of change in feeding and eating co-
occupations. The occupational therapist is responsible for setting the stage by designing
the environment for occupational adaptation to occur. The occupational therapist will
guide the parents as they design their own occupational treatment challenges. The
occupational therapist and parent will collaborate to evaluate the response to occupational
therapy treatment. The treatment process may be altered by the parents evaluation of
whether or not they are satisfied with their performance in the co-occupations of feeding
and eating. The overall goal is for the parents and children to demonstrate increased
30
Occupational Therapy
Feeding and Eating Manual
for Parents of Children
with Oral Motor Deficits
By Jessica Kovacevich and Genevieve Ziegler
Advisor: Gail Bass, Ph. D, OTR/L
31
Table of Contents
Introduction..............................................................................................................3
Diagnostic tests......................................................................................................23
Treatments/Interventions.......................................................................................26
Parent Role.............................................................................................................29
Definitions..............................................................................................................30
Additional Resources.............................................................................................32
Treatment/Intervention Notes................................................................................35
References..............................................................................................................50
32
Introduction
The following manual is a manual designed to help you through the occupational therapy
treatment team you will be working with, how to prepare for the occupational therapy
sessions, assessments that may be used, and basic interventions that occupational
therapists use. Included in this manual are forms to fill out to bring with you to the initial
therapy evaluation. These forms will help the occupational therapist develop a plan for
evaluation and treatment of your child. By completing the forms at home, it will be easier
for you, and you will have more time to think about your answers, making them more
accurate. The journal is helpful because your child is going to act differently in the clinic
than at home, and the history forms help the therapist see your child through your eyes
rather than just from medical chart information. There are pages at the end of this manual
with blank lines for notes; these notes can be taken both at home and during the treatment
session and then discussed with the occupational therapist. Additional resources that may
be helpful to you and your child are included. If you have any questions when filling out
33
Feeding Disorder Facts
Definitions
Prevalence
o The incidence of minor feeding problems ranges from 25% to 35% in normal
children and 40% to 70% in infants born prematurely or children with chronic
medical conditions (Rudolph & Thompson Link, 2002).
34
Feeding Disorder Facts (continued)
Causes
There are a variety of medical conditions that can cause feeding disorders.
Listed below are common medical conditions that may be a cause of feeding difficulties:
o Prematurity/ low birth weight
o Conditions affecting the airway, such as chronic neonatal lung disease
o Heart disease
o Cleft lip or palate
o Nervous system disorders
Cerebral palsy
Meningitis
Encephalopathy
o Developmental delays
o Abnormal oral structures such as a large tongue
o Prenatal malformations of the digestive tract, such as esophageal atresia
o Oral sensitivity that can occur in very ill children who have been on a
ventilator for a prolonged period of time
o Irritation of the vocal cords after being on a ventilator for long period of
time
o Paralysis of the vocal cords
o Having a tracheostomy (artificial opening in the throat for breathing)
irritation or scarring of the esophagus or vocal cords by acid in
gastroesophageal reflux disease (GERD)
o Compression of the esophagus by other body parts, such as the heart,
thyroid gland, blood vessels, or lymph nodes
(Adapted from Penn State University Children's Hospital; Arvedson, 2006; & Rudolph, 2002)
35
The Treatment Team
Every child will have a team made up of different professionals, and depending on the
needs of the child, this team may change over time as the child's needs change. The team
members possess different roles dependent on their profession. Listed below are
professionals that commonly work with children who have feeding disorders.
Pediatrician
o The pediatrician is the medical leader who examines the child to
determine if there is a specific diagnosis or problem that is having an
impact on the child’s eating and feeding
o They may prescribe or administer treatments necessary for the individual
child's case
o Pediatricians may also refer the child to other medical professionals such
as occupational therapists for treatment of the feeding and/or eating
difficulty
Psychologist
o Identifies and treats psychological and behavioral problems. Examples of
these behaviors during eating are gagging, vomiting, and spitting.
o Psychologists examine the parent-child relationship interactions during
mealtimes
Dietitian
o Looks at past and current diets of the child to determine nutritional needs
o The dietitian may design specific meals to meet the nutritional needs of
the child
o Ongoing monitoring of the child's diet will be necessary to make sure the
child is receiving the nutrition needed to support healthy growth and
development
36
The Treatment Team (continued)
Nurse
o The nurse is often the main coordinator for the treatment team
o The nurse reviews and records information gathered by the parents and/or
caregiver prior, during, and after clinic visits.
o Nurses are seen more in an acute inpatient or clinical setting and not in an
outpatient setting
Occupational Therapist
o The occupational therapist treats problems related to abnormal posture,
tone, motor function, oral motor structures, and self-feeding.
o The occupational therapist’s role often overlaps with the speech language
pathologist
Parents/caregivers
o Parent's and/or caregivers are part of the treatment team
o They offer knowledge and share observations of their child's feeding and
or eating difficulties to assist the medical professional with the treatment
process.
(Adapted from Miller, Burklow, Santor, Kirby, Mason, & Rudolph, 2001; Arvedson, 2006 )
37
Occupational Therapist Role
All team members are important for treatment of an eating and/or feeding disorder, but
the role of the occupational therapist during the treatment process will be the main focus
for this manual.
Feeding and eating are activities referred to as occupations, which are various kinds of
life activities that individuals engage in. An occupational therapist’s main goal for
treatment is to increase engagement in occupations that are disrupted; this is the case with
infants and toddlers who have feeding and eating difficulties. Occupational therapists
offer a wide range of skills to evaluate and treat these children.
Referral
o A referral comes from a physician or other medical professional
recommending further evaluation of your child's feeding and eating
conditions.
Evaluation
o The occupational therapist will conduct a formal evaluation to gather
information about your child. This may include clinical observation and
the use of assessment tools that focus on identifying your child's abilities
and limitations in their daily feeding and eating.
38
Occupational Therapist Role (continued)
Interventions to achieve your child's set goals for feeding and eating
o Occupational therapy interventions, based on the findings of the initial
evaluation, will be implemented to help reach the goals set for your child
by you and your therapist.
39
Preparing for Occupational Therapy
Medical history
o Diagnostic testing
o Surgeries with dates
o Previous and current medications
o Previous therapy received
Film of a mealtime
o This is a 30 minute videotape of your child during a mealtime
o The video captures the child's typical responses at home and offers the
occupational therapist with an understanding of mealtimes at home
o The video is used to compare behaviors and problems in different settings;
children may act differently in a new setting with unfamiliar individuals.
40
Medical History
The following pages are designed to help you record this information in preparation for
the initial evaluation with an occupational therapist.
Please fill in the blanks prior to the initial evaluation with the occupational therapist.
CHILD'S NAME:__________________________________________________________________
DATE OF BIRTH:_________________________________________________________________
DOCTOR'S NAME:________________________________________________________________
DIAGNOSTIC TESTING/RESULTS:
Diagnostic tests are procedures which gives a rapid and convenient indication of whether
a patient has a certain disease.
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41
Medical History (continued)
CURRENT MEDICATIONS:
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ALLERGIES:
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42
Feeding/Eating History
Is your child still nursing or using a bottle (if no, how old was your child when he/she
stopped)?_________________________________________________________________________
In your opinion, were there any problems with early nursing or bottle feeding?
__________________________________________________________________________________
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When were solid foods started (age) & what was given first?_______________________________
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In your opinion, how did your child do with his/her first solid food?________________________
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Snack:____________________________________________________________________________
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43
Feeding/Eating History
Breakfast:_________________________________________________________________________
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Lunch:____________________________________________________________________________
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Dinner:___________________________________________________________________________
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Where is your child fed or where does your child eat (in a lap, highchair, etc)?
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Is your child able to use any feeding utensils? If so, what kind?____________________________
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44
Feeding/Eating History
Are you using any special equipment with your child? (special bottles, nipples, spoons, plate,
etc)_______________________________________________________________________________
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Does your child eat/drink in settings other than at home, and if so, where?___________________
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Does your child's feeding behaviors change if he/she is somewhere other that at home?
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Better:____________________________________________________________________________
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Worse:____________________________________________________________________________
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45
Feeding/Eating History
What are your concerns about your child's ability to eat and/or drink?______________________
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46
Feeding and Eating Journal
While completing this journal, please note any abnormal observations you have noticed
during eating and feeding. Please include a description and date of the observation.
Date Observation
Ex: 8/ Ex: 8/25Applesj Applesauce , yogurt, pudding, etc.
Date Observation
Ex: Ex: 8/25Ap Applesauce, yogurt, pudding, etc.
47
Feeding and Eating Journal (continued)
Date Observation
Ex: 8/25 ½ glass of milk, ½ cup of Fruit Loops, 2 chicken fingers, etc.
Mealtime behaviors
Date Observation
Ex: 8/25 Cries When forced to eat yogurt, pushes plate away, is distracted by other people
eating, etc.
48
Feeding and Eating Journal (continued)
Date Observation
Ex Ex: 8/25 Gags when eating peanut butter, coughs being fed by bottle, etc.
Date Observation
Ex: 8/25 T Throws food at others, gets distressed when others join mealtime, etc.
8/25
49
Feeding and Eating Journal (continued)
Other
Date Observation
50
The Initial Evaluation
Prior to the visit the registered occupational therapist will review past medical history
that is important to the treatment process.
The initial evaluation may include assessing a variety of feeding and eating components.
These components may include:
o Oral motor function
o Muscle tone
o Posture
o Sensory response
o Behavior
o Self-feeding ability
o Parent-child interactions
o Social and environmental components
o The child's physical abilities (including fine and gross motor)
CLINICAL OBSERVATION
The clinical observation is when the therapist observes your child feeding and/or eating
to determine strengths, weaknesses, and deficits.
DIAGNOSTIC TESTS
Diagnostic tests are instruments or tools used by the occupational therapist to determine
strengths, weaknesses, and deficits. A description of diagnostic tests that may be used for
ongoing evaluation are on the following pages.
51
Diagnostic tests for swallowing
Diagnostic tests may be recommended beyond the initial evaluation with the occupational
therapist. Below are descriptions of diagnostic tests used with the pediatric population.
The VFSS is an x-ray that lets the professionals observe the structures and muscles your
child uses when eating a variety of foods and liquids. The x-rays shows where the food
goes once your child swallows. Specifically the professionals are looking for the presence
or absence of aspiration (which is when the food enters the airway), how much energy is
needed, and how long it takes for your child to eat.
During the study your child will eat different consistencies of food and liquids. The
professional observing will be able to see how your child manages these different
consistencies.
(Adapted from Miller, Wilging, 2003; DeMatteo, Matovich, & Hjartarson, 2005)
52
Diagnostic tests for swallowing (continued)
FEES is a test that uses a small, flexible tube with an endoscope at the end of it. The
endoscope is a light and a camera lens used to take pictures of the surrounding area. to
examine the inside of part of the digestive tract. An endoscopy is performed while your
child is under anesthesia. Pictures may be taken inside the throat, the esophagus, and the
stomach to look for abnormalities in the digestive tract. There is also a possibility to take
biopsies to look for problems. Biopsies are small tissue samples.
53
Initial Evaluation Summary
The initial evaluation may be a brief process or it may be extensive and time consuming,
based on your child’s strengths and deficits. The occupational therapy will interpret the
initial evaluation results to guide the treatment process.
NOTES
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Treatment/ Intervention
Oral Massage
Oral massage is used to increase the child's awareness of oral motor structures, or to
decrease atypical responses by the child, such as gagging or bite reflexes. Massage may
be done with a finger, if the child’s mouth is very small, a nuk brush, which is a small
rubber brush with soft bristles on the end, or a washcloth may be used. The therapist will
begin by massaging an area on the child that is not sensitive to get the child used to the
therapist’s touch. The therapist will then work their way to the child’s mouth. The
therapist will provide gentle but firm pressure to the areas around and in the child’s
mouth.
Oral Exploration
55
Treatment/ Intervention (continued)
Positioning
Different positions that a child is placed in can have an impact on the functioning of their
oral motor movements. A therapist may work on positioning with your child to determine
the best position for the child to maximize oral motor functioning. The therapist may use
different chairs, cushions, and bolsters to position your child. The therapist will both
encourage and discourage specific positions to use when feeding your child at home. The
therapist will also work with you on different ways to hold your child, in order to
maximize comfort and functioning for the child.
Handling Techniques
Based on your child's oral motor strengths and deficits the occupational therapist may use
different handling techniques on your child's jaw and throat. Handling techniques are
when the therapist supports the jaw or mouth with their fingers or hands to facilitate
normal eating patterns. The therapist may support the child's jaw to encourage normal
chewing patterns. Support to the jaw also helps if your child does not have the muscle
strength or oral motor control to perform eating tasks independently. The therapist may
put pressure on the front of the chin to facilitate chin tuck, which in turn facilitates
normal swallowing. Handling may also include using utensils in a certain way, placing
them in a certain position to facilitate normal eating.
56
Treatment/ Intervention (continued)
Feeding equipment
To promote oral motor function the occupational therapist may recommend different
bottles or feeding utensils to best fit your child's needs. For example they may
recommend a different nipple size or shape, or a special spoon, cup, or plate. Different
utensils may be recommended in order to maximize independence for the child during
feeding and eating.
(Case-Smith, & Humphry, Ch 14, 2005; Chapman Bahr, 2001)
57
Parent Role
o Write down as much information as you can about the observations you
make at home before and during the treatment process.
o When you are ready, there are additional resources you can use to help
you and your child. Don't be afraid to bring resources into occupational
therapy treatment sessions for clarification.
o Voice your concerns; your therapist is there to help you and your child.
Every parent has good times and stressful times, and it is important to
keep your therapist informed about how you are doing.
58
Definitions
Aspiration
When the food enters the airway
Assessment
A specific strategy or tool occupational therapists use to gather the evaluation
information
Biopsies
Small tissue samples
Dysphagia
Difficulty in swallowing
Informal assessment
A procedure for obtaining information that can be used to make judgments about
characteristics of the child by using means other than standardized instruments.
Endoscope
A flexible tube with a light and a camera lens on the end used to take pictures of the
surrounding area
Evaluation
The entire process of gathering information
59
Definitions
Formal assessment
Assessment instruments which are standardized and norm-referenced and are
administered under controlled conditions
Gross motor
Gross motor skills are the bigger movements (such as running and jumping) that use the
large muscles in the arms, legs, torso, and feet
Hypertonia
Excessive muscle tone or tension resulting in slow, rigid, movements and sometimes
limited range of movement
Hypotonia
Low muscle tone, floppiness, or lack of tension, in the muscles when a body part is
moved
Intervention
The term used for the processes and methods that occupational therapists use to help their
clients achieve desired occupational performance in their valued activities
Muscle tone
Mild continuous contraction of the muscle tissue in its resting state; resistance to stretch
Oral-motor
Relating to the muscles of the mouth and/or mouth movements.
(Adapted from Willard & Spackman, 2003; AOTA, 2002; Case-Smith, & Humphry, Ch 14, 2005)
60
Additional Resources
BOOKS
61
Additional Resources (continued)
WEBSITES
62
Additional Resources (continued)
o Mayo Clinic
www.mayoclinic.org
o New Visions
http://www.new-vis.com
Articles by Suzanne Evans Morris, Ph.D., an speech
pathologist specializing in feeding therapy. List of
articles.
o Small Wonders - A Preemie Place
http://hometown.aol.com/Lmwill262/index.html
Laura Williams' website has feeding tips and stories for
parents of children born premature.
63
Intervention Notes
Date:___________
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Intervention Notes
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Intervention Notes
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Intervention Notes
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Intervention Notes
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Intervention Notes
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Intervention Notes
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Intervention Notes
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References
Arevedson, J. (2006). Swallowing and feeding in infants and young children. Goyal & Shaker GI Motility
Online. Retrieved September, 9, 2006 from
http://www.nature.com/gimo/contents/pt1/full/gimo17.html
Chapman Bahr, D. (2001). Oral motor assessment and treatment: Ages and stages. Needham Heights, MA:
Allyn & Bacon.
Case-Smith, J. & Humphrey, R. (2005). Feeding Interventions. In J. Case-Smith, Occupational therapy for
children (pp. 481-519). St. Louis, Missouri: Elsevier Mosby.
DeMatteo, C., Matovich, D., & Hjartarson, A. (2005). Comparison of clinical and videofluoroscopic
evaluation of children with feeding and swallowing difficulties. Developmental Medicine & Child
Neurology, 47, 149-157.
Evans Morris, S., & Dunn Klein, M. (2000). Mealtime Assessment. In S. Evan Morris & M. Dunn Klein,
Pre-feeding Skills ( pp. 175-183). San Antonio, TX: Therapy Skill Builders.
McNally, K., Morris, S.E.. (2006). Finding an appropriate treatment program for children with feeding
difficulties: a guide for parents. Retrieved September 9, 2006.
Miscrosot Office Online (2006). Clip Art retrieved November 28, 2006 from ttp://office.microsoft.com
Miller, C., Burklow, K., Santoro, K., Kirby, E., Mason, D., & Rudolph, C. (2001). An
interdisciplinary team approach to the management of pediatric feeding and swallowing disorders.
Children's Health Care, 30(3), 201-218.
Miller, C.K., Willging, J.P. (2003). Advances in the evaluation and management of pediatric
dysphagia. Current Opinion on Otolaryngology & Head and Neck Surgery, 11, 442-446.
Penn State Milton S. Hershey Medical Center (2004). Feeding Disorders, retrieved November 18,
2006 from http://www.hmc.psu.edu/childrens/healthinfo/f/feeding.htm
Rudolph, C., & Thompson Link, D. (2002). Feeding disorders in infants and children. Pediatric
Gastroenterology and Nutrition, 49 (1), 112.
80
CHAPTER V
SUMMARY
The purpose of this scholarly project was to develop a manual for parents of
children with oral motor deficits that prepares and guides them through the occupational
therapy evaluation and treatment process. An exhaustive review of current literature and
research was conducted in order to provide a basis of validity for the manual. The
literature supports the need for parent-friendly occupational therapy services and
the professionals that provide treatment for feeding disorders, and a detailed description
of the occupational therapist’s role. This manual also includes the following: parent
the parents role during occupational therapy services. The final section of the manual
includes a word bank, additional resources, and treatment/intervention notes pages for
hospital outpatient setting. The occupational therapist should have knowledge and skills
in the area of feeding and eating deficits. The product is designed to give to parents prior
81
to the first occupational therapy session. The manual may be given to the parents by the
referring physician or when parents set-up an appointment for the initial occupational
therapy evaluation at the facility. Use of the manual will help them prepare for
occupational therapy evaluation and treatment. Occupational therapists may also use this
manual as a parent resource during treatment to provide parents with educational material
on occupational therapy evaluation and treatment for feeding and eating oral motor
deficits. Parents can refer to the manual for definitions and explanations of therapy
techniques. The additional notes pages provide the parent or therapist with space to
record treatment or home programming notes; parents will be able to keep information
done to determine the effectiveness of the manual when used in a clinical setting. In
addition, more evidence-based research in the area of evaluation and treatment of feeding
and eating disorders for children should be completed. The use of evidence-based
practice will optimize the child's experience by using researched evaluation and treatment
compliance is directly correlated with their understanding of feeding disorders; when the
their child is a disruption in their daily lives. Treatment and home programming
82
recommendations given to parents by the occupational therapist takes up additional time
during the day, and parents are required to adjust their schedules to meet the needs of
their child with feeding and eating disorders. The literature indicates that parents
appreciate guidance from professionals throughout the treatment process, and that printed
information should be written in parent-friendly terms. It is hoped that these needs can be
83
REFERENCES
Arevedson, J. (2006). Swallowing and feeding in infants and young children. Goyal &
Shaker GI Motility Online. Retrieved September, 9, 2006 from
http://www.nature.com/gimo/contents/pt1/full/gimo17.html
Burklow, K., Phelps, A., Schultz, J., McConnell, K., & Ruldolph, C. (1998). Classifying
complex pediatric feeding disorders. Journal of Pediatric Gastroenterology and
Nutrition, 27 (2), 143- 147.
Chapman Bahr, D. (2001). Oral motor assessment and treatment: Ages and stages.
Needham Heights, MA: Allyn & Bacon.
DeMatteo, C., Matovich, D., & Hjartarson, A. (2005). Comparison of clinical and
videofluoroscopic evaluation of children with feeding and swallowing difficulties.
Developmental Medicine & Child Neurology, 47, 149-157.
Ernsperger, L., &Stegen-Hanson, T. (2004). Just take a bite: Easy effective answers to
food aversions and eating challenges. Arlington, TX: Future Horizons Inc.
Evans Morris, S., & Dunn Klein, M. (2000). Mealtime Assessment. In S. Evans Morris &
M. Dunn Klein, Pre-feeding Skills (pp. 175-183). San Antonio, TX: Therapy
Skill Builders.
84
Franklin, L., & Rodger, S. (2003). Parents perspectives on feeding medically
compromised children: Implications for occupational therapy. Australian
Occupational Therapy Journal, 50, 137-147.
McNally, K., Morris, S.E.. (2006). Finding an appropriate treatment program for children
with feeding difficulties: a guide for parents. Retrieved September 9, 2006
Manikam, R., & Pesrman, J. A. (2000). Pediatric feeding disorders. Journal of Clinical
Gastroenterology, 30,1:34-46.
McCurtin, A. (1997). The manual of pediatric feeding practice. Bicester Oxon, United
Kingtdom: Winslow Press Ltd.
McNally, K., Morris, S.E.. (2006). Finding an appropriate treatment program for children
with feeding difficulties: a guide for parents. Retrieved September 9, 2006.
Miscrosot Office Online (2006). Clip Art retrieved November 28, 2006 from
http://office.microsoft.com
Miller, C., Burklow, K., Santoro, K., Kirby, E., Mason, D., & Rudolph, C. (2001). An
interdisciplinary team approach to the management of pediatric feeding and
swallowing disorders. Children's Health Care, 30(3), 201-218.
Miller, C.K., Willging, J.P. (2003). Advances in the evaluation and management of
pediatric dysphagia. Current Opinion on Otolaryngology & Head and Neck
Surgery, 11, 442-446.
Penn State Milton S. Hershey Medical Center (2004). Feeding Disorders, retrieved
November 18, 2006 from
http://www.hmc.psu.edu/childrens/healthinfo/f/feeding.htm
Rommel, N., De Meyer, A., Feenstra, L., Veereman-Wauters, G. (2003). The complexity
of feeding problems in 700 infants and young children presenting to a tertiary care
institution. Journal of Pediatric Gastroenterology and Nutrition, 37, 75-84.
Rudolph, C., & Thompson Link, D. (2002). Feeding Disorders in Infants and Children.
Pediatric Gastroenterology and Nutrition, 49 (1), 112.
85
Schkade, J.K., & Schultz, S. (2003). Occupational Adaptation. In P. Kramer, J. Hinojosa,
& C. Brasic Royeen (Eds.), Perspectives in human occupation: Participation in
life. Philadelphia, PA: J.B. Lippincott.
Schuktz-Krohn. (2006). Feeding and eating for infants and toddlers. OT Practice, 11 (9),
16-20.
Woolston, J. (1991). Eating and growth disorders in infants and children. Developmental
Clinical Psychology and Psychiatry, 24, 1-85.
86