Serious and Life Threatening Illness

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Serious and Disabling Chronic Illnesses: Causes, Management, & Coping

Sohail Aftab
Maria Fida &
Shah Sidra
Chronic Illness
• Diseases that have slow progress, of longer duration and are not
contagious.
Types
• Alzheimer’s Disease, Arthritis, Asthma, Cancer, Cystic Fibrosis,
Diabetes, Eating Disorders, Heart Disease, Obesity, Oral Health,
Sudden Cardiac Arrest in Youth, similar other diseases
Adjusting to Chronic Illness
Shock-an Initial Reaction of a sudden discovery of having chronic
health issue
2. Emotion focused Strategies
• Changing the
perception of the
problem than
trying to solve
the problem
• Denial: It’s a
minor issue and I
can still eat what
I have been
eating in the
past.
The Effects of Emotion-focused Strategies
• The physical symptoms are aggravated
The Need of Making Adjustments
• Adjustments in
• Life style
• Food
• Exercise are required
Crisis Theory
Illness-Related Factors
• The greater the threat of the disease, the harder is coping with its
conditions e.g. deformity, moving with machines, odors of medicine,
muscle spasms and seizures
Background & Personal Factors
• Resilient people cope well with their illness
• They find meanings in the difficult situations
Other Factors
• Age, gender,
social class,
philosophical and
religious
commitments,
emotional
maturity and self-
esteem affect
their coping
mechanism
Physical, Social & Environmental Factors
• The physical environment of hospital
• The social relationships and their behavior
The Coping Process
• To Crisis Theory
• Coping begins with Patient’s cognitive appraisal of the chronic
condition for which they design adaptive tasks and formulate skills to
do these tasks
Task Related to the Illness or Treatment
• Cope with the symptoms of disability
• Adjusting to the hospital environment & medical procedures
• And keeping in good terms with health care staff
General Psychosocial Functioning
• Control negative feelings and maintain positive approach to the future
Healthy Self-image
Healthy Social Relationship
Dealing with an Uncertain Future
Role of Family in the Patient’s Coping
Coping Strategies for the Chronic Health
Problems
Strategy Benefit/Explanation

Denial Saves the patient from getting overwhelmed by the idea


of being ill for a long time

Seeking information The patient knows more about the disease and care

Learning Self-care Giving insulin shots, improves sense of control

Setting Concrete Goals Attending social get to gathers & maintaining regular
routine of exercise, diet, etc.

Getting Instrumental/ Emotional support From friends, practitioners and family

Considering possible Future Events To be prepared for future and related difficulties

Gaining a manageable perspective Finding meanings in the leftover life


A Journey to Adaptation
• Suffering from Chronic illness requires acceptance of the disease and
long term efforts to adapt to the ongoing changes in lifestyle, diet and
social relationships that requires psychological help.
Coping Strategies Psychological Impact, and
Support Preferences of Men With Rheumatoid
Arthritis: A Multicenter Survey (Flurey et al., 2018)
Research Questions:
1. Are factors A (‘Accept & adapt’) and B (‘struggling to match up’)
generalizable across men with RA, and can they be explained by
demographics, disease status, coping strategies, or psychological status?
2. Is there a difference in the support preferences of men in factor A, men in
factor B, and women with RA?
Research Type
• Quantitative/Survey: Used two rating scales:
• A) Numeric Rating Scale (NRS): The survey respondents were asked to
rate their Rheumatoid Arthritis (RA) symptoms on NRS. ‘The first
questionnaire also measured coping strategies, acceptance of illness,
perceived stress, depression and anxiety, and mental well-being’
(2018). The other questionnaire was about what the patients
preferred to have as ‘self-management support’, the way help will be
delivered and what time of the day they would like to receive it
(2018).
Method
No of Responses: 280 Males & 103 Female Patients

Through factor analysis the items loaded on two factors. Factor A:


‘Accept & adapt’, Factor B: ‘struggling to match up’ & third group of
participants were not assigned to any factor.
Results: There were no differences between males of group A and
group B on the basis of demographics.
Results Continued
participants assigned to factor B (“struggling to match up”) were less
likely to be retired, less likely to consider their role to be particularly
physically active or autonomous, and more of them were receiving
biologic therapies
They were more likely to use the coping strategies of confrontation &
avoidance and resignation and less accepted their RA.
They had poorer psychological status, with significantly more cases or
borderline cases of both anxiety and depression than those assigned to
factor A as well as higher levels of perceived stress and lower levels of
mental well-being
Results
‘For support, men favored a question and answer session with a
consultant (54%) or specialist nurse (50%), a website for information
(69%), a talk by researchers (54%), or a symptom management session
(54%). Overall, women reported more interest in support sessions than
men, with ≥50% of women reporting interest in nearly every option
provided.’
Thank you

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