Bulletin 175 10th December 2018
Bulletin 175 10th December 2018
Bulletin 175 10th December 2018
Inclusion North will close for Christmas at 4pm on the 21st December
Closed
and open on the 2nd January 2019.
On behalf of the Inclusion North Team we would like to wish you all a
very Merry Christmas and a Happy New Year. The next bulletin will be
the week starting 14th January.
Here at Inclusion North our steering group have worked really hard on
looking at a new logo, branding and website.
On the 2nd January 2019 – we will start using our new logo and brand
which we are really excited about.
We are hoping to launch our new website at Members Day on the 29th
January. Melissa and Judith have been along to Split the website
designers to look at the final version and are now working on putting in
the information.
The next stage will be testing the website with the steering group and
some local self advocacy organisations in early January.
Update on Bereavement
In our last issue of the bulletin we talked about the National Child
Bereavement Conference where we were asked
'In Leeds there is nothing for children with a learning disability who are
bereaved – do you know of anything?'.
The forum has all of the information in one place for people in Leeds.
There are not specific service’s for children with a learning disability.
Leeds Clinical Commissioning Group think that services should make
sure that if they are working with children with a learning disability that
they make sure that the offer is changed to suit their needs.
Inclusion North are now making contact with the Leeds Bereavement
Forum and we will update you when we have some more information.
Your Invitation:
Working well so that people with a learning disability don’t
die too young
- Do you live in Yorkshire or Humber?
- Do you want to get together with others to share best practice and
find ways to improve the lives of people with a learning disability
locally?
- Do you want to understand more about the work that is being done
to prevent people with a learning disability dying at a young age?
The sessions will bring together some of the findings from the Learning
Disabilities Mortality Review and provide a way for yourselves and
others to share your best practice ideas and challenges.
The Talent Hub is a project run by TIN Arts together with Yorkshire
Dance and Inclusion North, and other partners.
The aim has been to find 10 talented dance artists with a learning
disability, autism or both living in the North East or Yorkshire.
Auditions were held in the summer after the Join George campaign was
launched – you can watch the video here https://vimeo.com/255866453
Inclusion North will also work with each dance artist on anything in their
life they want to develop to help them to become a professional dance
artist.
In January the dance artists will meet and work with choreographer
Theo Clinkard. They will work intensively with him throughout the year
until the premiere of the work they create.
The Institute of Health Equity have written a report about health for
people with a learning disability.
This is connected to the LeDeR programme, which has found out that
people with a learning disability are at risk of dying much earlier than
other people.
The report looks at why people with a learning disability have such
unequal experience of good health care.
• Low income
• Not having a job
• Poor housing
• Being lonely
• Bullying and abuse
40% of people with a learning disability aren’t diagnosed when they are
a child. This means lots of chances to support people to have a good life
are missed.
Children with a learning disability are more likely to have a mental health
condition including depression.
There are only 2.9% of the population who have a learning disability but
25% of young people in custody have a learning disability.
The campaign will have a strong focus on people that have received
mental health support.
They are looking to recruit 3-5 people to take part in video case
studies - they are keen to show stories from a diverse range of people –
including people working in health and social care settings.
Next Steps
The campaign aims to enable the voices of people who use services,
their families and carers to improve understanding of the quality of care
so people can make more informed choices.
Spotting the early signs can be difficult, but if it is caught early it can be
treated and there is more chance of a complete cure.
You may just have a cough, or find you are getting out of breath. If it is
not normal for you then you need to tell your doctor. It might not be
serious but it’s best to get it checked out.
This Easy Read leaflet has information about spotting the signs of lung
cancer.
The NHSE winter newsletter focuses on the importance of flu jabs for
people with a learning disability.
People with a learning disability can get a flu injection for free.
It is about people being the experts on their own lives, and what good
support looks like.
With Jointly you can set up a ‘circle of care’ for the person you look
after. Once you have set up your Jointly circle, you can use it to
organise care.
You can use it on your own or you can invite other people to join you
and share the care.
You can also keep all your notes together and create a ‘health log’ or
store bills.
It can help you to keep organised by using lists of things to do. You can
also ask other people in your circle to do things and check if they have
been done.
You can keep useful information about the person you are looking after
so you can get to it easily. For example, you can keep a note of current
and past medication of the person you are caring for. You can also add
a photo of a medicine, so you know what it looks like.
Jointly can also keep the contact details for useful people so that you
can see their details anytime, anywhere.
They check to see what people think is good or bad about their services.
They have rules they follow to make sure that all ambulance services
across the country check for the same things.
The form to give your views is not easy read but there are only a few
questions.
Email [email protected]
They also have a Critical Friends Network to make sure that people who
use the ambulance service are included and their voice is heard.
Email: [email protected]
Family Carers Guide
Inclusion North has a Family Carers update for November 2018.
There is lots of information about Carers Rights and where to get help,
information and support.
• Changes in Policy
• Training opportunities
• Blogs
• Resources
And lots more…….
This information is not in easy read as it is written for our local authority
and clinical commissioning group members.
Meet the team
We’ve had a few changes at Inclusion North recently.
This is a reminder of who we are, and who you can talk to about what.
Kellie Woodley
Maternity leave
Inclusion North Member Areas 2018 – 19
North East
Darlington
Durham
Gateshead
Hartlepool
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland