Know the Signs, Fight for Victory

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April 2025

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
03 Apr
5:00 pm
Virtual
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Evening with Heart St. Louis

Join us for a fun and meaningful night at Evening with Heart St. Louis, a cocktail party benefiting The Marfan Foundation on Saturday, April 5, 2025, at 6:30 PM. Hosted by Dr. and Mrs. Alan and Rebecca Braverman, this special evening brings together friends, supporters, and advocates to raise funds and awareness for those living with […]
05 Apr
6:30 pm - 11:00 pm
Missouri Botanical Gardens - Spink Pavilion
4344 Shaw Blvd, St. Louis, MO 63110
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Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
07 Apr
7:30 pm
Zoom
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
08 Apr
6:00 pm - 7:00 pm
Virtual
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LDS Connect

If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about the challenges we all face day-to-day. If you have not yet been diagnosed with LDS, please check out the Seeking Diagnosis group here
10 Apr
7:00 pm - 8:00 pm
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A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
14 Apr
Virtual
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Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
15 Apr
7:00 pm - 9:00 pm
Virtual
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