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I went through issues with oats when first diagnosed. I thought I couldn't eat any oats at all, even certified gluten-free. Then I learned about purity protocol oats. The list here has gotten smaller through the years, so I check it every time I order. I had been ordering one brand on the list that was later found to contain lower levels of gluten. I...3 points
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Lectins are carbohydrate storage proteins. Different plants have different lectins. Gluten is a lectin, but not all lectins are gluten. Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it. During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes. In...3 points -
I’m terrified it’s too late for me😭
knitty kitty and 2 others reacted to NavyMom for a topic
Hi CathiJean, Wipe those tears my friend. Finding out that you have celiac just gave you the cheat code on how to start feeling better! It may feel like a loss right now, but honestly within 6 months you will start feeling better. Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime...3 points -
The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a...3 points
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Key word, "gluten-like". By the way, have you looked up Dr. Osborne's credentials and his background? He is a licensed nutritionist but his scientific? medical? clinical background is that of a chiropractor. He is not taken seriously by many experts in the medical and scientific community. If it is helpful to you to see these other cereal grain...3 points
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@Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found...3 points
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We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.2 points
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Is Chipotle Gluten-Free? A Celiac's Guide to Safe Dining
M Savarese and one other reacted to cam6 for an article
A tip I have learned when placing an order using the app is to use this name on my bowl instead of my actual name: Gluten Allergy2 points -
New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease
RobinGroenevelt and one other reacted to cristiana for an article
I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...2 points -
Celiac disease does not damage the stomach. It damages the lining of the small bowel, the part of the intestines immediately below the stomach. Also called the duodenum. Do you know if biopsies were taken from this area to look for celiac disease?2 points
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Can anyone offer any advice/help please!
Beverage and one other reacted to knitty kitty for a topic
I agree with @cristianacristiana, @Scott Adams, and @trents. You probably weren't eating sufficient gluten for the test to be accurate. Ten grams of gluten for at least two weeks before testing is needed for accurate blood tests. Three gram of gluten is enough to make you feel unwell. Ten grams of gluten is required for the antibodies to leave...2 points -
Can celiac cause widespread pain??
knitty kitty and one other reacted to cristiana for a topic
Hello @Paula Andrews I started to get a whole host of new pains around the time of my diagnosis and afterwards, quite apart from the expected gastric pain. Pelvic pain was caused by bloating from dairy products; pain in my chest due to bloating caused by iron supplements; costochondritis in my ribs, which was a dull diffuse pain not emanating from the...2 points -
From: https://en.wikipedia.org/wiki/Gluten "Gluten is a structural protein naturally found in certain cereal grains. The term gluten usually refers to the elastic network of a wheat grain's proteins, gliadin and glutenin primarily, that forms readily with the addition of water and often kneading in the case of bread dough. The types of grains that contain...2 points
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Can celiac cause widespread pain??
knitty kitty and one other reacted to Beverage for a topic
I didn't have the typical intestinal symptoms before I was diagnosed, but had severe allergies, asthma, and failing kidneys. I often felt that horrible body achey felling like when coming down with a super bad flu. Now if I get glutened, I feel like I've been hit by a truck.2 points -
I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.2 points
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Yes, lectins can be problematic for some people. IGG testing can be used to detect celiac disease but not IGE. IGE antibodies have to do with allergic reactions and ceilaic disease is not an allergy, it is an autoimmune reaction. The IGG tests are not as reliable for detecting celiac disease as are the IGA tests but they can be be very helpful, particularly...2 points
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Thank you for clarifying! Something to possibly consider as I continue on my “non-gluten” quest and if I do not improve, but being new to this whole realm and already overwhelmed and stressed, this would have pushed me over the edge right now. 🥹2 points
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Thanks for the information, knitty kitty. It helps bring some clarity and reduces the confusion that misinformation such as is contained in this thread title introduces into the community. People new to the celiac experience are already struggling to wrap their minds around not being able to eat just wheat, barley and rye any longer. We don't need to unnecessarily...2 points
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Oats gluten free?
Scott Adams and one other reacted to trents for a topic
Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new...2 points -
I’m terrified it’s too late for me😭
knitty kitty and one other reacted to jeema for a topic
@Cathijean90 It's pretty common to suffer from symptoms for a long time. I had symptoms for a decade before I was diagnosed and I think that is about average. The problem is the symptoms are often vague enough to be attributed to other digestive issues and that was the case with me. It was only after I found out I was anemic from routine bloodwork and...2 points -
Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x2 points
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Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of the general population carries one or both of these genes. However, only about 1% of the general population ever develops...2 points
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I was the one that was asking about vaccines. I was also the one with my antibodies over 500's that continues to go up. Just told to take out all gluten-free processes foods out of my diet because they can still contain gluten. ( 20 parts per million) Have been put on folate, vitamin D and B12 . Hope this helps. Thanks for the article on gluten-free food...1 point
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Anyone gone through public school gluten free?
Scott Adams reacted to SoBannaz for a topic
No I was 19 when I was diagnosed. And before then I brought my own lunch (usually a sandwich) which I would throw up an hour later. I wish we figured it out sooner. My folks thought I had an eating disorder and was purposely making myself sick. With the way things are going wouldn’t be surprised if people think a kid with celiac disease is just attention s...1 point -
6 week challenge; How much gluten?
Scott Adams reacted to Pinkdoglady for a topic
Thank you everyone for your answers, they were all very helpful, and some very useful links. I am rethinking the value of having the biopsy as I’m not sure it will give any actual benefits.1 point -
New Here…
Scott Adams reacted to PixieDixie for a topic
Yeah, hard for me to not eat salmon though it does cause varying degrees of irritation to the rash. Alright, guess I’m gonna have to be careful with iodine. Thanks for the article.1 point -
Is Chipotle Gluten-Free? A Celiac's Guide to Safe Dining
Scott Adams reacted to trents for an article
@cam6, the problem I see with that is if multiple people call in an order around the same time using the name, "Gluten Allergy". You might get someone else's order.1 point -
So I’ve been eating gluten free since doing a further blood test and that came back giving a positive result, they said I could go back and have another endoscopy but just didn’t want to go through that again. I’ve been gluten free since October and do feel a lot better so have just accepted that this is the way for me now, even though results are still...1 point
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RobinGroenevelt and Scott Adams, Thank you for your comments but I think your responses don't address my question. I am curious about the extent of diet compliance in the large meta study and whether they did subgroup analysis by diet. This retrospective study found evidence of increased risk of cancer and other co-morbidities in their Celiac cohort...1 point
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gluten-free scanner
Scott Adams reacted to Mollie Hart for a topic
Thank you Scott! This is very helpful1 point -
Anyone gone through public school gluten free?
Scott Adams reacted to trents for a topic
@Bernade, you might find this helpful. Ultimately, it would be up to the parents of the students in question to begin dialog with school officials and get the ball rolling. But perhaps you could could pass this information onto the parents somehow:1 point -
Anyone Here Sensitive To Fillers Such As Cellulose?
cristiana reacted to CelluloseSick for a topic
Cristina, it’s possible you may find other foods that also give you the same reaction. My advice: make a list and stay away from them.1 point -
Anyone Here Sensitive To Fillers Such As Cellulose?
Scott Adams reacted to CelluloseSick for a topic
Thanks Scott. its been a tough journey. i haven’t been able to take any painkillers for pain, because they all contain some form of cellulose. I’m finally working with a compounding pharmacist to get compounded Ibuprofen w/o cellulose filler … I’ll let you know how that works out. when I tell doctors about my problems with cellulose and med...1 point -
Recently diagnosed with Celic disease
captaincrab55 reacted to Scott Adams for a topic
Hi Stephanie, I’m so sorry you’ve been going through such a frightening and overwhelming time. A celiac diagnosis on top of gastroparesis and gastritis is a lot to process, and your feelings are completely valid. It’s wonderful that you have such a strong support system—leaning on them (and your faith) will make this journey easier. The gluten-free transit...1 point -
@ErinV, from you first post: " Her doctor’s office recently changed EMRs so I can’t remember the exact numbers of all her other blood tests, but I know she was positive for both genetic markers." But then you say in your most recent post, "We’ve all tested and neither of us, nor my other daughter have the genetic markers for it." Those two state...1 point
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Hard Rock Cafe Customer Feels Mocked Over Celiac Disease
Kelsey Gratiot reacted to Scott Adams for an article
Even if the customer did have celiac disease, the way that they come across in this video is completely rude, and mean, which will make it harder for any subsequent celiacs who happen to visit this establishment in the future.1 point -
Can anyone offer any advice/help please!
cristiana reacted to Scott Adams for a topic
It's possible celiac disease has been ruled out, but that depends on whether you followed the proper protocol of eating tons of gluten for at least 2 weeks before the endoscopy. If you were eating minimal gluten during that time your results could be false-negative. If they did the endoscopy for celiac disease you should have received results--feel free to...1 point -
On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those...1 point
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Headaches / Migraines and Hypoglycaemia
Beverage reacted to knitty kitty for a topic
You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all. B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins. Don't get vitamins containing Thiamine Mononitrate. This is used because it has a long shelf-life (it won't break down...1 point -
Headaches / Migraines and Hypoglycaemia
knitty kitty reacted to Sarah Grace for a topic
Hello Knitty Kitty, many thanks for your very detailed response. I'm planning to try your recommendation of L-threonate and TTFD, along with the Triptophan. However, my normal supplement supplier does not have TTFD and they suggest using B Complex instead. Is this a satisfactory substitute, in your opinion? Thanks again!1 point -
New diagnosis for 3 year old. Help!
knitty kitty reacted to Jsingh for a topic
Hi, I am mother of a six year old who was organized a year ago when she was fine. to answer your question about removing gluten from your kitchen- it will be a mammoth task but your entire kitchen has to be free of gluten for her to be safe. Now I’ve learnt from this forum and others that different celiac patients show different level sensitivities t...1 point -
Hunger, nervous stomach or Hpylori?
Scott Adams reacted to trents for a topic
Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.1 point -
Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Scott Adams reacted to Oriol for an article
All McDonald's in Spain have safe gluten free options. They they have been certified, offer gluten free buns, and all fries are gluten free. https://mcdonalds.es/productos/sin-gluten1 point -
SkinSafe
Itsabit reacted to Jacki Espo for a topic
I should add that I had a flare up I think was from cross contamination and during that time I ate gluten free chips and immediately had severe itching at the breakout site. I suspected it was the iodine in the salt from the chips that did it. It seems like iodine may impact a flare up but does not impact me if I’m otherwise not experiencing the rash. G...1 point -
Abscesses on legs
Beverage reacted to knitty kitty for a topic
Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas. Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates. Candida is a yeast infection, so the antibacterial wash is not going to help. I had to change my diet to a Paleo diet before it went away...1 point -
Years of testing - no real answers
knitty kitty reacted to Kiwifruit for a topic
Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!1 point -
Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.p...1 point
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How many grams is there in one slice of wheat bread?
knitty kitty reacted to JA917 for a topic
If I'm not mistaken, you need to count by the grams of GLUTEN, not the gram weight of the bread. So, instead of counting each slice of bread as 35 grams, it would be counted as 2 grams, so that's why the recommendation is 5 slices a day = 10 grams. One of the moderators can correct me if I'm wrong on that!1 point -
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Aretaeus Cappadocia reacted to Scott Adams for an article
Celiac.com 11/10/2022 - If you're new to this whole celiac disease and gluten-free eating thing, then this is your welcome-to-the-club pack of sorts from Celiac.com. While eating gluten-free can improve your health, I must emphasize...1 point -
Book, chapter and verse please. Your quote comes from Hippocrates, The Greek physician who is considered to be the father of medicine.1 point
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"Similar proteins to the gliadin found in wheat exist as secalin in rye, hordein in barley, and avenins in oats, and are collectively referred to as 'gluten'. The gluten found in all of these grains has been identified as the component capable of triggering the immune-mediated disorder, celiac disease." https://pubmed.ncbi.nlm.nih.gov/28244676/ "However, it is necessary to consider that oats include many varieties, containing various amino acid sequences and showing different immunoreactivities associated with toxic prolamins. As a result, several studies have shown that the immunogenicity of oats varies depending on the cultivar consumed." https://pubmed.ncbi.nlm.nih.gov/26557006/
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I have read research indicating differing reactions to various oat cultivars, however, nothing suggesting that some contain gluten - do you have a source for that?
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By thejayland10 · Posted
For those of you who have had celiac for a long time what do your IGA and TTG IGA Levels usually show on follow up blood work ? -
By thejayland10 · Posted
Hello Everyone, I used to be a lot less strict with my gluten-free diet. I have always eaten gluten-free but never only got gluten-free-certified or labeled products but the last few years I have been taking it a lot more seriously and only eat at dedicated gluten-free restraunts or things labeled gluten-free. A recent blood test of mine showed slightly elevated IGA and TTG IGA but negative Endomysial Antibody which my doctor said is likely pointing to cross contact. I have no clue how this could be happening and I am trying to be super super careful now. For example I used to always get Kroger frozen chicken which says gluten free on the package but when I reach out to kroger they have no idea and they said in the processing plant the clean the area after each batch but its not dedicated gluten-free facility. Could processed gluten-free foods or even meats I am getting be making my levels appear slightly over the normal causing damage? I am meeting with a dietician soon but curious on anyone insights or brand recommendations for meats especially -
By Scott Adams · Posted
Try DevaCurl Frizz-Free Volumizing Foam for curls, Living Proof Full Thickening Mousse for long-lasting body, or Aveda Phomollient for a soft, natural lift. Budget-friendly options like Giovanni Natural Mousse or Herbal Essences Bio:Renew also work well. Avoid heavy ingredients and check for hydrolyzed wheat protein if highly sensitive. Always verify labels for gluten-free safety.
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