Sub49 Sarrah
Sub49 Sarrah
Sub49 Sarrah
Submission 49
February 2014
INTRODUCTION
Services for Australian Rural and Remote Allied Health (SARRAH) welcomes the opportunity
to provide a submission to the Senate Inquiry into the prevalence of different types of
speech, language and communication disorders and speech pathology services in Australia.
SARRAH is nationally recognised as a peak body representing rural and remote allied health
professionals (AHPs) working in the public and private sector.
The primary object for which the SARRAH is established is to advocate for, develop and
provide services to enable AHPs who live and work in rural and remote areas of Australia to
confidently and competently carry out their professional duties in providing a variety of health
services to rural and remote Australians.
SARRAHs representation comes from a range of allied health professions including but not
limited to: Audiology, Dietetics, Exercise Physiology, Occupational Therapy, Optometry, Oral
Health, Pharmacy, Physiotherapy, Podiatry, Psychology, Social Work and Speech
Pathology.
These AHPs provide a range of clinical and health education services to individuals who live
in rural and remote Australian communities. AHPs are critical for the management of their
clients health needs, particularly in relation to chronic disease and complex care needs.
SARRAH maintains that every Australian should have access to equitable health services
wherever they live and that allied health professional services are basic and fundamental to
Australians health care and wellbeing.
Speech pathology is an important allied health profession represented within SARRAH and
has also been recognised by the Australian Government as a core service required in
providing early intervention for children with disability to enable these children to reach their
maximum potential. This has occurred through the funding of the Helping Children with
Autism (HCWA) and Better Start for Children with Disability (Better Start) programs. Speech
pathologists (SPs) are also a key part of the allied health workforce delivering services
through the National Disability Insurance Scheme (NDIS).
Rural and remote Australia is defined using the Australian Standard Geographic
Classification system for Remoteness (ASGC) and comprises categories RA2 (Inner
Regional), RA3 (Outer Regional), RA4 (Remote) and RA5 (Very Remote), with a particular
emphasis on the RA3-5.
SARRAH recognises rural and remote as a continuum of communities outside major
metropolitan centres of Australia and is committed to ensuring that people living in these
areas have equitable and high quality access to speech pathology and other allied health
services.
- Children born with a syndrome for example. Fragile X, Downs Syndrome, Fetal
Alcohol Syndrome etc
- People with a developmental disability such as Autism Spectrum Disorder
- People who have had a stroke (potentially impairing their communication and
swallowing)
- People with degenerative diseases such as Parkinsons, Motor Neurone Disease etc
- People with an acquired brain injury
- People with a cancer that affects their swallow, speech and voice.
SPs in rural and remote Australia often work in a generalist role, whereby their client
caseload consists of children of any age, all adult age groups, as well as elderly clients.
Whilst in major cities SPs tend to have an area or age of practice/speciality (for example,
acute adult care, paediatric disability), rural and remote SPs often work across the breadth of
speech pathology practice that includes speech and language, voice, fluency (stuttering),
disability and swallowing.
Many rural and remote SPs also work in sole positions, where they are the only SP working
in a town, region, or particular service organisation. It is therefore not an unusual day for
these SPs to review acute hospital in-patient clients, see children for speech and language
therapy in the community, participate in a case conference for a child with a complex
disability and then visit the nursing home to assess a new resident.
This rural generalist role in and of itself is becoming increasingly recognised, with a number
of national projects such as those being led by the Greater Northern Australia Regional
Training Network (GNARTN) and Health Workforce Australia (HWA). These projects are
seeking to formally define the competencies, training and governance frameworks required
to strengthen workforce adaptation to meet the unique needs and challenges of rural and
remote practice.
This recognition and support is vital to ensure that rural and remote SPs are acknowledged
for their contextual expertise as generalist primary health care practitioners in rural Australia
and so that they are attracted to stay for significant periods in rural practice. Rural
generalists then need access to specialist SPs and services based in metropolitan centres
that can support the generalist in their work with clients with complex conditions such as cleft
lip and palate, enteral/nasogastric feeding or particular syndromes or diseases that affect
communication and/or swallowing.
Having a networked, well-resourced and mobilised rural/remote speech pathology workforce
to support these people with specific needs within their own home/community provides great
benefits. By providing treatment and care locally, clients are not forced to relocate to regional
centres or cities to attend special schools or live in nursing homes or hospitals as long term
patients. This obviously creates an additional burden and cost on an already overwhelmed
system, as well as on the family. The client can instead stay with their family and friends
within their own community and access the speech pathology and other support services
that they require to maintain or improve their health, learning and wellbeing.
Case Study 1
A family living on a remote cattle station were seeking services for their 4 year old son who
had significant speech difficulties and participated in School of the Air. He did not fit the
prioritisation criteria for the closest disability service and did not live in the catchment area of
a non-government outreach service. The family subsequently decided to access the services
of the private SP in the closest town and would make a round trip of 1200km once per
school term. They would book accommodation and bring their child to speech therapy
appointments 4 days in a row before driving back home and continuing with the therapy plan
provided by the SP. Given the remote location, the estimated cost of this trip would be over
$2000, with the speech therapy appointments being the cheapest part of the visit. At that
time the family were not eligible for video link up facilities via their school, consequently no
sessions could be conducted using telehealth. Phone and email support were provided and
whilst the child made vast improvements, the family moved to a station in another state that
was closer to public services.
1
See http://speechpathologyaustralia.org.au/library/2013Factsheets/Factsheet_Communication_Difficulties_Following_
Stroke.pdf for further information regarding SP involvement with stroke patients
- Injury rates are higher in rural and remote areas for adults and children and specific
injuries such as traumatic brain injury will generally require the longer term involvement
of an SP.
- 70% of Aboriginal and Torres Strait Islander people live in regional, remote and very
remote areas and SPs are one of many professions involved in Indigenous health care.
For example middle ear disease has high prevalence amongst Aboriginal and Torres
Strait Islander children (up to 91%), which often leads to hearing difficulties and
subsequent consequences such as speech and language delay, literacy difficulties and
various social and emotional problems.
- Children living in rural and remote communities have less access to peer-based early
learning opportunities such as playgroups and preschool, which can reduce social
interaction and lead to delayed identification of communication or other developmental
difficulties when early intervention is critical for optimal outcomes.
- Males living in outer regional, remote and very remote areas have a much higher
incidence of head and neck cancers than those in inner regional and major cities (AIHW,
2008), which generally require the intervention and ongoing management of a SP for
example laryngectomy care.
- There is a higher incidence of smoking during pregnancy in all areas outside of major
cities, which can increase health risks for children and result in lowered cognitive
development which impacts upon communication skills (AIHW, 2012).
- Males living in outer regional and remote areas have significantly higher rates of
psychological distress than their inner regional and major city counterparts (AIHW,
2008). SPs can play a role in supporting clients with mental health problems 2.
- Males of all ages in rural and remote areas experience significantly higher rates of
disability affecting daily function as compared to major city counterparts, with
speech/sensory and acquired brain injury disabilities being the highest (AIHW, 2008).
- All regional areas have more people aged 65 and over than major cities (AIHW, 2008).
SPs are increasingly involved in the care of ageing and elderly people 3.
- For families settled in rural areas under Humanitarian Programs, children who have
experienced trauma will most likely demonstrate developmental and behavioural
difficulties, including communication. They will also face the challenge of an English
speaking environment.
In Gethings (1997) exploration into the experience of double disability of people living in
rural and remote Australia, he found the major themes related to:
- limited transport options to access distant services,
2
See http://speechpathologyaustralia.org.au/library/2013Factsheets/Factsheet_Speech_Pathology_in_
Mental_Health_Services.pdf for information regarding SP involvement in mental health
3
See http://speechpathologyaustralia.org.au/library/2013Factsheets/Factsheet_Speech_Pathologists_
Working_With_Older_People.pdf regarding SPs working with older people
Recommendation 3: Despite less population density in rural and remote areas, the
increased rates of morbidity and disability in the bush and the large geographical areas
serviced require increased funding, special consideration and innovation in the resourcing of
speech pathology services.
Recommendation 4: SPs, and other health professions, require specific undergraduate and
post graduate training and ongoing supervision in their work with people from culturally and
linguistically diverse backgrounds, in particular Aboriginal and Torres Strait Islander peoples,
to ensure culturally appropriate, accessible and equitable service provision.
As seen above, the majority of SPs in Australia are female. A study by Keane, Smith, Lincoln
and Fisher (2011) exploring the characteristics of AHPs in rural New South Wales (NSW)
found that of the speech pathology respondents 65% were married, 32% had dependents
and were an average age of 33 years. It is anticipated that this would in turn translate into
more part time/flexible hour workforce than other health professions.
From the fieldA SARRAH member commenced one of two public positions that had been
vacant within a remote town for over one year. Upon meeting with the local GPs to clarify
referral pathways, she was advised that due to the ongoing SP vacancies the GPs no longer
bothered referring patients to speech pathology and that they would possibly make referrals
to her if they remembered they rarely did.
Recommendation 5: Work towards an equally valued regulation system for all health
professions in Australia, to ensure inclusion of self-regulated and non-regulated professions
in policy, program and funding arrangements.
Recommendation 7: Flexible employment models for example job sharing and/or part time
employment opportunities for the predominantly female SP workforce are adopted to
encourage people to join and return to the profession.
Service Coverage
Anecdotal evidence from around the country indicates high client numbers for many rural
and remote SPs, with some SPs reporting caseloads of over 400 clients across vast
geographical distances. This often translates into lengthy waiting times and complex
prioritisation criteria, which often means that children with non-complex speech and
language difficulties can wait several years to be seen or worse yet are never seen. For
example:
- In the Torres Strait, the sole SP provides birth to death service across all of the 17
islands, which is accessible by air, as well as the five communities of the Northern
Peninsula Area on the mainland.
- SPs working in the Northern Territory, geographical distances such as those
confronted in the Katherine Region, sees one or two SPs servicing an area of
336,674km; a small number of SPs providing services in the Central
Australian region, which spans 546,046km; and one or two SPs based in
Darwin providing outreach at least 500km away to the Arnhem Land region, which is
97,000 km.
- Some services are so overwhelmed that they are instructed not to accept any more
referrals, unless it can be actioned within 12 months and clinicians are often
encouraged to try to discharge clients readily, which may mean that clients do not
receive a sufficient service.
- It is common in many rural and remote areas that if SP positions remain vacant for too
long, the funding is often absorbed by the health service and used for other purposes
and the SP position disappears.
- In Palm Island, an Aboriginal community of over 3000 people in Queensland, the SP
servicing the 0-4 years population, which represents a massive 11% of the total
population, visits 4 days per year from Townsville.
Service Delivery
Due to the need to be innovative in the provision of services, rural and remote SPs and their
allied health colleagues utilise a number of service delivery methods including:
- Home-based or service-based speech pathology service
- Consultancy model of service delivery
- Issue based therapy focused model
- Traditional clinic-based model
- Telehealth utilising Skype, iPads etc
- Provision of home programs
- Family directed intervention approach for example the family are provided with initial
assessment and therapy block then contact the service if/when they want another
therapy block
- Response to Intervention (RTI) model in schools4
- Interprofessional practice models
4
See http://cdq.sagepub.com.ezproxy.une.edu.au/content/34/1/3.full.pdf+html for an explanation of the RTI
model
- Outreach models.
A common method of service delivery in rural and remote areas is the hub and spoke
model, whereby health teams are based in a hub and provide outreach services along
spokes to clients living in more remote locations (Dew et al, 2012). With a stable,
consistent and skilled workforce this model can be an effective means of providing a regular
service to people living in remote locations.
All of the above models can be of benefit to clients; however an ongoing concern raised
within the speech pathology community is the increasing move towards consultative models
and a move away from therapeutic approaches. This change has essentially arisen through
budget and resourcing constraints, with the theory being if the SP assesses, diagnoses and
provides a therapy program for the child, then they will be more efficient and see more
children on the waiting list. SARRAH views this as short-sighted and also as a threat to the
effective application of the speciality skills of SPs. SPs train at university for 4 years in order
to be able to provide high quality therapy to clients as well as assessment and diagnosis
services. Yet the consultative model significantly diminishes this role and can often be
inefficient because the client receives therapy from an untrained facilitator, makes little
improvement and requires ongoing consultation.
During 2009, SARRAH developed a paper titled Models of Primary Healthcare Service
Delivery which is available on the SARRAH website and also by clicking here.
Recommendation 10: Provide rural and remote health and education organisations with
support, information and funding to staff and implement innovative and effective service
delivery models that embed minimum levels of service provision.
Recommendation 11: Funding, training and career pathway support to facilitate the growth
and expansion of the Allied Health Assistant and Support Workforce, as well as guidelines and
training for speech pathologists to effectively engage and collaborate with this important
workforce.
Telehealth
Many rural and remote clinicians with access to functioning telehealth are advocates of the
benefits it can provide. For example, telehealth can enable clients to stay in their rural
community with their local AHP, whilst linking up with a metro-based specialists for
necessary consultations. However difficulties arise when telehealth facilities either do not
exist or do not have the supporting infrastructure to make it a viable tool. Examples from the
rural regional area of Griffith in NSW as to the barriers of using telehealth consistently
include:
- Poor internet connection because many of the towns serviced do not have access to
reliable broadband services and will not have access to the National Broadband
Network for many years.
- Lack of infrastructure as clients cannot afford a computer or iPad etc that will enable
them to engage with telehealth services. Although the client would have access to
public facilities such as the local library or community hub, there is no privacy in those
facilities for the client.
- Lack of educational opportunities for clients wanting to use telehealth services. A lot of
clients would need to be trained to use tools such as Skype.
- A lack of local SP or AHP on the ground with the client to ensure that the telehealth
session is effective and optimal for all concerned.
- Telehealth consultations may require expensive equipment which is not accessible by
many practitioners in private practice and while there is support for medical
professionals to access this technology it does not extend to AHPs. Telehealth
consultations for private practitioners also do not attract either a private or Medicare
rebate which either increases costs to the client or restricts their access further.
During 2012, papers developed by SARRAH included Rural and Remote Access to
Medicare and Related Allied Health Services which is available by clicking here and
Telehealth and Allied Health which is available by clicking here. Both papers are on the
SARRAH website.
Recommendation 12: Greater access for SPs and their clients to e-Health systems including
Personally Controlled Electronic Health Record and Telehealth as well as funding for
equipment, infrastructure, technical support and training.
facility. After a period of acute rehabilitation they are then transferred back to their
community with the assumption that rehabilitation will be continued and necessary home
modifications will be made. There are a number of challenges inherent in this process:
- The metropolitan health professionals do not know what services or health
professionals are available in the clients community and may not attempt to find out.
- The metro-based health professionals do not understand the particular environment
that the client is moving back to for example, a client may be prescribed a wheelchair
in hospital that does not account for the uneven or unsealed roads of their town or
community.
- The local health centre may not be able to provide the allied health team with sufficient
notice of the clients return meaning that necessary home modifications, services for
example meals on wheels and programs such as rehabilitation group have not been
arranged when the client returns.
- The metro-based service may assume that rehabilitation services are available in the
clients community, where actually the client may be admitted to the general ward of
the local hospital or immediately discharged home with no recourse to local allied
health services.
As previously mentioned, embedded mechanisms for communication and collaboration
between metro and rural SPs is necessary for optimal patient/client care, as well as the
professional skill development of both parties.
Recommendation 13: Systems are required to ensure metropolitan based health services
have a clear understanding of the environment, program and service availability in any
clients home community and to guarantee that effective liaison has been undertaken with
the relevant community based health professionals, including AHPs prior to patient
discharge.
families who have funding with no options to spend their money locally. The
Department of Social Services has provided some funding to SARRAH to administer
the National Rural and Remote Support Service, designed to facilitate SPs and other
AHPs to register and provide services to children with disability under the above
programs.
- Low remuneration in Medicare Primary Care items that include Allied Health
consultations: the rebate is considerably lower than the consultation cost and whilst
GPs are paid to write the care plan, SPs are not adequately reimbursed to deliver the
therapy or complete the reporting requirements beyond their regular fee.
- Professional isolation: unless SPs join a private practice with other professionals
working in similar fields, there is a risk of professional isolation.
- Instability: in private practice, SPs cannot be guaranteed a set income. This lack of
certainty can be a disincentive for those seeking a stable and predictable income.
Previously, federal grants have been available in rural and remote areas to encourage
practitioners to establish a private practice. In a workforce that is lacking in public service
positions and favours flexible working hours, financial incentives such as these grants could
encourage SPs not currently active in the workforce to set up small scale practices and
provide much needed services.
Case Study 2
A SARRAH member was able to establish herself as a sole trader and commence a private
speech pathology practice in a remote Northern Territory town. Office space was provided
by the local hospital in exchange for the SP supplying services to the hospital. Over time the
SP established herself with a steady clientele, often children who did not meet the criteria of
the local disability service still required speech therapy. The SP also established a
partnership with the local Aboriginal Medical Service (AMS) and commenced seeing a
number of Aboriginal children and their families. Over a two and half year period the SP
serviced the hospital, nursing home, schools, AMS as well as subcontracting work for the
local disability service, child protection, a non-government organisation and a federally
funded aged care project. She also began seeing clients in conjunction with a private
occupational therapist. Delivering therapy for Medicares Enhanced Primary Care Plans was
an option but she did not have the time or resources to be able to apply for the Helping
Children with Autism package. At the peak of this successful practice, the office space
provided by the hospital was no longer available and with commercial office spaces costing
over $1500 per week, the business could not be viable. The SP left town and approximately
40 regular clients were left without a local service.
Recommendation 14: Develop minimum data sets and conduct longitudinal eCohort studies
as occurs with nursing, medicine and other AHPRA registered professions, to comprehensively
detail and document the private speech pathology workforce.
Recommendation 16: SPs are provided with mentoring and support in registering and
participating in the Better Start and Helping Children with Autism program through continued
and increased funding of the National Rural and Remote Support Service administered by
SARRAH.
Case Study 3
An experienced SP doing a 2 week locum in a remote town (where there had been a
longstanding vacancy) came across the large file of a child with a complex motor speech
disorder known as dyspraxia. Dyspraxia is a condition that requires intensive and often long
term therapy. Due to a combination of chronic SP retention problems and the enormous
caseload and waiting list of the health service, the child had been assessed and re-assessed
no less than 8 times by different SPs and had received a total of two weeks of therapy.
When the locum SP arranged an urgent appointment with the child and his parents she
found a 9 year old boy who was very difficult to understand, was regularly getting into trouble
at school and was exceptionally reluctant to participate in therapy, which he perceived as
something at which he was bound to fail. The SP provided a short burst of intensive therapy
and passed the child onto whoever the next SP would be. The longer term outcomes for this
child could quite readily be projected as low academic performance, disengagement from
the education system, possible contact with the justice system and ongoing employment
difficulties due to an unremediated complex communication disorder.
Recommendation 17: Rural and remote allied health services are required by funding
bodies to develop and implement comprehensive recruitment and retention strategies for
SPs (and all AHPs) that reflect the recommendations detailed in the above referenced
SARRAH recruitment and retention paper.
Recommendation 18: Local organisations and Speech Pathology Australia must commit to
the provision of regular, adequate and equitable professional development funding and
opportunities, with possible subsidisation through government funding initiatives. Uncapped
tax deductibility for professional development must remain for equitable access by rural and
remote SPs.
Recommendation 19: Increase the number of scholarships available under the allied health
component of the Nursing and Allied Health Scholarship Support Scheme in particular the
undergraduateentry level and post graduate scholarships administered by SARRAH on
behalf of the government which continue to be oversubscribed.
Recommendation 20: SPs are provided with mentoring and supervision arrangements
similar to the program proposed by SARRAHs National Rural and Remote Mentoring
Scheme and integrated into relevant speech pathology networks to spend professional time
with other SPs under professional work shadowing arrangements.
Recommendation 22: Facilitate equity of education and training, recruitment and retention
of SPs and the broader AHP workforce through to establishing universal coverage of
University Departments of Rural Health network supporting rural and remote allied health
clinical education.
Recommendation 23: Rural and remote organisations are linked in with relevant university
and research departments to encourage and support the publication of relevant initiatives
and projects that contribute to improved outcomes for rural and remote Australians.
CONCLUSION
The ability to communicate, eat and drink are core activities of independent living and basic
rights that all Australians deserve. SPs are critical in supporting those who have difficulties in
these areas and with early identification and intervention can prevent more chronic or longer
lasting conditions. This in turn leads to healthier, better educated and more productive
community members who can make an active contribution to society.
There are unique considerations for people and SPs living and working in rural and remote
Australia. Whilst AHPs working in these areas often possess a breadth of skills and
knowledge, are innovative and resourceful, there is a high rate of staff turnover. Health and
education services are not addressing the core needs required for job satisfaction such as
professional support and mentoring, access to professional development opportunities,
formal acknowledgement of specialist generalist skills and mechanisms for career
advancement.
SARRAH strongly supports this inquiry into speech pathology services and will continue to
develop and support initiatives that adequately address the needs of rural and remote AHPs
and communities in partnership with government and other stakeholders. Consequently,
SARRAH would welcome the opportunity to elaborate on this submission.
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