BRC PWD Report
BRC PWD Report
BRC PWD Report
org
Empowered lives.
Resilient nations.
Empowered lives.
Resilient nations.
Acknowledgements
This is a part of UNDP Regional Centre for Europe and the CIS’s initiative on‘Special Ability’.
Copyright © 2013
By the United Nations Development Programme
All rights reserved. No part of this publication may be reproduced, stored in a retrieval
system or transmitted, in all forms by any means, mechanical, photocopying, recording
or otherwise without prior permission.
The views expressed in this publication are those of the authors and do not necessarily
represent those of the United Nations, including UNDP, or their Member States.
SEEING THE ABILITY,
NOT DISABILITY
In fact, the UN Convention on the Rights of the Persons with Disabilities (CRPD)
provides a unique normative framework and an effective legal tool for States to end this
discrimination and violation of the rights of persons with disabilities – if it is implemented
effectively and supported by policies and programmes to promote the active inclusion of
this population. Easier said than done.
These are critical for achieving inclusive growth, internationally agreed development
goals (i.e., Millennium Development Goals, Post-2015 Development, Social Development
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
Goals, etc.) and, most importantly, ensuring human dignity, human rights, social protection
and justice. In order to address such needs, existing knowledge, and capacity gaps, UNDP
recently published this comprehensive Guide for both programming and advocacy. This
Guide reflects the current research, international and regional experiences, good practices
and lessons learned in ratifying the UNCRPD and its implementation. The Guide exemplifies
well-coordinated sectoral policies and national programmes aligned with the CRPD.
It would be worthwhile for all stakeholders to engage into informed national dialogues
on specific steps that should be undertaken to ratify and/or implement the CRPD. This
Guide would be of direct relevance to support such process. The time has come to ask
ourselves as members of the UN family: are we doing enough?
Persons with disabilities (PWDs) are clearly model and charity ideology shaped the
among the most marginalized and excluded ECIS countries’ legislation, policies and
groups in Europe and the Commonwealth programmes.
of Independent States (ECIS) countries. In the • Limited accessibility: in the ECIS the over-
ECIS by all definitions of poverty, PWDs are whelming majority of buildings, including
over-represented among the poor and face government institutions is not accessible
multiple barriers in exercising their human to PWDs, which restricts their opportunities
rights. Social exclusion, low educational at- to exercise their rights in many areas.
tainment, unemployment, low self-esteem • Multiple barriers in access to employment:
and limited opportunities to participate in education, housing, health, political par-
political and social life are frequent parts of ticipation, access to justice, cultural ex-
their daily experience. The human rights of pression, entertainment, and leisure ac-
PWDs are now formally recognized in consti- tivities still exist.
tutions and specific legislation, but the tran- • Attitudinal barriers: there is a genuine
sition period contributed to the increase in and widespread lack of understanding
the numbers of PWDs and created barriers in the ECIS that most PWDs can in fact
to the realization of their human rights in all function effectively at work, school,
ECIS countries. The extent and nature of ex- and with society, if given adequate
clusion of PWDs differ from one sub-region support. 7
to another, as well as within countries.
This guide reflects the current research
In the ECIS, PWDs face multiple obstacles and international experiences in ratifying the
to fulfilling their human rights: United Nations Convention on the Rights of
Persons with Disabilities (CRPD) and its im-
• Legacies of the socialist system with its plementation. The convention, as one of in-
medical model of disability that believed ternational human rights laws, pursues the
that limitations arising from disability can goal of safeguarding the integrity and dignity
potentially be prevented or managed by of PWDs by establishing legal obligations
medical treatment of PWDs. The medical on states to protect the rights of all PWDs
Benefits of ratification
of CRPD
Capacities of PWDs and their organizations States are required to report on their
improve. They become more extensively compliance with CRPD and progress
involved in decision-making made
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
under their jurisdiction. The societies in coun- costs of new policy initiatives in the area
tries that ratify the convention have to identify of disability should be strengthened to
the societal barriers that prevent PWDs from prepare them for CRPD ratification;
full and effective participation and inclusion • strengthen PWDs’ role and involvement
in all aspects of community life, including in decision making. To make sure that
employment, education, housing, health, po- the voices of the PWDs are heard and
litical participation, access to justice, cultural that politicians realize that the electorate
expression, entertainment, and leisure activities is supportive of CRPD ratification, it is
and implement a series of measures to grad- necessary to empower PWDs and
ually reduce and eventually eliminate these strengthen their capabilities to demand
barriers. and use their rights through democratic
political processes;
There is a range of measures that can be • address attitudinal barriers to disability
adopted to support ratification of the CRPD: and ensure wide public support for rati-
fication of CRPD. Public attitudes may
• use the Universal Periodic Review (UPR) themselves be critical to either advancing
to emphasize the importance of ratification or hindering the inclusion of PWDs. To
of CRPD to advancement of the human obtain better data on public perceptions
rights of PWDs. As ratification of CRPD is of disability and to raise public awareness,
recommended to many countries in the it is beneficial to conduct nationwide
8 region and many governments have
agreed to ratify it, it is essential to provide
public opinion surveys focusing on dis-
ability issues, and implement awareness-
extensive support to national partners raising interventions based on the data
in implementation of this recommenda- obtained from such surveys that will be
tion. Support should be provided to both customized to different audiences such
National Human Rights Institutions (NHRI), as parents, employers, public servants,
governments and NGOs in developing the general public and PWDs.
plans of action and building their capacity
to ratify the CRPD as a part of the UPR; Following ratification of CRPD, govern-
• revise the existing legislation to align it ments as “duty-bearers” have to ensure im-
with CRPD requirements. The analysis of plementation of the commitments under-
the legislation will demonstrate the degree taken and mainstream human rights of PWDs
of protection or promotion of rights of into their sectoral policies. Specific interven-
PWDs and the extent of laws’ alignment tions that can be implemented include:
with key provisions of the convention.
Once the laws are reviewed and analyzed, • using the UPR, treaty bodies and special
they should be revised and aligned with procedures of the UN recommendations
the CRPD’s human rights model, ap- to advance the disability agenda. The rec-
proaches and language; ommendations developed by the UN bod-
• develop an action plan, including specific ies in the area of disability should inform
steps that have to be undertaken to ratify development and implementation of ad-
the convention. The governments moving vocacy, policy and programme interven-
towards ratification of CRPD should be tions at the national level. They can also
well aware of legislative, policy and budg- be used as a common platform to coordi-
etary implications of ratifying CRPD and nate efforts of all development partners
should have sufficient capacity to imple- in promoting the disability agenda.
ment it. Such areas as conducting research, • aligning legislation and policies with
developing policy options, conducting CRPD requirements and supporting ef-
policy assessments as well as estimating fective operationalization of the existing
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
Capacity-building
of public service Improved
in disability and CRPD accessibility
disability legislation in policies and pro- real impact of these measures should be
grammes; monitored at the household and individual
• strengthening the capacity of the public level. Clear and objective statistical data
service. The roles and responsibilities of on PWDs is necessary to lay the basis for
partner ministries should be clearly out- sound disability-related policies and pro-
lined; interministerial coordination in the grammes to meet the CRPD requirements.
area of disability should be improved; Consistent definitions of disability aligned
safeguards should be introduced to ensure with good international practices should 9
that decentralization promotes the human be adopted, processes for data collection
rights of PWDs; innovative approaches established and databases created to
to promote the human rights of PWDs meet the CRPD requirements and prioritize
have to be piloted before embarking on disability-related concerns in resource al-
nationwide implementation; and training location and policy/programme devel-
of public servants on how to design and opment. It is important to note that def-
implement human rights-based disability initions are key to gathering adequate
policies and programmes should be con- data;
ducted; • promoting individualized and compre-
• supporting interventions promoting ac- hensive approaches. PWDs have diverse
cessibility. Accessibility is not only about strengths and needs and are not a ho-
physical accessibility of buildings – PWDs mogenous group. More individualized
face barriers at the levels of institutions, approaches to support for PWDs should
policies, and attitudes. It is about creating be adopted across all sectors as a practical
an environment in which systemic barriers application of the human rights approach;
to the full participation of PWDs are re- • ensuring that PWDs have equal recognition
duced or eliminated so that they have before the law. To ensure that such core
equal access to the constructed environ- provision of the CRPD as the right of
ment, transport, information, communi- PWDs to equal legal recognition, capacity
cation and services; and support before the law, the following
• clarifying definitions and improving quality interventions can be implemented: main-
and availability of data. The CRPD can be stream the goals of promoting rights of
ratified and policies promoting the human PWDs into reforms of the justice sector;
rights of PWDs can be adopted, but the revise the existing legislation and policies
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
supporting employment of PWDs, such the human rights and equity perspectives.
as job coaching and mentoring, pre- Keep salaries of social workers attractive
employment training and upgrading, and provide them with access to work-
post-secondary education, aids and de- place training and educational opportu-
vices, wage subsidies for PWDs, tax in- nities. Promote a personal assistance serv-
centives for employers, sheltered em- ices model to support the rights of PWDs
ployment, reservation of a specific num- for independent living and mobility. Given
ber of positions in public service for the importance of carers, their needs
PWDs, and workplace support. Imple- have to be addressed through opportu-
ment individualized support that meets nities for respite, social interactions with
the strengths and needs of PWDs as other carers and supplementary social
well as local economic conditions. transfers. The capacities of disabled per-
• Social protection. Expand the range of sons’ organizations (DPOs) can be strength-
programmes, services and benefits pro- ened so that they will be able to deliver
vided by the national and local govern- programmes and services for PWDs fund-
ments to PWDs and re-design them from ed by the government.
11
1 INTRODUCTION
More than 1 billion people in the world barriers and highlights the policy and pro-
live with some form of disability and this grammatic approaches that have been ef-
number will increase in the years to come. A fective for promoting their human rights. It
significant proportion of PWDs live in the reflects the current research and international
Europe and the Commonwealth of Inde- experiences and contains examples and rec-
pendent States (ECIS) region and the numbers ommendations for national stakeholders and
of PWDs are on the rise. In Tajikistan, for ex- international partners to support them in
ample, according to the data from the Ministry the effective ratification and implementation
of Labour and Social Protection, the total of the CRPD.
number of PWDs was over 150,000 by the UNDP BRC actively engaged UNDP Coun-
end of 2010, which is 12,000 higher than in try Offices (COs), internationally recognized
2005. Furthermore, the number of children disability experts and practitioners into con-
with disabilities under the age of 16 grew sultations and development of this guide. It
from under 14,000 in 2005 to over 20,000 in contains a wide range of examples of suc-
2010.1 cessful strategies utilized by practitioners in
12 Many ECIS governments have expressed the ECIS countries to promote ratification
their commitment to advancing the human and implementation of the CRPD. UNDP may
rights of PWDs, ratified the CRPD and are further revise the guide as new understanding
implementing it. As a part of its continuous and experiences are acquired and successful
efforts to strengthen the capacity of key practices in promoting the rights of PWDs
partners and promote the human rights of are identified.
PWDs across ECIS, the United Nations De- This guide is not meant to be a definitive
velopment Programme Bratislava Regional source of information but should be seen as
Centre (UNDP BRC) is publishing this guide. giving suggestions on practices and tools. It
The region-specific guide provides analysis is intended to be used in conjunction with
of the key areas where PWDs are experiencing other existing resources.2
The term “disability” summarizes a great cation and health care in segregated settings
number of different functional limitations and were excluded from mainstream edu-
occurring in any population in any country cation. Parents were advised to place their
in the world. People may be disabled by children with significant disabilities in state-
physical, intellectual or sensory impairment,
medical conditions or mental illness. Such
impairments, conditions or illnesses may be
permanent or transitory in nature. They may Persons with disabilities have
have a disability from birth or have acquired diverse strengths and needs;
it in childhood, their teenage years, or later they are not a homogenous
in life, during further education or while in group
employment. Their disability may have little
impact on their ability to work or it may
have a major impact, requiring significant
support. run institutions, where they spent their entire
Under the socialist system, the medical lives. Children with less extensive disabilities
model of disability was prevalent in the stayed at home with their families. After re-
region. The medical model construes disability ceiving education in segregated specialized
as an observable physical, mental, psycho- schools, many of those who were blind, deaf, 13
logical or sensory deviation from normality or had less serious disabilities were employed
caused by disease or another health condition. in state-funded sheltered enterprises, or in
It believes that limitations arising from disability home-based work.
can potentially be prevented or managed Under the socialist system, PWDs were
by medical treatment of that individual. So subject to discrimination and social isolation,
neither the society nor the environment has as well as multiple institutional, attitudinal
to be changed to address the rights of PWDs. and structural barriers. The stereotyping of
The medical model and charity ideology and prejudice against PWDs were widespread
shaped the ECIS countries’ legislation, policies so that their families experienced social
and programmes. Defectology, for example, stigma. Government policies were based on
was a widespread system of diagnosing and the medical model, were paternalistic and
treating children with disabilities in the region. did not address societal and other barriers
In the overwhelming majority of cases, chil- that PWDs faced and hence did not advance
dren with special needs were receiving edu- their human rights.
ADOPTING A HUMAN RIGHTS-BASED
APPROACH TO DISABILITY IN THE ECIS:
CHALLENGES AND OPPORTUNITIES
3 OF THE TRANSITION PERIOD
Over the past three decades there has much in the same way as they are available
been a dramatic shift from medical and to non-disabled individuals.
charity disability models to a model based In the USA, for example, the legislation
on human rights and equal opportunities. equalizing opportunities between those with
PWDs are no longer seen as a special group disabilities and the non-disabled and banning
requiring special medical and social services public and private sector discrimination was
in segregated settings. Instead of adjusting introduced by many states. The federal Amer-
the needs of the individuals with disabilities icans with Disabilities Act was adopted in
to prevailing social standards, societies are 1990.3 It puts the onus on society to provide
adjusting their social norms to meet the for PWDs rather than obliging them to adapt
needs of PWDs. to various barriers. The European Union (EU)
In the social model, disability is seen as policy on disability is also built on an explicit
the result of complex interactions between commitment to the social model of disability
a health problem or a functional limitation and disability is seen as a rights-based is-
and the social, political, cultural, economic, sue.4
14 and physical environment. These, in combi- In the 1990s when the USA, Canada and
nation with personal factors such as age, many European states were developing and
gender, and level of education, can result in adopting human rights-based disability laws
a disadvantage – that is, a disability. Under and policies, the ECIS countries were transi-
tioning from a predominately centrally-man-
aged, state-owned command-type economic
Instead of adjusting the needs system and a single-party communist political
of persons with disabilities to system. In the process of transition, the mech-
prevailing social standards, anisms of the command economy have been
effectively dismantled and the market insti-
societies should adjust their tutions have been established in the majority
social norms to meet the of the countries. New constitutions and a
needs of PWDs series of laws establishing formal foundations
of democracy were adopted. Formal demo-
cratic and human rights institutions promoting
this approach, the disability focus is no longer respect for rights such as freedom of speech,
how to provide for those deemed “unable” association, and forbidding any forms of dis-
to integrate into mainstream society, but crimination based on gender, race, disability
rather how to make society accessible to all, or religion were established. Some public
on an equal and non-separate basis. In many administration reforms, including optimization
countries PWDs have equal rights to educa- of government structures were implemented.
tion, public transportation, social services, Civil society emerged and quickly expanded.
access to public places and employment Independent media developed and started
3 USA Department of Justice, Americans With Disabilities Act of 1990, As Amended, http://www.ada.gov/pubs/ada.htm
4 European Commission, Employment, Social Affairs and Inclusion, http://ec.europa.eu/social/home.jsp?langId=en
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
to play an important role as checks and bal- created additional barriers for PWDs.
ances on the exercise of powers granted to The transition process created significant
political leaders and public office holders. gaps in policies and programmes supporting
The transition period brought new chal- PWDs. The essential services necessary to
lenges and opportunities to promote the meet the human rights of PWDs have either
rights of PWDs. Although the rights of PWDs deteriorated or were never provided. As a
were formally recognized and expanded in result, many PWDs, children and adults, were
constitutions and specific legislation,5 the overlooked by public authorities and were
transition period contributed to the increase not provided with the services and support
in the numbers of PWDs and created barriers to which they were entitled. In the areas of
to the realization of their human rights in all employment of PWDs, for example, the in-
ECIS countries. The social cost of transition troduction of the market economy resulted
throughout the ECIS was much higher than in the withdrawal of government employment
was initially expected. Unemployment, which subsidies for PWDs, which made the enter-
was practically non-existent under the socialist prises to lay off workers with disabilities. Re-
regime, had reached almost double-digit duced budget revenues negatively affected
levels in many countries by the end of the social services provided to PWDs as well. In
1990s. The number of people living in poverty many instances, the authorities discontinued
increased dramatically while income inequality or reduced funding of clubs and social ac-
significantly increased. Unemployment and tivities for PWDs. In the area of education,
high poverty rates affected health indicators despite the rights of children with special
and resulted in increases in mortality and needs to live in their families with their
morbidity in some CIS states at an unprece- parents, doctors and other officials often put
dented level in peacetime that resulted in a pressure on parents to relinquish guardian-
higher rates of PWDs. In Russia, for instance, ship of their children. Instead of providing 15
the number of persons counted as having a the necessary resources and support that
disability more than doubled between 1990 would meet the human rights of these chil-
and 2003. A number of factors contributed dren, they were placed in institutions that
to these outcomes that include changes in did not allow them to fully realize their rights
the reporting of pensions to include PWDs for inclusive education and employment.
previously classified as old-age pensioners, As a result, in the ECIS countries, by all
employers’ preferring to avoid paying sever- definitions of poverty PWDs are overrepre-
ance pay to fired workers by placing them sented among the poor and face multiple
on disability rolls, and the sharp deterioration barriers in exercising their human rights.
in health indicators (particularly for adult Social exclusion, low educational attainment,
men) and disruptions in the health system.6 unemployment, low self-esteem and limited
Armed conflicts in the Balkans and some CIS opportunities to participate in political and
countries not only increased the numbers social life are frequent parts of their daily ex-
of PWDs but also eroded human and insti- perience. The extent and nature of exclusion
tutional capital, weakened public adminis- of PWDs clearly differs from one sub-region
tration, and led to economic stagnation that to another, as well as within countries.7
5 Many ECIS countries have adopted disability legislation. In Moldova, for example, The Law on Social Protection of the
Disabled, entered in force on 22 June 2000. In Romania, the Law on the Protection and Fostering of Disabled People’s
Rights, came into force in 2006. The law stipulates the rights for persons with disabilities in a wide range of areas such as
housing, health care, education, employment and social benefits.
6 Jeanine Braithwaite and Daniel Mont, Disability and Poverty: A Survey of World Bank Poverty Assessments and Implications,
Social Protection and Labor Discussion Paper No. 0805, 2008.
7 UNDP BRC, Regional Human Development Report Beyond Transition: Towards Inclusive Societies, 2011.
UN CONVENTION ON THE RIGHTS OF
PERSONS WITH DISABILITIES: OVERVIEW
4 AND IMPORTANCE FOR THE REGION
International human rights law determines to a nationality, independent living and com-
that every person, including PWDs, has rights, munity integration, opportunities for a mean-
such as the right of equality before the law, ingful education, access to adequate health
the right to non-discrimination, the right to care and the right to equal opportunity in
equal opportunity, the right to independent employment. The convention has a periodic
living, the right to full integration, and the reporting process and biennial conference
right to security. Human rights are universal of states parties, and is supplemented by an
and are inalienable – they can neither be optional protocol that establishes an individual
taken away, nor given up.8 They are also in- complaints mechanism and an inquiry pro-
divisible – there is no hierarchy among rights, cedure.
and no right can be suppressed in order to The convention impels governments to
promote another right. PWDs are entitled to rethink the underlying assumptions upon
exercise their civil, political, social, economic which their disability policies and practices
and cultural rights on an equal basis with have historically been based. In implementing
others.9 the CRPD, the governments have to change
16 The UN General Assembly adopted the their traditional practices of placing PWDs
CPRD on 13 December 2006. The convention in institutionalized living arrangements, seg-
is a comprehensive document that contains regated education and sheltered employment
50 articles. It is grounded in the premise and giving them qualified income support.
that public authorities should go further The societies in countries that ratify the con-
than to just help PWDs to adjust to existing vention have to identify the societal barriers
conditions: they should seek to adapt the that prevent PWDs from full and effective
conditions in order to accommodate every- participation and inclusion in all aspects of
one, including those with special needs. The community life, including employment, ed-
CRPD includes a preamble, four initial articles ucation, housing, health, political participation,
on purpose, definitions, general principles, access to justice, cultural expression, enter-
and general obligations; 26 substantive rights tainment, and leisure activities and implement
provisions addressing, from a disability per- a series of measures to gradually reduce and
spective, the full range of civil, cultural, eco- eventually eliminate these barriers.
nomic, political, and social rights; 10 articles The process of convention drafting in-
on national and international monitoring volved PWDs and their allies from across the
and supervision; and 10 final provisions. The world and reflected their views and aspirations.
convention covers in depth such issues as This involvement was critical in identifying
the unique needs of women and children specific barriers which hinder PWDs’ full par-
with disabilities, access to law and its pro- ticipation in society. As a result, the convention
tection, liberty of movement and the right is precise in its interpretation on how a rights-
8 UNDP, Human Development Report 2000: Human Rights and Human Development, 2000.
9 These rights include such diverse areas as access to food, shelter, health care and education; reproductive rights; rights
of political participation such as the ability to organise, to be represented, and to have legal and voting rights. See, for
instance, Rebecca Isaac, B. William Dharma Raja and M.P. Ravanan, “Integrating People with Disabilities: Their Right – Our
Responsibility”, Disability & Society Vol. 25, No. 5, August 2010, 627–630.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
Table 1: ECIS countries: Convention and Optional Protocol signatures and ratifications
Convention Protocol Convention Protocol
Country
Signature Date Signature Date Ratification Date Ratification Date
Albania 22-12-2009
Armenia 30-3-2007 30-3-2007 22-9-2010
Azerbaijan 9-1-2008 9-1-2008 28-1-2009 28-1-2009
Bosnia
29-7-2009 29-7-2009 12-3-2010 12-3-2010
and Herzegovina
Republic
30-3-2007 21-9-2010
of Moldova
Russian
24-9-2008
Federation
Source: United Nations, Convention and Optional Protocol Signatures and Ratifications, http://www.un.org/disabilities/coun-
tries.asp?id=166, last accessed on December 17, 2011
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
based approach to disability should be op- with disabilities on relevant technology and
erationalized. other assistance, services and facilities; and
Many countries of the ECIS have signed promote the training of professionals and
the CRPD and some of them have ratified it. staff working with PWDs.10
Table 1 provides detailed information on the Although the ratification of the convention
status of ratification of the convention across is not a panacea and it should not be expected
the ECIS. that barriers to the realization of human
The convention, as one of international rights of PWDs will be eliminated overnight,
human rights laws, pursues the goal of safe- the ratification of the convention by all the
guarding the integrity and dignity of the ECIS countries will bring a number of positive
PWDs by establishing legal obligations on outcomes to advancing the human rights of
states to protect the rights of all PWDs under PWDs. Some of key benefits of ratification of
their jurisdiction. More specifically, states’ ob- the CRPD include the following:
ligations include respect of human rights
that means simply not interfering with their • Reform processes will be inspired and
enjoyment; protection of human rights that societies will have a universal language
means taking steps to ensure that third and conceptual human rights framework
parties do not interfere with their enjoyment; to promote the human rights of PWDs.
and fulfilment of human rights that means • States will be obliged to ensure that their
taking steps progressively to realize the right legislation, policies and programmes ad-
18 in question.
The CRPD is legally binding and by ratifying
vance the realization of human rights of
PWDs, as declared in the convention.
it states must, among other things, modify Any new policy and programme devel-
or abolish existing discriminatory laws, cus- oped should be based on the human
rights standards and principles of the
convention. Procedural safeguards secur-
Ratification of the CRPD by all ing the protection of basic rights and
ECIS countries will streamline prevention of future abuse of PWDs will
be obliged to be promulgated and en-
the human rights model into
forced.
disabilities policies and • Accessibility will be mainstreamed into
programmes and make all policies and programmes.
governments accountable for • The capacities of duty-bearers to meet
the elimination of barriers that their human rights obligations and the
PWDs face. capacities of rights-holders to claim their
rights will have to be strengthened.
• States will be obliged to adopt strategies
toms and practices; take all appropriate meas- for empowerment of PWDs that will in-
ures to eliminate discrimination on the basis crease their capacities to enjoy their rights.
of disability by any person, organization or • The Governments will be obliged to im-
private enterprise; adopt legislative, admin- plement new requirements promoting
istrative, policy, programmatic and other the rights of PWDs and improve PWDs’
measures to implement the rights of PWDs; access to education, employment, infor-
provide accessible information to persons mation and social and health care systems.
10 Article 4 of the CRPD sets up the general obligations of States Parties to ensure and promote the full realization of all
human rights and fundamental freedoms for all persons with disabilities without discrimination of any kind on the
basis of disability.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
• Governments, private businesses and The ratification of the CRPD puts a clear
all other partners will be obliged to ad- onus on the governments to report on their
dress the issues of accessibility and rea- progress or lack of progress in advancing
sonable accommodation for PWDs in the rights of PWDs. Although the convention
all areas of life. does not include specific features ensuring
• Individualized support measures with re- strict domestic compliance, governments
gard to PWDs will have to be introduced are required to demonstrate good faith efforts
and/or expanded. to progressively achieve their obligations. As
• Governments will be required to conduct the convention establishes transparent mech-
active consultation with PWDs in framing anisms for effective monitoring, the progress
laws and policies that affect them and and achievements of ECIS countries could
involve PWDs in monitoring of their im- be assessed, and effective strategies identified
plementation. and widely disseminated.
• It will facilitate international cooperation Ratification and full implementation of the
in promoting the rights of PWDs, knowl- convention will take time, resources, and con-
edge, mobilization and sharing of effective tinuous government commitment. Country-
practices and approaches. specific action plans towards ratification and
• General public awareness about the hu- implementation of the CRPD should be devel-
man rights of PWDs will be increased. oped through extensive consultations of the
• The opportunities for building capacities governments, employers, educators, social serv-
of NGOs of PWDs will be increased. ice providers, medical professionals, PWDs and
all other relevant stakeholders (see Chart 1).
Different ECIS countries face different UPR is a State-driven process, under the
challenges and have distinct capacities to auspices of the Human Rights Council, which
address the human rights of PWDs and meet provides the opportunity for each State to
society’s obligations to provide an enabling declare what actions they have taken to im-
environment by removing the physical and prove the human rights situations in their
social barriers to participation in the everyday countries and to fulfil their human rights
life of PWDs. In many ECIS countries policy obligations. As one of the main features of
makers favor an evolutionary and incremental the council, the UPR is designed to ensure
approach to promoting the rights of PWDs, equal treatment for every country when
rather than a dramatic change of the modus their human rights situations are assessed.
operandi through ratification of the CRPD. The ultimate aim of this mechanism is to
In order to help decision makers and society improve the human rights situation in all
at large to recognize the importance of rati- countries and address human rights violations
fication of the CRPD and its subsequent im- wherever they occur.
plementation, the transformation process The UPR is based on objective and reliable
20 should utilize all existing instruments, such information of the fulfilment by each State
as international directives and support as of its human rights obligations and com-
well as national experiences and resources mitments in a manner which ensures uni-
(see Chart 2). Suggestions provided below versality of coverage and equal treatment
should be viewed as guidance only and they with respect to all States. The UPR ensures
should be adjusted to address each country’s that all countries are accountable for progress
specific circumstances in supporting ratifi- or failure in implementing its recommen-
cation of the CRPD.11 dations. When the time for the second review
of a State comes they must provide infor-
mation on what they have been doing to
5.1. Use the Universal Periodic implement the recommendations made
Review to emphasize the during the first review four years earlier. The
international community will assist in im-
importance of ratification of
plementing the recommendations and con-
CRPD to the advancement of clusions regarding capacity-building and
human rights of PWDs technical assistance, in consultation with
the country concerned. If necessary, the
The Universal Periodic Review (UPR) is a council will address cases where States are
unique process which involves a review of not cooperating.
the human rights records of all 192 UN NGOs can submit information which can
Member States once every four years.12 The be added to the other stakeholders’ report
11 More information can be obtained from UNDP, Questions and Answers: Basic Ratification Guidelines for the CRPD.
12 United Nations Human Rights, Office of the High Commissioner for Human Rights, Universal Periodic Review,
http://www.ohchr.org/EN/HRBodies/UPR/Pages/UPRMain.aspx; and UNDP BRC, Universal Periodic Review: A national-
ly-owned human rights agenda, http://europeandcis.undp.org/governance/hrj/show/82FEB281-F203-1EE9-
B32783BA7CCF63B1
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
Develop
Action Plan
which is considered during the review. The of action and building their capacity to ratify
information they provide can be referred to the CRPD as a part of the UPR. NGOs, in par-
by any of the States taking part in the inter- ticular, can be supported in developing their
active discussion during the review at the written submissions to the UPR process ad-
working group meeting. NGOs can attend
the UPR Working Group sessions and can
vocating the necessity of ratification of the
CRPD. In Tajikistan, UN Women strengthened
21
make statements at the regular session of the capacities of civil society to advocate
the Human Rights Council when the out- the ratification of the convention as well as
comes of the State reviews are considered. to promote the accessibility of services and
In the ECIS, all countries have already infrastructure, health and education facilities
undergone the UPR of their human rights and institutions for both children and adults
practices and it has proved to be an effective with disabilities. The NGO Bureau for Human
tool to change the views and attitudes of Rights was supported in conducting a mon-
decision makers towards the rights of PWDs. itoring study that was included into the UPR
As ratification and implementation of CRPD report prepared by public associations in
is recommended to many countries in the Tajikistan.
region and many governments have agreed
to do so, it is essential to provide extensive
support to national partners in the imple-
5.2. Revise the existing legislation
mentation of this recommendation. Mon-
tenegro, for example, ratified the CRPD and to align it with CRPD
the optional protocol thereto in 2009, in re- requirements13
sponse to the UPR recommendations.
Support should be provided to NHRI, The national legislation should be revised
governments and NGOs in developing plans to harmonize it with the provisions of the
13 It is advisable for partners involved in revising the existing legislation to be guided by Article 4 of CRPD that sets out
general obligations of State Parties.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
CRPD. There may be declarations on rights port country’s ratification of the CRPD, a
of PWDs in general law (e.g., the constitution system monitoring the situation of PWDs
may prohibit discrimination on the ground has been developed and tested.
of disability), laws that mentions PWDs, or In Albania, UNDP’s project conducted a
special laws developed for PWDs. The analysis study that examined compliance of the ex-
of the legislation will demonstrate the degree isting legal and policy framework with the
of protection or promotion of rights of PWDs CRPD. Once gaps were identified and rec-
and the extent of laws’ alignment with key ommendations developed, work on a new
provisions of the convention. The review will act on inclusion of and accessibility for
reveal also the degree of mainstreaming of persons with disabilities began. The new law
inclusion and access in legislation and identify aims to cover those issues that are specific
the legal provisions ensuring equal rights of to PWDs, while most rights will be integrated
PWDs. in the mainstream legislation. An action plan
Once the laws are reviewed and analyzed, for the implementation of the CRPD will be
they should be revised and aligned with the developed that will include the budget im-
CRPD’s human rights model, approaches and plications of ratification.15
language. Such key terms as discrimination Some areas such as the human rights of
and accommodation should be clearly defined mentally ill people should be covered in leg-
to ensure proper implementation.14 The dis- islation through the lens of the CRPD. In
ability legislation should also clearly outline Azerbaijan, for instance, like in many ECIS
22 the enforcement mechanism, including any
sanctions or penalties for non-compliance.
countries, there is no mental health policy
and strategic plan. Mental health services
In Serbia, for example, UNDP supported the are not fully covered by social insurance. Al-
harmonization of Serbia’s legislation with though there is a human rights review body
provisions of the CRPD through expert analysis in the country, this authority does not consider
that resulted in proposals for amendments issues related to the human rights protection
of legislation and adoption of new relevant of mentally ill people on a regular basis.16
laws, including the draft law on the official
use of Serbian sign language and the draft
law on professional rehabilitation and em-
5.3. Develop an action plan,
ployment of persons with disabilities.
In Belarus, the UNDP project, after exam- including specific steps that
ining the current legal framework on disability, have to be undertaken to
initiated amendments to the relevant legis- ratify the convention
lation and provided specific recommenda-
tions. These recommendations were used The government moving towards ratifi-
by the Ministry of Labour and Social Protection cation of CRPD should be well aware of leg-
in drafting the Law on Accession of the Re- islative, policy and budgetary implications
public of Belarus to the CRPD, which was of ratifying CRPD and should have sufficient
submitted to the Parliament in 2011. To sup- capacity to implement it. Such areas as con-
14 In Turkey, for instance, Article 14 of the Disability Law (Özurluler Hakkında Kanun) prohibits discrimination and also
envisions the obligation of reasonable accommodation. However, neither in the law nor in any other legislation,
concepts of discrimination and reasonable accommodation are defined. In addition to this, the law does not indicate
any sanctions in cases of violations of these obligations. See, Turkey, Submission to the United Nations Committee on
Economic, Social and Cultural Rights, Pre-Session, 25-28 May 2010.
15 See, for instance, Republic of Albania, National Strategy on People with Disabilities.
16 World Health Organization and Ministry of Health of the Republic of Azerbaijan, The Mental Health System in the Republic
of Azerbaijan, Baku 2007.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
ducting research, developing policy options, the implementation of the strategy at national
conducting policy assessments as well as and local level, including activities, indicators
estimating costs of new policy initiatives in of implementation, outcomes and impact;
the area of disability should be strengthened development of the sample matrix for mon-
in preparation for CRPD ratification. itoring the implementation of the strategy,
Support can be provided by developing along with implementation of monitoring
a comprehensive action plan, which is required indicators that are consistent, as much as
to ratify the CRPD. Working groups including possible, with those of the CRPD and others
areas.
Governments’ capacities as
duty-bearers should be 5.4. Create and enhance
strengthened in all aspects of consultation mechanisms for
legislation, policies and PWDs’ involvement in decision
programme development and making.18 Strengthen
implementation capacities of DPOs.
17 See, for instance, Government of Montenegro, Report on Implementation of the Action Plan for Implementation of the
Strategy for Integration of Persons with Disabilities in Montenegro, 2010.
18 The partners should be guided by Article 4 (3) of CRPD that sets requirements for State Parties to closely consult with
and actively involve persons with disabilities, including children with disabilities, through their representative
organizations in all decision-making processes concerning issues relating to persons with disabilities.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
person of their choice to serve as personal in all areas of government operations, in-
assistant throughout the voting procedure, cluding policy design, implementation as
etc.19 Politicians should hear the voices of well as monitoring of programmes and service
PWDs and realize that ratification of the CRPD delivery at the local level. PWDs’ involvement
reflects PWDs’ aspirations.
Establish effective consultation
processes and practices based on the hu- ALL DPOs should unite their
man rights model of disability. CRPD em-
efforts and advocate the need
phasizes the importance of consultative
mechanisms involving PWDs. To ratify the for CRPD ratification
CRPD, a high degree of participation of PWDs
in this process should be ensured and this
participation must be active, free and mean- in policy making is critical for buy-in and on-
ingful. PWDs should have multiple venues going cooperation and ensuring that all rel-
to correspond and communicate directly evant factors and views are considered and
with policy makers concerning issues of im- is fundamental to successful ratification of
portance to them. the CRPD. In Tajikistan, for example, the in-
Multiple opportunities for PWDs to be ternational NGO Mission East is implementing
heard by decision makers should be expand- a project strengthening the capacity of civil
ed. Examples include round tables, working society in the Kulyab District to engage more
24 groups and targeted consultations with po-
tential beneficiaries that help to identify
effectively in advocacy which will improve
the application of legal frameworks on rights
PWDs’ perspectives and aspirations, improve of PWDs, as well as find ways to improve ed-
the information base and help the decision ucation and work opportunities through
makers gather information on all the potential both advocacy and direct service provision.20
consequences of the current or new policies Strengthen capacities of all DPOs.
and programmes promoting the rights of DPOs, as NGOs that are established, governed,
PWDs. Consultation, for example, as one of and managed by the PWDs, play a significant
many mechanisms of public involvement role in promoting the human rights of PWDs.
into policy making could be utilized to create In some countries, DPOs include specialized
consensus, explore ideas, ensure acceptance organizations and civil society organizations
of the CRPD ratification action plans, and in- (CSOs) which work for PWDs. There are also
crease transparency in decision making. Con- organizations that are committed to the
sultative approaches have been widely utilized cause and which help their members to
across the ECIS to solicit PWDs’ input into share their experiences and information on
disability draft laws (e.g., Albania, Uzbekistan, available training and employment oppor-
Ukraine). tunities as well as organize social activities
To promote participatory approaches to and represent PWDs to local authorities.
policy making, it is necessary to institutionalize As PWDs are a heterogeneous group
mechanisms encouraging active PWD in- with different needs and strengths, DPOs
volvement and strengthen the capacity of may be advocating the narrow interests of
public servants to work with them. These their members with virtually no impact on
may include involvement of PWDs and DPOs promoting rights for all PWDs and ratification
19 European Agency for Fundamental Rights, The right to political participation of persons with mental health problems and
persons with intellectual disabilities, 2010.
20 http://www.miseast.org/en/tajikistan/equipped-change-building-civil-society-disability-advocacy
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
of the CRPD. In the ECIS countries there are In many ECIS countries there is a lack of
usually two groups of DPOs: 1) DPOs ac- cohesion among disability organizations,
cording to the type of impairment (e.g., blind, with few opportunities for, or examples of,
deaf, psycho-social and sensual) that have coalition building among the DPO commu-
been traditionally supported by governments; nity. Although lack of funding may be a
and 2) DPOs that emerged in the transition common reason for limited collaboration of
period and are not funded by the state. It is DPOs, capacity-building interventions may
important that the capacity-building inter- focus on coalition building, closer collabora-
ventions target both groups of DPOs to tions among disability organizations and crit-
ensure that the voices of all PWDs are heard ical resource sharing to ensure that PWDs
in decision-making processes. act as one front in advocating ratification
Political will is definitely needed to pro- and implementation of the CRPD.23
mote the human rights of PWDs and ensure In Ukraine, as a result of extensive advocacy
ratification and implementation of the CRPD. campaigns of the National Assembly of
The public pressure for reform is low and People with Disabilities of Ukraine and the
many PWDs do not know their rights and Coalition for the Rights of People with intel-
do not claim them.21 DPOs can play an im- lectual disabilities, Ukraine ratified the CRPD
portant role in building such political will. As in 2009. The National Assembly encompasses
DPOs are often lacking in strength and skills 22 all-Ukrainian and 68 regional civic organ-
to interact with the government, support izations of PWDs. It is a recognized social
should be provided to build DPOs’ capacity partner of the government in such areas as
in effective consultations with the govern- conducting expert evaluation and monitoring
ment. Once equipped with the necessary of national legislation, particularly of the
knowledge and skills, DPOs advocating on president’s decrees, as well as acts and decrees
behalf of PWDs would be able to promote issued by the government as they pertain 25
transparency and accountability in decision to disability matters. The National Assembly
making in the area of disability, human rights initiated in 2007 a lobbying campaign to
and policies, promote their interests at the have Ukraine sign and ratify the CRPD. Nu-
national and local levels and strongly advocate merous public hearings, round tables, and
ratification of the CRPD.22 Training can be press conferences were conducted to dis-
provided on such topics as leadership and seminate information among all stakeholders
working with decision makers. UNDP Serbia, on the CRPD and the importance of its ratifi-
for example, provided support for the watch- cation and implementation. Extensive meet-
dog and advocacy activities of DPOs. Through ings with government decision makers and
these interventions, the capacity of DPOs to parliamentarians on the CRPD were con-
represent their interests and raise awareness ducted as well.
about the living conditions and daily problems In the Western Balkans, the European
faced by PWDs was raised. The national um- Disability Forum, with the financial support
brella organization, which is a union of 13 of the European Commission (EC), imple-
national DPOs in Serbia, whose leaders rep- mented a project creating a unified disability
resent a half of a million PWDs was also sup- movement in the Western Balkans region
ported. (Albania, Bosnia and Herzegovina, the Former
Yugoslav Republic of Macedonia, Montenegro, society holds the Albanian government ac-
Serbia and Kosovo). The project strengthened countable and helps in mainstreaming dis-
the capacity of disabled people’s organizations ability rights into the agenda of reforms and
and improved cooperation, through the es- policies.
tablishment of umbrella organizations of
PWDs. In this way, DPOs became more
efficient and more present in policy making 5.5. Address attitudinal barriers to
in the Balkans region, and therefore able to disability and ensure wide
promote the rights of PWDs.24 In Tajikistan,
public support for ratification
French NGO Handicap International in part-
nership with four Tajik NGOs is implementing of the CRPD
a two-year project empowering representative
organizations of PWDs. Through the project In the ECIS, PWDs are often not seen as
the technical capacities in advocacy, disability an asset, that is, as people with talent and
rights and related instruments of DPOs at creativity and the ability to contribute to so-
the national level, and their branches and ciety. There is also a genuine and widespread
self-help groups at local level, have been lack of understanding that most PWDs can
strengthened.25 in fact function effectively at work, school,
DPOs could play an important role in and with society, if given adequate support.
monitoring the implementation of the con- Understanding what citizens think about
PWDs and about disability legislation and
26 vention as well as other government strategies
and plans promoting the human rights of policy is vital to the ratification of the CRPD
PWDs. In Albania, for instance, the Albanian and its successful implementation.
Disability Rights Foundation, which is a non-
governmental organization that advocates
for the human rights of PWDs, monitors im- “Attitudes play a major role in
plementation of the National Strategy for determining whether people
People with Disabilities.26 The foundation with disabilities experience
prepared and released a number of reports social exclusion. Social
based on surveys by government officials at exclusion risks for a person
the central, regional and local level, who
with disabilities doubles when
provided official information on the status
of progress on the measures assigned to a significant portion of the
their offices, as well as representatives of population (at least one third)
four national disability NGOs. The reports opposes inclusive measures.”
found that the state agencies often fail to
meet the goals of the national strategy and UNDP BRC, Regional Human Development
that awareness and accountability have to Report Beyond Transition: Towards Inclusive
be improved at all levels. Constant monitoring Societies, 2011
of the national disability strategy by civil
24 Western Balkans and the enlargement process (European Commission website) and http://www.edf-feph.org/Page_Gen-
erale.asp?DocID=13373
25 The project is funded by the European Union and more detailed information can be obtained at: http://eeas.europa.eu/del-
egations/tajikistan/press_corner/all_news/news/2010/20101210_01_en.htm
26 The monitoring and preparation of the reports was enabled through the financial support of the United States Agency
for International Development (USAID) under the programme of “Promoting the Human Rights for people with
Disability in Albania”. More information on activities and publications of the Albanian Disability Rights Foundation can
be found at http://www.adrf.org.al.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
Public attitudes may themselves be critical individuals, employers and others in removing
to either advancing or hindering the inclusion barriers to PWDs.
of PWDs. What people believe about indi- A survey of public attitudes towards PWDs
viduals with disabilities underlies the treat- was carried out by UNDP in Belarus and its
ment of those individuals in all aspects of findings were integrated in the background
their lives. If the public believes that PWDs study on the advantages and risks of Belarus’s
are incapable of full participation in society, accession to the convention and in planning
these attitudes shape a paternalistic public information and education activities for the
policy on disability. To support continuous year 2010. It found, in particular, that pater-
advancement of the human rights of PWDs, nalistic attitudes to PWDs dominate in society.
public awareness-building interventions Limiting the activity of PWDs is perceived as
should be comprehensive and strategic to a humane approach, serving their best in-
achieve long-term effects and build strong terests. However, the proportion of respon-
societal support of the CRPD. Other potential dents favouring the integration of PWDs into
interventions include fostering at all levels professional and community life increases
of the education system, including in all with their educational attainment level.
children from an early age, an attitude of re- In Turkey, the Administration for Disabled
spect for the rights of PWDs and encouraging People with the partnership of the human
all organs of the media to portray PWDs in a rights presidency implemented a project en-
manner consistent with the purpose of the titled Fighting Against Disability Discrimination
CRPD.27 in Turkey. The project produced a report
To obtain better data on public percep- based on an extensive survey of PWDs that
tions of disability and to raise public awareness, examined the pattern of discrimination in
it is beneficial to conduct nationwide public such diverse areas as employment and work-
opinion surveys focusing on disability issues. ing life, health care, education, political par- 27
These surveys can examine how citizens ticipation, access to justice, participation in
view the capabilities of PWDs, how much leisure activities, integration into society,
experience they have with disability, and access to information, etc.28
how they perceive PWDs in schools, work- Negative prejudice and stereotypes to-
places and the community. They can also wards disability cannot be overcome solely
ask about citizens’ perceptions of barriers by legal regulations and integration policies.29
and discrimination, while also examining the Specific measures have to be implemented
views of PWDs (their self-perception, their that target individuals’ cognitions, emotions,
and their families’ prejudices) in order to de- and behaviours towards PWDs.30 It is necessary
velop adequate programmes for empower- to incorporate some components aimed at
ment of PWDs and improved self-image. The changing mindsets of decision makers, public
surveys can uncover negative perceptions servants, employers and ordinary people to-
and unfounded beliefs, which may be unac- wards disability in ALL programmes and proj-
knowledged and often hidden, towards dis- ects promoting the human rights of PWDs.
ability. They may also explore public beliefs As disability is traditionally seen from the
about the role of governments, NGOs, families, medical perspective in the belief that disability
UNDP Kazakhstan, National Human Development Report 2009, From Exclusion to Equality: Realizing
the Rights of Persons with Disabilities in Kazakhstan, 2009.
of the convention, and explore the ways in The impact of training courses on journalists’
which the parliament can translate the rights views on disability was significant and long
and principles at the core of the convention lasting. An independent content analysis of
into tangible action.32 the press indicated that, as a result of the
UNDP Uzbekistan conducted a training training, the number of publications based
course for journalists on how to cover the is- on an inclusive model towards PWDs tripled
sues of disability through social inclusion. in three years.
29
32 Although UN Enable produced the Handbook for Parliamentarians on the Convention on the Rights of Persons with
Disabilities (http://www.un.org/disabilities/default.asp?id=212), it may be beneficial to customize it to local circum-
stances.
MEASURES SUPPORTING THE SUCCESSFUL
IMPLEMENTATION OF THE CONVENTION
6 AND OTHER DISABILITY LEGISLATION
Following ratification of the CRPD, gov- institutions protecting the rights of PWDs in
ernments as duty-bearers have to ensure advanced industrialized and democratic
implementation of the commitments un- states. Many reformers are still naïve in be-
dertaken and mainstream the human rights lieving that the legislation and institutions
of PWDs, linking them to their economic, for the oversight, monitoring, coordination
social, education and access to justice legis- and enforcement of PWDs’ rights would au-
lation and policies. Governments are obliged tomatically function once established. Second,
to establish the mechanisms necessary for reformers in the ECIS do not invest sufficient
ensuring compliance with the convention energy and resources into ensuring the
and designate one or more focal points proper functioning of new legislation and
within government for matters relating to institutions. The institutions responsible for
its implementation. It can be a primary, cen- the implementation of disability legislation
tralized body to monitor compliance located do not have sufficient institutional capacity,
at the centre of the government, coupled skills and budgets to ensure timely, consistent
with a detailed reporting mechanism.33 Sup- and effective implementation of the disability
30 port can be provided in establishing such a legislation. Third, old medical models continue
centralized body and developing accounta- to matter and influence all sectoral disability
bility and public reporting mechanisms. policies and programmes, and line ministries
Many countries in the region provide do not have the capacity to effectively operate
constitutional rights to the PWDs and have a human rights model of disability legislation
ratified the CRPD, but they are slow in im- and implement the CRPD in their respective
plementing their commitments in practice. sectors. Fourth, a rights-based social approach
PWDs often cannot access certain social requires a high degree of participation from
services, enrol into mainstream schools, and
obtain employment. Welfare assistance and
transfer systems often remain inefficient, in- CRPD implementation does
sufficient and not well targeted, so that the not deal only with the
diverse rights of PWDs remain unfulfilled. expansion of services and
PWDs are rarely seen on the streets of the programmes supporting
ECIS countries, which is a clear indication
that cultural traditions and public attitudes
PWDs. The focus should be
and superstitions based on medical and made on promoting rights
charity models of disability continue to dom- and empowerment of persons
inate. with disabilities.
There are several reasons behind the slow
pace of implementation of CRPD commit-
ments. First, it is relatively easy to adopt dis- PWDs and this participation must be active,
ability legislation and establish formal insti- free and meaningful. Often, public adminis-
tutions corresponding to the legislation and trations in the ECIS do not have the capacity
to engage in effective consultations with Some ECIS countries have already acceded
DPOs and PWDs. to the EU or plan to do so in the near future,
The UN system in Moldova, for example, which has resulted in more explicit policies
has identified the following challenges and concerning disability rights. Even in these
obstacles to the full implementation, at national states the changes in practical terms for citi-
level, of the CRPD that reflect the overall situ- zens with disabilities have not been significant
ation in the region. Some key issues include:
34 United Nations Moldova, Memorandum to the Office of the High Commissioner for Human Rights, 2010.
35 Daniel Holland, “The current status of disability activism and non-governmental organizations in post-communist
Europe: preliminary findings based on reports from the field”, Disability & Society, Vol. 23, No. 6, October 2008, 543-555.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
This chapter examines how the CRPD In addition to the UPR process, recom-
can be translated into specific, logically-se- mendations in the area of disability can be
quenced actions, policies and programmes developed by such treaty-based bodies as
promoting the human rights of PWDs that the Human Rights Committee, the Committee
reflect realities of the ECIS. It provides specific on Economic, Social and Cultural Rights, the
suggestions on how to develop and imple- Committee on the Elimination of Racial Dis-
ment policies and programmes advancing crimination, the Committee on the Elimination
the realization of human rights of PWDs. Im- of Discrimination against Women, the Com-
plementation of the CRPD should be com- mittee on the Rights of the Child, the Com-
prehensive in its consideration of the full mittee on the Rights of Persons with Disabil-
range of indivisible, interdependent and in- ities and others. There are currently 10 human
terrelated civil, cultural, economic, political rights treaty bodies, which are committees
and social rights of PWDs. Regardless of of independent experts. Nine of these treaty
whether an ECIS country has ratified the bodies monitor implementation of the core
CRPD or not, the disability agenda should international human rights treaties. The treaty
be incorporated into general development bodies are created in accordance with the
plans by adopting a human rights-based in- provisions of the treaty that they monitor.
stitutional framework and operationalizing The Committee on the Rights of Persons
multi-sectoral policies and monitoring in- with Disabilities monitors implementation
struments. Specific interventions that can of the CRPD.
32 support the implementation of the CRPD
are discussed below.
The treaty bodies perform a number of
functions in accordance with the provisions
of the treaties that created them. One of
their important roles is to consider State
6.1. Use the Universal Periodic parties’ reports. The countries that ratify one
of these treaties incur an obligation to submit
Review, treaty bodies and
regular reports to the monitoring committee
special procedures of the UN set up under that treaty on how the rights
recommendations to advance are being implemented. In addition to the
the disability agenda government report, the treaty bodies may
36 For more information, see Office of the United Nations High Commissioner for Human Rights, Human Rights Treaty
Bodies, http://www2.ohchr.org/english/bodies/treaty/index.htm
37 Ibid.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
and facilitate effective sharing of information as well as estimating costs of new policy ini-
and promotion of successful practices. tiatives.
Improve interministerial coordination
in the area of disability.38 Often in the ECIS
6.2. Support effective countries each of the ministries and state in-
operationalization of the stitutions responsible for disability matters
has its own strategy and its own programmes.
existing disability legislation
Often these strategies and programmes are
into policies and programmes not harmonized with or integrated into the
and strengthen the capacity vision of the national development strategy.
of the public service In addition, all ministries have their own re-
porting and statistics systems.
Often disability laws, regulations and poli- Disability should be mainstreamed across
cies remain statements of good intentions all policy sectors that may contribute to in-
without any follow-up implementation and creasing awareness of disability, thereby mak-
proper reporting. To address these systemic ing each policy sector apply a disability per-
gaps, the capacities of duty-bearers should spective when establishing policies. In addition
be strengthened to meet their human rights to mainstreaming, interministerial coordination
positive obligations (to protect, promote and should be improved to address the rights of
provide) and negative obligations (to abstain PWDs. As different ministries typically share
34 from violations). Governments have to be
supported in operationalizing the CRPD re-
responsibility for different interventions sup-
porting PWDs, such as paying cash benefits,
quirements into specific policy implemen- providing social assistance, helping with
tation plans in all respective areas, such as labour market re-integration, a proliferation
employment, education, accessibility and of different disability programmes, each fo-
others. The disability plans should include cused on a specific problem, may lead to in-
the timetable for delivering a policy, the sufficient attention being paid to the needs
roles and responsibilities of all those involved of the individual PWD as a whole person
in delivery, and the resources allocated to and inefficient use of resources. As PWDs
the policy. The plans could also include face multiple barriers to exercising their
specific targets, performance measures and human rights, the integrational and com-
indicators measuring policy success. prehensive approaches to disability should
The roles and responsibilities of partner be developed and implemented to ensure
ministries should be clearly outlined. A the sustainability and long-term impact of
comprehensive list of legislative and policy disability interventions that is impossible
initiatives planned by the ministries and the without effective interministerial coordination.
necessary budget allocations that ensure Although many ECIS countries encourage
compliance with the CRPD can be developed. or even mandate interministerial consultations,
Targeted support can be provided to strength- the policy coordination mechanisms are
en the analytical capacity of line ministries weak, the roles of line ministries are not
in policy making and implementation. A par- always clear, but above all coordination is
ticular focus can be made on such areas as initiated at later stages of policy development
conducting research, developing policy op- where the policy is almost fully developed.
tions, conducting ex-ante policy assessments In the absence of effective collaboration,
38 See CRPD, Article 33, National implementation and monitoring. The article requires, in particular, State Parties to give
due consideration to the establishment or designation of a coordination mechanism within government to facilitate
related action in different sectors and at different levels.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
silo-based thinking about disability policies portunities, and composed of seven ministers
will continue to dominate. and five chairs of national associations (blind
There is a range of strategies that promote people, paraplegic people, people who be-
effective disability policy coordination that came disabled as a result of work accidents,
include: deaf people, and parents of people with in-
tellectual disabilities). In Armenia, there is a
• sensitizing all levels of the public service National Commission on Issues of Persons
on disability matters; with Disabilities, established in 2008. It serves
• establishing dedicated national intermin- as the coordination mechanism on disabilities
isterial bodies responsible for disability issues. The commission is composed of the
matters;39 Minister of Labour and Social Issues (Chair-
• circulating draft government submission man), the Head of the Department of Disabled
materials to potentially impacted ministries and Elderly People’s Issues (Secretary), the
well in advance of submission dates; Vice-Minister of Health, the Vice-Minister of
• consulting closely with and actively involve Justice, the Vice-Minister of Finance and Eco-
PWDs, including children with disabilities, nomics, the Vice-Minister of Education and
through their representative organiza- Science, the Vice-Minister of Territorial Ad-
tions;40 ministration, the head specialist of the De-
• improving the existing governance and partment of Social Affairs at the Government
accountability systems to promote cross- Administration and heads of eight disability
ministerial coordination; NGOs.41 In Turkey, the Administration for Dis-
• establishing a cross-ministry steering abled People was established in 1997 under
committee coordinating disability-focused the Prime Ministry. The administration is a
cross-ministerial policy government sub- national focal point and coordination mech-
missions; anism on disability issues and is responsible 35
• using existing permanent cross-ministry for supporting the preparation of national
groups or networks to seek input on dis- policies for PWDs. The administration has
ability policy proposals; established the Executive Committee on Dis-
• investing in the professional development abled People and the Council on Disabled
of policy staff with particular emphasis People.42
on developing the skills of cross-ministerial Ensure that decentralization promotes
policy development in the area of dis- the human rights of PWDs.43 There are
ability. often strong reasons for giving local govern-
ments a prominent role in the delivery of
Many ECIS countries established dedicated programmes and support to PWDs, as they
interministerial bodies responsible for coor- can better tailor interventions to their needs,
dinating all disability policies. In Albania, for assess genuine needs requiring exceptional
instance, there is a National Council of Dis- support and promote policy innovations.
ability-related Issues. It is chaired by the Min- Decentralization can encourage local public
ister of Labour Social Affairs and Equal Op- administrations to be innovative, as they do
not have to follow uniform and rigid proce- work in practice. Piloting can test whether
dures established by central governments. PWDs really benefit from these changes and
Local public administrations can rely on the more accurately assess the costs of imple-
knowledge, expertise, and experience of menting the changes nationally. In selecting
local people and develop and implement a pilot site it is important to ensure that it is
better targeted and more cost effective and fairly representative of the PWDs targeted
efficient programmes and services. Decen- through the changes. Geographical location,
tralization allows the voices of the PWDs income levels, the accessibility of government
communicated to local and national decision services and unemployment levels are some
makers to be heard. of the factors that should be taken into con-
As the existing evidence suggests, de- sideration in choosing pilot sites.
centralization does not automatically lead Conduct training of public servants
to improved outcomes for socially excluded on how to design and implement human
groups. The results of decentralization efforts rights-based disability policies and pro-
in developing countries have been mixed.44 grammes. Training could focus in particular
As many governments in the ECIS are im- on developing skills with regard to how to
plementing decentralization reforms through identify the barriers and challenges that
which many of the responsibilities regarding PWDs face in exercising their rights and how
programmes, support and services to PWDs to develop policies and programmes to ad-
have been delegated from the central to dress them. Greater awareness of the re-
36 local level governments, it is critically important
to introduce additional safeguards to ensure
sponsibilities of public servants towards PWDs
in discharging their duties will improve the
that the rights of PWDs are observed. A new delivery of services to them. Training can be
decentralized accountability model safe- delivered for national and local public servants,
guarding rights of PWDs should be estab- both involving PWDs as trainers. UNDP Serbia,
lished. It can be accomplished through or- for instance, helped to produce an online
ganized and systematic dialogue among course for public servants to allow them to
stakeholders, including local governments, find out more about the rights of PWDs.
DPOs, community groups and the private
sector. The minimum standards of access to
basic services provided to PWDs can be es-
tablished and DPOs and PWDs should be in- 6.3. Support interventions
volved in monitoring of local compliance. promoting accessibility45
Targeted training should be also provided
to local public administrators on disability. Accessibility is an umbrella concept that
Pilot innovative approaches to pro- refers to issues related to services, systems
moting the human rights of PWDs before and policies.
embarking on nationwide implementation. It is about creating an environment in
It is advisable to pilot new disability policies which systemic barriers to the full participation
and models promoting the rights of PWDs of PWDs are reduced or eliminated, so that
in a few regions and assess how new models these people have equal access. Under the
44 G. Shabbir Cheema, “Linking Governments and Citizens through Democratic Governance”, in Public Administration and
Democratic Governance: Governments Serving Citizens, UN, 2007, 7th Global Forum on Reinventing Government, Building
Trust in Government, 26-29 June 2007, Vienna, Austria.
45 A comprehensive study on accessibility in South East Europe “Free Movement of People with Disabilities in South East
Europe: An Inaccessible Right?”, released by Handicap International in 2006, covers such components as individualized
support, accessible housing, public building and transportation. It contains many examples and recommendations
and can inform interventions in the areas of accessibility.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
CRPD, States Parties are required to take ap- which restricts their opportunities to exercise
propriate measures to ensure PWDs access, their rights in multiple domains. Many streets
on an equal basis with others, to the physical are virtually unusable for individuals who
environment, to transportation, to information rely on wheelchairs and some people have
and communications, including information trouble even exiting their apartment buildings
and communications technologies and sys- because of narrow doorways. The existing
tems, and to other facilities and services legislation and accessibility standards are
open to or provided to the public, both in poorly enforced. As a result, in Turkey, for in-
urban and in rural areas.46 stance, more than 77 percent of PWDs have
Plans for removing barriers and construct- difficulty in access because of lack of necessary
ing accessible buildings and spaces, services, arrangements in public places like roads,
information and communication can be de- walkways, and parks. 70.2 percent of PWDs
veloped and implemented. Universal design have difficulty in accessing institutions serving
standards have to be incorporated into the the public for the same reason. Approximately
design of buildings open to the public, the 72.1 percent cannot use local public transport
provision of services, and new information and 59 percent cannot use inter-city public
and communication technologies. Training transport, as they have no necessary modifi-
for stakeholders should be provided on ac- cations for PWDs.48
cessibility issues facing PWDs.47 Support can be provided through the
Accessibility should be improved in other practical application in architecture of the
areas as well. New accessible information principle of universal design from the project
and communication technologies have the phase, with a ban on the issuance of permits
potential to improve the access to and to buildings that are not accessible. The same
delivery of basic services, such as health and principle would be applied to transport. Na-
education to PWDs. However, if these areas tional building codes, for example, could be 37
not accessible, they build further barriers revised to require minimum standards of ac-
that inevitably limit the opportunities for cess and were applied to all buildings at the
PWDs to exercise their rights. The Law on time they were being built and during major
Social Support to Disabled People in Kaza- renovations irrespective of ownership.
khstan, for instance, protects access to infor- UNDP Uzbekistan’s project, for instance,
mation for PWDs. There are periodicals, sci- supported the Cabinet of Ministers in adopting
entific journals, reference literature, and fic- a resolution on imposing fines for violations
tional works that were either recorded on of the building code that requires all new
CDs or in braille. The law requires one national buildings to be fully accessible. A manual for
television channel to broadcast news pro- architects and builders on how to construct
grammes with sign-language translation. The fully accessible buildings and infrastructure
implementation of such laws addressing the in line with the accessibility requirements
rights of PWDs in access to information in was developed and architects and builders
the ECIS is often lacking or is only partial. were trained on how to ensure compliance
The requirement of accessibility is critically with the accessibility legislation.
important for ECIS, where the overwhelming Often websites are not accessible for
majority of buildings, including government PWDs. To address this limitation, UNDP Poland
institutions, are not accessible by PWDs, prepared and released How to make an ac-
cessible webpage, which contains guidelines In the ECIS, official data on PWDs, such
for designers and content editors. Using as the prevalence of disability among children,
simple terms, it presents all the elements to adults and older people at the national and
make websites accessible step by step. The regional levels, as well as socio-demographic
guidelines are an indispensable tool for characteristics of the population with dis-
anyone engaged in website development, abilities, including their age, sex, ethnicity,
including web designers and content editors.49 marital status, educational qualifications,
The publication supports the development labour force status, income, and household
of websites that are accessible to blind and and family circumstances, are often insufficient,
sight impaired people, those with reduced may not be accurate and may not show the
mobility, deaf, dyslexic, and cognitively im- real situation with regard to their disability.51
paired people, senior citizens, less educated As the estimates of the prevalence of disability
people, those using low bandwidth Internet in ECIS countries provided in Annex 1 indicate,
connections and, finally, all Internet users, the prevalence rates vary dramatically across
independently of hardware and software the countries, which confirms that the defi-
configurations. nitions and statistical data on disability may
not accurately reflect the situation of PWDs
in the region.
Develop or adopt a definition of dis-
6.4. Clarify definitions and
ability and specific categories of disabilities
improve quality and
38 availability of data50
based on the social human rights model,
relying on the best international approach-
es. In the ECIS countries, as in many countries
The CRPD may be ratified and policies around the world, definitions of disability
promoting the human rights of PWDs may depend on the reasons for defining it, such
be adopted, but the real impact of these as designing a disability pension programme
measures should be monitored at the house- and defining eligibility criteria, providing di-
hold and individual level. Clear and objective rections on placements of students in main-
statistical data on PWDs is necessary to lay stream versus segregated school settings,
the basis for sound disability-related policies determining eligibility criteria for assistive
and programmes to meet the CRPD re- devices, etc. In some countries, a person is
quirements. Consistent definitions of disability disabled only if she or he has impairments
aligned with best international practices that permanently and completely prevent
should be adopted, processes for data col- her or him from working. Other countries
lection established and databases created define disability more broadly as a state of
to meet the CRPD requirements and prioritize decreased functioning associated with disease,
disability-related concerns in resource allo- disorder, injury, or other health conditions,
cation and policy and programme devel- which, in the context of one’s environment,
opment. High-quality, comparable data on is experienced as an impairment, activity
disability is important for the planning, im- limitation, or participation restriction. In Bosnia
plementation, monitoring, and evaluation & Herzegovina, for instance, the legal frame-
of disability-focused policies and pro- work is grounded on the basic principle of
grammes. respect of human rights, but its implemen-
49 UNDP Poland, How to make an accessible webpage. Guidelines for designers and content editors, 2011
50 See CRPD, Article 31, Statistics and data collection.
51 The limitations of statistical data on positions of people with disabilities in Albania, for instance, are discussed in the
Swedish Helsinki Committee for Human Rights, Study and Assessment of Legislation on Disabilities in Albania, 2006.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
tation is problematic, due to the application ability has become closer to the WHO ICF
of an unharmonized assessment of disability definition as result of gradual shifting from a
across different categories such as war veterans medical to a social model, as well as legal
with disabilities, civil victims of war and so- acknowledgement of the rights of all cate-
called civil/non-war disabilities.52 gories of the population, including children.
The national definition should reflect the Additional work is needed in the area of ap-
social model so that disability is determined plication of the ICF to a national clinical di-
by examining the participation levels of agnosis and rehabilitation assessment, and
people with different functional statuses. In in disability data collection.55
the social model, disability is seen as a relative The description of disability should be
term where impairments can be more or clear and easy to operationalize to inform
less disabling, depending on the extent of multiple policy and programme decisions.
social barriers existing in countries. These High-quality and succinct descriptions would
barriers are often environmental, institutional help in designing an effective service delivery
and attitudinal and they inhibit PWDs’ real- programme, for instance, through guidance
ization of their human rights. The articulation on how to interpret the information on peo-
of perhaps an “open-ended description” of ples’ functioning levels, support available
what disability, an evolving concept, means within the PWD’s family and community,
based on human rights and the social model and characteristics of the environment where
could be helpful to identify, remove and pre- PWDs live, study and work.56 The description
vent the creation of societal barriers. of disability should also avoid defining it
To ensure international comparability of from the perspective of the individual’s sat-
data and be able to benefit from international isfaction with life experiences. The data about
expertise, it is beneficial to depart from the quality of life, well-being, and personal satis-
definitions of disability developed by the faction with life are useful for policy design 39
WHO.53 WHO’s International Statistical Clas- and evaluation, but it is very subjective and
sification of Diseases and Related Health may not necessarily reflect the presence or
Problems54 is widely used internationally to extent of disability. In this regard, the issue
diagnose disorders. The International Classi- of “assessment of impairment” and the need
fication of Functioning, Disability and Health for multidisciplinary teams are also important
(ICF) can inform development of a national to keep in mind.
definition of disability because it combines Improve quality and accessibility of
both medical and social approaches to dis- data on disability. National Statistics Agencies
ability. The ICF definition of disability does should be supported in strengthening their
not restrict disability to any previously defined capacity in collecting the disaggregated data
threshold of functioning. Disability is defined on the number of PWDs by disability (to im-
within the context of health, while features prove targeting for better programming), de-
of the environment and social barriers are mographic profile, level of income, education
taken into consideration. In Kazakhstan, as level, and ethnicity. The disability perspective
in many ECIS countries, the definition of dis- should be incorporated in sector-specific dis-
52 Bosnia and Herzegovina, Council of Ministers and Directorate for Economic Planning, Social Inclusion Strategy of
Bosnia and Herzegovina, 2009.
53 World Health Organization, www.who.int/about
54 World Health Organization, International Statistical Classification of Diseases and Related Health Problems, 10th Edition,
2009.
55 Ai-Gul S. Seitenova and Charles M. Becker, Disability in Kazakhstan: An Evaluation of Official Data, Social Protection and
Labor, World Bank Discussion Paper No. 0802, February 2008.
56 Daniel Mont, World Bank, Measuring Disability Prevalence, 2007.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
57 More suggestions and ideas on how to improve the data on circumstances of persons with disabilities and their
households could be obtained from Wim van Oorschot and Maarten Balvers, European Comparative Data on the
Situation of Disabled People: an Annotated Review. Report prepared for the Academic Network of European Disability
Experts (ANED), 2009.
58 On specific strategies to improve the quality of the data on employment of people with disabilities, see ILO, The
Employment Situation of People with Disabilities: Towards Improved Statistical Information, 2007. The census examples are
the Philippines and Argentina. Australia and New Zealand have conducted specific disability surveys.
59 In Georgia, for example, in order to get examined for disability and be assigned official disability status by special
examination committee (and be re-examined on an annual basis), an applicant has to pay a 25-50 GEL (USD14-USD28)
recurring fee at a local clinic or hospital. See World Bank, Qualitative Survey on Disability and Living Standards in Georgia,
2007, http://pdc.ceu.hu/archive/00003102/01/disability_survey.pdf
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
• inaccurate unemployment statistics that reforms are outlined in the Action Plan of the
captures only PWDs who are registered Government of the Republic of Moldova’s Strategy
with the medical assessment commis- on the Social Inclusion of Persons with Disabilities
sion; 2010-2013.
• underrepresentation of children with dis-
abilities;
• lack of data on workplace injuries as em-
ployers are reluctant to disclose workplace 6.5. Promote individualized and
injuries, as there is a substantial fine for comprehensive approaches
unsafe working conditions;
• underrepresentation of mental and psy- PWDs have diverse strengths and needs
chiatric disability as people with mental but they are not a homogenous group.
or psychiatric disabilities are often not People may be disabled by physical, intel-
included in data sets; lectual or sensory impairment or have mental
• scepticism towards census and population illness. They may have a disability from birth
surveys as many people do not want to or have acquired it in childhood, their teenage
reveal family and personal data to the years, later in life, during further education
state.60 or while in employment.
The needs of PWDs and their families
The need for improving the national dis- must be identified and addressed in a manner
ability data collection system was identified consistent with and reflective of their dynamic
by national experts, DPOs, and other potential qualities, capacities, vulnerabilities, and ex-
users of statistical data on disability in Belarus. pectations. More individualized approaches
UNDP Belarus addressed this gap by intro- to support PWDs should be adopted across
ducing the interested parties to the best in- all sectors, which would be a practical appli- 41
ternational practices in collection and appli- cation of the human rights approach. In the
cation of disability statistics through a study area of employment, for instance, individual
visit to Germany. As a result, A Questionnaire support plans for PWDs can be institutional-
on the Situation of PWDs was developed. It is ized. These plans can take into account such
used to identify barriers to independent individual characteristics as age, skills, special
living for PWDs, assess the economic situation needs and employability of PWDs, evaluation
of households with members with disabilities, of the local market, a training plan and other
and evaluate the overall socio-economic sit- interventions empowering PWDs to either
uation of PWDs. The survey was conducted join the labour force or pursue self-employ-
and its results were published in 2010 and ment opportunities. The plans could contain
widely disseminated among the relevant various rehabilitation and work elements
government bodies, research institutions, such as the assessment of professional skills,
NGOs, and libraries. career guidance and counselling, restoration
In Moldova, in response to a request of of professional skills and development of
the Ministry of Labour, Social Protection and new professional skills, as well as benefits in
Family, the UNCT is implementing a project cash and kind. They can include specific
providing technical support in the develop- commitments for the PWD that he or she
ment of a roadmap for the introduction of can sign and include a requirement for peri-
the WHO ICF and related legal, policy, regu- odic follow-up meetings with social workers
latory and procedural reform measures. These who can be in charge of case management.
legal counsel and representation. Exemptions of PWDs. Ensure that access to pro-
from legal fees are granted upon production grammes and services is equitable and
of documented proof of disability.65 non-discriminatory and open for effective
To ensure that such core provision of the monitoring and appeal mechanisms to
CRPD as the right of PWDs to equal legal ensure access to justice of PWDs.
recognition, capacity and support before the • Legislate a right for free legal aid for
law, and that their right to equal access to PWDs.
justice as well as support and accommodation • To ensure that all PWDs enjoy legal ca-
in the justice process are met, the following pacity, develop a system that would pro-
interventions can be implemented:66 vide support or assistance to enable
them to make decisions for themselves
• Mainstream the goals of promoting rights and expand their capacities to do so.
of PWDs into reforms of the justice sector. Eliminate outdated guardianship systems
As multiple agencies and institutions con- which infringe on PWDs’ fundamental
stitute the justice sector, it is important rights to liberty and equality. Rather than
to ensure that there is a coordinated and assigning them to a guardian, PWDs
coherent sector-wide strategy addressing should receive support in decision mak-
the human rights of PWDs. ing.67 Many ECIS countries’ legislation on
• Identify and address physical and com- the capability and legal capacity of natural
munication barriers that PWDs face in persons, including persons with intel-
accessing justice. In addition to making lectual disabilities and mental problems,
all legal institutions such as courts, legal is still based on the concept of substitutive
assistance and ombudsman’s offices phys- decision making. The right to take deci-
ically accessible, communication barriers sions about one’s life should not be taken
should be addressed. Deaf individuals, away from PWDs and the legislation 43
for example, must have sign language should be aligned with the CRPD re-
translation and blind PWDs should have quirements and all possible accommo-
material in braille to facilitate participation dations and support should be provided
in court proceedings and other legal to minimize the number of people with
matters. Legal provisions that limit the mental health issues, intellectual disabil-
capacity of PWDs to give testimony or ities and other disabilities being declared
participate in any other way in legal pro- legally incapable and put under legal
ceedings should be abolished. guardianship. The rights, will and prefer-
• Revise the existing legislation and policies ences of the concerned person should
in such diverse sectors as employment, be respected. Any restrictions of the
public transport, telecommunications rights of an individual must be tailor-
and information, procedural law, social made to the individual’s needs, be gen-
and health protection, education, public uinely justified and combined with ef-
procurement, family law, criminal law fective safeguards. Access to support is
and other relevant areas to ensure that of the utmost importance in order to
they guarantee the non-discrimination give access to justice to PWDs, as without
65 Ministry of Labour and Social Protection of the Republic of Belarus, UNDP, Situation of Persons with Disabilities in
Belarus, Minsk, 2010.
66 For more information on access to justice in the ECIS and potential interventions, see UNDP Bratislava Regional Centre,
Report on the UNDP Access to Justice Survey in Europe and the Commonwealth of Independent States, 2009.
67 Equal Legal Rights, Access to Justice Crucial to Implementation of Disabilities Convention, Round Table, UN General
Assembly, September 3, 2009.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
assistance, these persons are often not to an effective judicial review of decisions. It
in a position to make themselves heard. is necessary also to ensure that persons with
• Targeted interventions may support the mental disabilities and/or their legal repre-
office of the ombudsman. In addition to sentatives can exercise the right to an effective
making it physically accessible, it is im- remedy against violations of their rights.
portant also to sensitize staff of the office UNDP Montenegro, for instance, sup-
to disability and develop guidance ma- ported the government in establishing a
terials for PWDs on functions of the om- normative and institutional framework for
budsman’s office, including some practical the legal aid system. The Law on Legal Aid,
guidance on such matters as how to file which was adopted in 2011 stipulates that a
claims. A position of Assistant Ombudsman person with special needs will have the right
for the Protection of Human Rights can to legal aid without submitting any other
be created who will deal with the pro- documentation on his or her financial situation,
tection of the human rights of PWDs. as is requested by the law for other cases,
• Support the relevant ministries and agen- excluding special categories of population
cies in consulting PWDs on access to jus- defined by the law’s provisions. UNDP has
tice matters. Strengthen the capacity of also conducted a fiscal impact analysis to
DPOs to work in defence of PWDs’ human determine the budget implications of the
rights and provide them with the right law’s implementation.
to initiate court proceedings in the name DPOs can be supported in building their
44 •
of PWDs.68
Conduct targeted awareness-raising in-
capacity to provide free legal advice services
to PWDs and defend their rights in courts
terventions to train and educate the ju- and other state institutions. In Armenia, NGO
diciary about the rights of PWDs. The Unison, for example, provides a range of
training courses may target judges, legal services that include legal advice on
lawyers, police officers, staff of penitentiary specific cases, attorney services to litigate
institutions, and other relevant justice cases of discrimination based on the grounds
system professionals. of disability, and provision of information on
• Support PWDs who chose the legal pro- the relevant state authorities and current
fession to grow professionally to assume legislation.70 In Russia, DPO Perspektiva, with
positions of significance in the justice the financial support of USAID, has trained
system. 12 professional lawyers and 41 law students
to provide assistance in court and in drafting
Persons with mental disabilities are often legislation.71 In Moldova, the Legal Assistance
deprived of their legal capacity in ECIS coun- Centre for Persons with Disabilities, which is
tries.69 It is necessary to develop policies and a non-governmental, non-profit, apolitical,
introduce effective procedural safeguards public interest organization, established by
that will ensure that in any case that a person a group of PWDs, provides free legal advice
with mental disabilities is deprived of his or for PWDs and specialized NGOs, represents
her legal capacity, they have prompt access PWDs before courts, public authorities, and
68 Commissioner for Human Rights, Third party intervention by the Council of Europe Commissioner for Human Rights
under Article 36, paragraph 3, of the European Convention on Human Rights, Application No. 47848/08 – The Centre
for Legal Resources on behalf of Valentin Câmpeanu v. Romania, https://wcd.coe.int/ViewDoc.jsp?id=1851457
69 An extensive analysis of barriers that persons with mental disabilities face in accessing justice in Bulgaria, for instance,
can be found in Written submission by the Mental Disability Advocacy Center to the Universal Periodic Review Working
Group, Ninth Session 1-12 November 2010, With respect to Bulgaria.
70 http://www.unison.am/
71 USAID Russia, http://russia.usaid.gov/programs/cross_sectoral/youth/Perspektiva/
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
businesses, and edits and publishes infor- ample, despite the NGOs and government
mation materials on the rights of PWDs. support, women with disabilities still remain
There are some groups of PWDs that re- marginalized. They still experience traditional
quire special attention in securing their rights stereotypes about women as dependent,
to access justice. It is important to open up passive, and incompetent. As a result, women
psychiatric institutions where PWDs live to with disabilities are poorer, often illiterate,
independent public scrutiny to prevent hu- and have fewer opportunities to establish a
man rights violations and ensure that PWDs family and have a decent life. Women with
have access to justice.72 The inspection mech- disabilities also have fewer opportunities for
anism should be independently funded and vocational training, employment and eco-
managed and include frequent visits to psy- nomic independence.74 In many ECIS countries
chiatric institutions. This could be established violence against women with mental dis-
following the model of National Preventive abilities is common in institutional settings.
Mechanism established under the Optional Women and girls in institutional and residential
Protocol to the Convention against Torture settings are all particularly vulnerable, either
(OPCAT)73. DPOs and human rights NGOs because they are less able to protect them-
should be provided with the possibility to selves or because they are unable to report
file an application on behalf of the residents abuse.
of psychiatric institutions if they are unable PWDs in the minority groups, particularly
to do so alone. among the Roma population, have not been
targeted through policies, programmes and
interventions promoting the human rights
6.7. Ensure that the intersection of of these minorities. Policy makers tend to
disability rights with gender assume that the needs of these groups could
and ethnic minority rights be addressed through the existing legislation 45
and network of services, but in reality, infor-
(multiple discrimination and mation is not available to them, and they
aggravated forms) are rarely exercise their rights. Roma PWDs face
properly addressed multiple discrimination and are often unable
to exercise their rights of access to social
Women and ethnic minority individuals and security and health care due to the ab-
with disabilities in the ECIS countries face sence of personal identification documents.
significant impediments in realizing their for- Often in the ECIS countries the easiest solution
mal human rights. Women and girls with to address the multiple challenges that Roma
disabilities face a double burden of discrim- children face is found by placing them in
ination, in which gender and disability interact special schools for children with disabilities.75
with and reinforce each other. Women with As a result, Roma children outnumber non-
disabilities are less likely to get married than Roma in schools for mentally retarded children
non-disabled women, and once married, are with no good health-related grounds for
more likely to be divorced. In Kosovo, for ex- this.76
72 “In order to prevent the occurrence of all forms of exploitation, violence and abuse, States Parties shall ensure that all
facilities and programmes designed to serve persons with disabilities are effectively monitored by independent
authorities.” CRPD, Article 16, Freedom from exploitation, violence and abuse.
73 For further details on the OPCAT, please visit the OHCHR website at: http://www2.ohchr.org/english/bodies/cat/opcat/
74 Coalition of Organizations of People with Disability of Kosovo, National Report for People with Disabilities in Kosovo,
Pristina 2007.
75 UNDP BRC, At Risk: Roma and the Displaced in Southeast Europe: A Regional Human Development Report, 2006.
76 UNDP BRC, The Roma in Central and Eastern Europe: Avoiding the Dependency Trap: A Regional Human Development
Report, 2006.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
46
SECTORAL INTERVENTIONS
PROMOTING THE HUMAN RIGHTS
7 OF PWDs: SELECTED EXAMPLES
The CRPD recognizes “the importance of comprehensive and include key elements
accessibility to the physical, social, economic presented in Chart 4.
and cultural environment, to health and ed-
ucation and to information and communi-
cation, in enabling PWDs to fully enjoy all 7.1. Education
human rights and fundamental freedoms.”77
As the barriers and challenges that PWDs According to the Organisation for Eco-
face are multi-faceted, interventions promot- nomic Co-operation and Development’s
ing the human rights of PWDs should be di- (OECD) research based on comparative coun-
versified and involve multiple partners. The try analysis, in order to equip disadvantaged
following sections review potential interven- students with equivalent learning means,
tions that can be undertaken in selected even in cases of severe disabilities, they
sectors to promote the human rights of should be educated in mainstream schools
PWDs. Regardless of the specifics of sectoral rather than in separate institutions, on the
policies or interventions, they should be condition that additional resources provided
Chart 4: Promoting the human rights of PWDs and ensuring full implementation of
the CRPD: key elements of sectoral interventions 47
Human
right-based
sectoral policies
Strengthened
Involvement of
capacity of decision
PWDs in decision
makers and service
making
providers
Promoting rights
of PWDs
Improved Individualized
accessibility programmes and
services
for special schools are maintained in the to be living in residential care in the 27 coun-
mainstream schools and elsewhere.78 To en- tries.82 In Azerbaijan, for instance, there are
sure that the rights of students with disabilities over 2,000 children with disabilities who
are addressed, the reforms should eliminate reside in children’s homes.83
the barriers that they face. The legal framework Many children with disabilities are iden-
should be aligned with CRPD requirements; tified too late and the early intervention serv-
changes in identification and placement pro- ices are not available at community level.84
tocols and practices introduced; the education The practices of classification and placement
sector funding model revised to support of students with special needs that are based
students with disabilities in mainstream on the medical model of disability and are
schools; accessibility of schools and trans- still widely used in the ECIS should be revised
portation improved and educators trained to encourage inclusion. Assessment tools
to support students with disabilities in class- developed on the basis of the “defectology”
rooms. In a rights-based model of education, approach used by state commissions are still
consistent with the CRPD, education should based on outdated ideas about educable
be student-centred, focus on the realization and non-educable children. Often the place-
of students’ full potential and prepare them ment decisions are made without taking
for life after school.79 The “children who learn into account all factors affecting the child’s
together, learn to live together” philosophy capacity to learn. Parents may not be neces-
should be adopted and operationalized in sarily present at the commissions’ meetings,
48 all aspects of education policy.80
In the ECIS countries, most kindergartens
which does not allow social and family cir-
cumstances to be taken into consideration.
and schools are still unable to provide services In Romania, for example, the identification
to children with special education needs, of special education needs is still done from
and the majority of them remain excluded a medical deficit point of view.85
from special and mainstream education. To address these limitations and integrate
There is a lack of auxiliary means, alternative a human rights perspective, it is necessary
texts and materials, and teachers are not to develop new protocols and procedure
well-trained to support children with dis- and train commissions to spend more time
abilities.81 Overall residential care rates for objectively assessing the child’s strengths
infants and children are still high in the ECIS and needs and rely on a wide range of infor-
countries, and many children live away from mation in making their placement decisions.
their families in Soviet-era children’s homes. A wider range of practitioners working with
At the end of the 1990s, 900,000 children, al- the child can inform decision-making process-
most 1 percent of all children, were reported es as well. A requirement that the placement
78 OECD, Priorities for Action, Education and Equity, Policy Brief 2004; and OECD, Education Policy Analysis, 2003.
79 See, for instance, a comprehensive study by UNICEF, Innocenti Digest No.13, Promoting the Rights of Children with
Disabilities, 2007. Some specific successful practices from all over the world in inclusion of students with special
education needs can be found in Susan J. Peters, Inclusive Education: Achieving Education for all by Including Those with
Disabilities and Special Education Needs, prepared for the Disability Group, World Bank, 2003.
80 Rebecca Isaac, B. William Dharma Rajaa and M.P. Ravananb, “Integrating people with disabilities: their right – our
responsibility”, Disability & Society, Vol. 25, No. 5, August 2010, 627–630.
81 UNESCO, International Bureau of Education, Albania, Regional Preparatory Workshop on Inclusive Education Eastern and
Southeastern Europe, 2007.
82 UNICEF, Innocenti Insight, Children and Disability in Transition in CEE/CIS and Baltic States, 2005.
83 http://www.guardian.co.uk/society/audioslideshow/2009/jun/02/azerbaijan-everychild-childrens-homes
84 See CRPD, Article 25, Health. State Parties are required to provide those health services needed by persons with
disabilities specifically because of their disabilities, including early identification and intervention as appropriate, and
services designed to minimize and prevent further disabilities, including among children and older persons.
85 Academic Network of European Disability experts (ANED), Romania – ANED country profile, 2009.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
of students in special schools can be recom- ness and the use of appropriate augmentative
mended only if the placement in regular and alternative modes, means and formats
classrooms with appropriate accommodations of communication, educational techniques
does not meet the student’s educational and materials to support PWDs.86
needs should be legislated. It is insufficient just to place students
As students with disabilities have diverse with special needs into mainstream schools,
strengths and needs, the policies should in- without appropriate and child-specific support.
clude a requirement to develop and imple- If individual education plans are not devel-
ment individual education plans, including oped, and teachers are unprepared to support
goals for the student, support provided and children with disabilities, these children are
indicators of success. The programmes and often bullied by non-disabled students and
support for children should be implemented are likely to drop out of school, ending up
as early as possible even before the formal with low educational attainments and hence
identification of disability is made. In Bosnia with limited opportunities on the labour
and Herzegovina, for instance, the Association market. Reforms advancing the rights of stu-
of Educators/Rehabilitators, Special Education dents with disabilities should be compre-
Teachers and Speech and Language Therapies hensive and logically sequenced.87
in Canton Sarajevo implement the Bosnia UNICEF Country Offices in ECIS countries
Early Intervention for Children with Devel- are implementing numerous projects pro-
opmental Disabilities project, which aims to moting the human rights of children with
establish systematic, early intervention in disabilities. In Georgia, for instance, UNICEF
the education and rehabilitation of children provides services for families caring for children
with developmental disabilities. with disabilities, works towards an inclusive
Effective and meaningful parental in- education system that embraces children
volvement is critical for the successful inclusion with special needs, improves early diagnosis 49
of their children. Parents should be encour- and treatment, and transforms attitudes and
aged to be involved in school governance behaviours that contribute to the stigmati-
at various levels and support their children zation of children with disabilities.88 In Mace-
in classrooms, if necessary. Parents need to donia, UNICEF has supported the opening
be included as respected and equal partners. of five day care centres that help to reduce
Improved communication with parents would the risk of institutionalization of children with
positively affect the inclusion experience and disabilities. UNICEF- trained policy makers,
the subsequent development of social, aca- university professors, teachers and social
demic, and developmental skills of the child. service staff are involved in developing care
Teachers should be trained on how to that is based in the community, and schools
educate children with disabilities. Inclusive that include all children, disabled or other-
education should be incorporated into all wise.89
core teacher training curricula and in-service DPOs are also active in promoting inclusive
training to communicate values and develop education. In Russia, for instance, the DPO
educators’ skills in inclusive education. Such Perspektiva is implementing a project “Building
training should incorporate disability aware- an inclusive education movement in Russia”,
which aims to facilitate the inclusion of chil- Gesellschaft für Internationale Zusammenar-
dren with disabilities into the community beit helped to establish the country’s first
through their inclusion and education at early diagnosis and support centre in Skopje.
mainstream schools.90 Its catchment area covers more than one
quarter of the Macedonian population. Infants
with an increased risk of developing a disability
7.2. Health are examined in the centre and receive sup-
port there.91
PWDs face many barriers in exercising As some core policy elements guaran-
their rights to access high-quality health care teeing access of PWDs to health care services
in the ECIS countries. Often medical institutions may be in place, they should be operational-
are inaccessible for them, especially for those ized from the perspective of CRPD. There is
with mobility impairments. PWDs often find an urgent need to create a capacity for dis-
that even if a medical facility is physically ac- ability literacy among ministries of health
cessible, the examination equipment is not, management and staff and health care
and office staff are not trained to provide providers, including doctors and nurses. These
health care services to them. Another major stakeholder groups should be educated
barrier is a lack of transportation accessible about the disability-specific health service
for PWDs, which either makes them miss needs of PWDs, their rights and the conse-
appointments or means that they cannot quences of not getting services to which
50 go to see doctors at all. Some women with they are entitled. More specifically, health-
care providers should acquire practical skills
disabilities face physical barriers in accessing
gynaecologists, dentists may be unprepared on how listen to, understand and respond
and untrained to treat PWDs, and all doctors to the variable needs of individuals with dis-
may not have the skills necessary to com- abilities. It is also important to provide con-
municate with individuals who are deaf or text-specific skills, related to the health-care
hard of hearing. delivery to specific disability groups, such as
Lack of adequate and timely health care mental health patients. In addition, medical
can exacerbate disease outcomes, and can professionals should develop the skills of
turn impairments into chronic disabilities. distinguishing between disability-related and
Without resources for medical or social serv- non-disability-related health problems.
ices, a remedial impairment can become a The availability, access and quality of
permanent disability. Timely and equitable medical rehabilitation, including assistive de-
provision of such basic devices as glasses, vices (e.g., prosthetics, orthotics, wheelchairs
hearing aids and crutches is a critical com- and walking aids) enabling people to attain
ponent of the human rights-based health the highest possible level of functional ability
care provision model. and live an independent, quality life is often
Early identification of disability is critically very low. In cases when medications, assistive
important in designing timely and compre- devices and services are necessary, the gov-
hensive programmes and support. In Mace- ernments should ensure that they are available
donia a project implemented by Deutsche to all eligible PWDs who are poor and cannot
90 The project is financed by the European Union under the EU-Russia cooperation programme and is implemented by
the disability NGO Perspectiva and its regional partners in 6 regions of Russia: Moscow, Voronezh, Samara, Tomsk, Ulan-
Ude (Buryatia) and Ukhta (Komi Republic). http://eeas.europa.eu/delegations/russia/eu_russia/tech_financial_cooperation/in-
dex_en.htm
91 Project “Support for Mentally and Physically Disabled Children”, http://www.gtz.de/en/weltweit/europa-kaukasus-zen-
tralasien/mazedonien/26112.htm
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
cover the cost for them personally. Given This happens if deinstitutionalization is not
that PWDs usually have a low income, it is complemented with adequate community-
unrealistic for them to cover these expenses. based care. The success of de-institutional-
In the ECIS countries, thousands of PWDs ization initiatives in many countries, such as
are still kept in large, segregated and often the United Kingdom, can at best be seen as
remote institutions and denied rights and uncertain.92 In the case of individuals with
respect for their human dignity. In a number intellectual disabilities in the ECIS, for example,
of cases they live in substandard conditions, social community-based services and financial
suffering neglect and human rights abuses. support can be insufficient to cover the sup-
The convention requires the states to recognize plementary costs incurred.93
that all PWDs should have the right and the To make sure that the process of deinsti-
opportunity to choose their place of residence, tutionalization promotes the human rights
and with whom they live, on an equal basis of PWDs, it necessary to clarify the account-
with others, and that they are not obliged to ability of national and local administrations
live in a particular living arrangement. Within with regard to services and support provided
the context of this requirement, many countries to former inpatients. Standards should be
of the region are implementing a de-institu- developed and enforced and quality controls
tionalization process, meaning that fewer introduced. New accountability systems
people reside as patients in institutions and should focus on enhancing the rights of
fewer treatments are delivered in public hos- PWDs, rather than solely on administrative
pitals. Instead, patients are referred to com- processes. It may be advisable for the national
munity-based health services. government to be prescriptive in developing
Ideally, de-institutionalization is about standards covering the availability, duration,
provision of all the necessary support and intensity, range and quality of services that
services in community-based settings. It are needed to support deinstitutionalization 51
allows individuals to regain freedom and and the development of alternative social
empower themselves through responsible care placements. A special set of measures
choices and actions. With the assistance of should be implemented to prevent the in-
social workers and through rehabilitation, stitutionalization of children with disabilities
former inpatients can adjust to everyday life so that they can live and be raised in family
outside of institutional rules and expectations. environments, through building up commu-
Other potential positive outcomes of de-in- nity-based services and support, including
stitutionalization include increases in day- through increased social assistance and wel-
to-day choices, engagement in different fare benefits to the children’s families. It is
kinds of activities and improved satisfaction necessary also to develop networks of foster
with the services they receive from local families that take care of children who live in
providers. Many former inpatients, however, institutions with appropriate compensation
may experience difficulties in establishing for their activities, according to the specific
and maintaining progress following deinsti- needs of a child.94 Social workers should be
tutionalization and continue to face numerous trained and effectively supervised to conduct
barriers to the exercise of their human rights. the investigation and assessment of de-in-
92 Alexandra Hamlin and Peter Oakes, “Reflections on Deinstitutionalization in the United Kingdom”, Journal of Policy and
Practice in Intellectual Disabilities, Volume 5, No. 1, pp. 47-55, March 2008.
93 Ewa Wapiennik, “Comparative Policy Brief Status of Intellectual Disabilities in the Republic of Poland”, Journal of Policy
and Practice in Intellectual Disabilities, Volume 5, Number 2, pp. 137-141, June 2008.
94 Slobodanka Lazova-Zdravkovska, “Process of Deinstitutionalization of People with Disability in the Republic of
Macedonia”, Journal of Special Education and Rehabilitation, pp. 3-4: 49-58, 2007.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
95 Aleksandr A. Andreev, To Work or Not to Work? Labor Supply Decisions of Russia’s Disabled, Honors Thesis submitted in partial
fulfilment of the requirements for Graduation with Distinction in Economics in Trinity College of Duke University, 2008.
96 European Union Agency for Fundamental Rights, The legal protection of persons with mental health problems under non-
discrimination law, 2011.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
should not be required to hire any person troduced. The quota systems can be revised
with a disability, but should be asked to hire to make them more effective by specifying
people who are qualified and accommodate their beneficiaries, quota rates, enforcement
the limitations caused by disability on an in- mechanisms and sanctions for failure to com-
dividual, case-by-case basis. ply. The schemes supporting employment
Often PWDs do not know their rights of PWDs at home can also be supported,
and do not have the necessary skills and where new types of work may offer new op-
knowledge to find jobs. There is a wide range portunities for PWDs, such as web-based
of potential interventions supporting the economic activities and telecommuting.
employment of PWDs, such as job coaching Social enterprises apply market-based
and mentoring, pre-employment training strategies to achieve a social purpose and
and upgrading, post-secondary education, they can play an important role in promoting
assistive aids and devices, wage subsidies to the employment rights of PWDs. Social en-
employed PWDs, and workplace support. terprises may not only use profit to support
Employment on the open market is the PWDs, but also employ them. In Romania,
option that best addresses the human rights the NGO Motivation Romania is implementing
of PWDs. Many ECIS countries have quota a project integrating PWDs into the labour
systems to promote the employment of market by developing a social enterprise
PWDs. Typically, employers with a minimum pilot of seven sheltered units in which 60
number of employees – both in the private PWDs will be employed and specialists in-
and public sector – have to fill the quotas. volved in the socio-professional integration
The main variant of the straight quota system of these people trained. The project is financed
is the so-called “quota-levy” system, whereby by the European Social Fund.97 Social enter-
employers can pay a contribution to an ear- prises employing PWDs are also supported
marked fund in lieu of employing PWDs up by UNDP Uzbekistan. 53
to their quota obligation. The funds are used PWDs need individualized support that
for such purposes as payments to employers meets their strengths and needs as well as
for accommodating PWDs in the workplace, local economic conditions. An individual plan
direct payments to workers with disabilities, of employment support should be developed
and payments to disability service providers. for them that takes into account such individual
Often employers prefer paying a salary to characteristics as age, skills, special needs
PWDs, without the person actually working, and the employability of PWDs, and local job
as this costs the company less than paying market conditions.98 As international experi-
the fine for not employing PWDs, and also ence demonstrates, individualized approaches
secures tax breaks. Although the quota system are effective in addressing barriers to labour
is not a perfect policy instrument, with sig- market inclusion that each PWD faces. The
nificant challenges associated with its en- plans could contain various rehabilitation
forcement, it should be maintained in the and work elements, as well as benefits in
future until new, more effective instruments cash and kind.99 The plan can include specific
encouraging employers to hire PWDs are in- commitments for the PWD that he or she
can sign and include a requirement for periodic • an obligation for the State to employ
follow-up meetings with caseworkers. Indi- PWDs;
vidualized approaches can also include a • the obligation to employ PWDs, imposed
series of activities to help build the self- on companies which want to work on
esteem, confidence and resilience of PWDs. government contracts;
The individualized approach will place a • supported (assisted) employment where
wide range of new demands on those work- personal support (job coach) is provided
ing for the rights of PWDs. Caseworkers will in open employment. Support is gradually
need extensive knowledge of the range of reduced as the person with disabilities
available programmes, benefits and services. develops the ability to work independ-
More time will be required to assist individuals ently;
and follow each case. The capacity of case- • reservation of a specific number of posi-
workers (e.g., social workers, job center staff ) tions in public service for PWDs;100
in supporting PWDs should be strengthened • more tax incentives to employers, such
through targeted training courses on disability as tax exemptions on imported prod-
and how to support the employment/self- ucts, devices or equipment used by
employment of PWDs. Training can involve PWDs at work, tax exemptions on train-
the participation of local PWDs who will ing materials, equipment needed by
share their own experiences and perspectives. vocational rehabilitation centres, cor-
In Ukraine, for example, UNDP and ILO porate income tax exemptions, etc. Cor-
54 supported the State Employment Centre of
Ukraine to develop and implement a unified
porate income tax can be reduced pro-
portionately to the number of PWDs
methodology for the provision of job place- hired;
ment promotion services for PWDs. The • extension of support provided to com-
model improved inter-sectoral and inter- panies run and owned by PWDs with
agency cooperation arrangements; informa- the condition that they will employ and
tion exchange through the Centralized Data- provide training and apprenticeship op-
bank on Disability Problems; maintenance portunities for PWDs;
of cases of PWDs by specially trained job • revision of social cash benefits for PWDs
placement professionals; consultations with to create incentives for them to attempt
employers concerning adaptation and/or to find and hold down a job;
creation of a special workplace; social con- • increasing vocational rehabilitation and
tracts; individual job placement programmes; training opportunities through passing
post-employment monitoring profiles and legislation on the right to vocational
other components. In addition, a Guide for rehabilitation; the setting up of a reha-
Employers on the Job Placement and Employ- bilitation programme with clear eligi-
ment of People with Disabilities was developed bility requirements; a range of vocational
and widely disseminated. rehabilitation services, and manage-
Additional measures promoting the right ment, monitoring and reporting mech-
to employment of PWDs that can be con- anisms.101
sidered by all partners include:
100 On successes and challenges of implementation of this approach in Romania, see Veronica Junjan, Mugur Ciumăgeanu,
Ioana Micluţia and Ioana Crăciun, “Labor Integration of Persons with Disabilities in Public Institutions in Romania”,
Transylvanian Review of Administrative Sciences, No. 33 E/2011, pp. 109-123
101 An excellent and practical review of employment options for PWDs, with an in-depth analysis of vocational skills de-
velopment is provided in USAID, Transitions Towards an Inclusive Future: Vocational Skills Development and Employment
Options for Persons with Disabilities in Europe and Eurasia, 2009.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
102 Irina Merkuryeva, The System of Disability Benefits in Russia: Estimation of Targeting Accuracy, Economics Education and
Research Consortium Working Paper, Series ISSN 1561-2422, No. 07/04, 2007.
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
the person’s home to assist them with tasks through opportunities for respite, social in-
such as getting dressed, cooking and with teractions with other carers and supple-
such daily activities as shopping, participating mentary social transfers.
in social clubs and getting to work. In Bulgaria, UN Women Tajikistan supports women
for example, the jobs of personal assistant, who take care of their family member with
social assistant and housekeeping worker disabilities by helping them to register for
were introduced in 2007 with the National and access disability benefits that are critically
Assistants to Disabled People Programme important for vulnerable rural households
funded by the State budget. Personal assistants to achieve or maintain a minimum standard
are unemployed family members who take of living. The programme focused on im-
care of their relative with disabilities for a proving the demand side of social protection
minimum monthly salary and social security services by monitoring and visiting vulnerable
contributions. Social assistants are hired by households to inform them of their rights,
service providers to perform a range of ac- and the supply side of social protection by
tivities, included in the individual plan of working with government to improve service
every client.103 UNDP Montenegro, for ex- design and delivery and planning processes
ample, is supporting the development of a through the creation of district task forces
personal assistance service that is intended (information and consultation centers at the
for PWDs and includes the provision of as- district level) and better data collection on
sistance to them to perform day-to-day ac- individuals with disabilities and other vul-
56 tivities that cannot be done without the
help of another person.
nerable groups.105
UNDP’s project in Albania and its partners,
Members of the households of PWDs who support mine victims, adopted a com-
may find themselves in a particularly difficult prehensive approach addressing the human
situation. The burden of caring for a family rights of multiple beneficiaries. Data on
member with disabilities can be very heavy victims is routinely collected and shared
and carers can be physically and psycho- among key partners to streamline and opti-
logically exhausted and overstressed. Often mize support provided. Nurses residing in
they have to lift and carry their family mem- mine-affected villages received training cours-
bers with disabilities because they lack es in emergency first aid and community-
equipment (wheelchairs, ramps, elevators, based rehabilitation. A prosthesis workshop
etc.). The UNICEF study in Kyrgyzstan found was established and is producing new pros-
that of unemployed parents, 72.5 percent theses for the amputees in need. Socio-eco-
said that they were not working because nomic integration was supported through
they had to look after their child with dis- assistance in accessing vocational training
abilities. In some cases, parents stated that courses and technical/financial support to
the benefits they received from the state open small businesses.
were not enough even to buy medication DPOs can also deliver programmes and
for the child. The government provides free services for PWDs funded by the government.
medicine as humanitarian aid only when it They are flexible in their operations and can
is available.104 Given the importance of quickly respond to local needs. In addition,
carers, their needs have to be addressed DPOs can acquire donations from donors,
103 Center for Independent Living Bulgaria, Disability Policies in 2009-2010, Inclusion Put on Hold, 2010,
http://www.cil.bg/userfiles/nabliudatelnitsa/Report-2009-2010-EN.pdf
104 UNICEF, Assessment of the Situation of Children with Disabilities in Kyrgyzstan, 2008.
105 UN Women Tajikistan, UN Women support for ratification of the Convention on the Rights of Disabled People in
Tajikistan project
PROMOTING THE HUMAN RIGHTS OF PERSONS WITH DISABILITIES IN EUROPE AND THE COMMONWEALTH OF INDEPENDENT STATES: GUIDE
businesses and private persons and rely on cluding DPOs, to provide social welfare serv-
volunteers in delivering their programmes ices. UNDP Serbia is currently supporting
and services. In the area of employment, for the development of by-laws for operational-
example, DPOs may deliver services to assist izing this law.
individuals with disabilities prepare for, attain UNDP Uzbekistan’s project demonstrated
or maintain employment. Services may include the potential of NGOs to provide employment
information and referral to appropriate services services. Employment services included vo-
and programmes, assessment, employment cational training, professional orientation, as-
and career counseling, skills training, and sistance on finding a job, coaching, consul-
the provision of technical aids, and other tancy on tax and pension benefits, and so
support. Serbia, for instance, adopted the on. Four NGOs provided voluntary employ-
Law on Social Protection in 2011, which es- ment services without any external financial
tablishes formal guidelines and standards support and 208 PWDs found jobs with their
for licensing non-governmental groups, in- assistance during 18 months.
57
8 CONCLUSIONS
Many ECIS governments have ex- The guide is purposely generic in order
pressed their formal commitment to ad- to facilitate its application in a variety of
vancing the human rights of PWDs, rati- local circumstances. It is an expectation
fied the CRPD and are implementing it, that it will encourage partners to engage
but their progress is inconsistent across into extensive dialogue on specific steps
the region. This guide reflects the current that should be undertaken to ratify and/or
research and international experiences implement the CRPD. The wide use of the
in ratifying the CRPD and its implemen- guide will contribute to ratification of the
tation. CRPD and its effective implementation.
58
9 ANNEXES
3.13
Albania 3.14 12.29 94,804 3.0%
(2007)
3.07
Armenia 3.08 11.92 148,656 4.9%
(2006)
8.58
Azerbaijan 8.68 46.26 281,000 3.3%
(2007)
9.70
Belarus 9.68 60.30 512,500 5.3%
(2007)
Bosnia & Herzegovina 3.77 18.45 n/a n/a n/a
7.91
Bulgaria 7.62 49.90 263,143 3.3%
(2001)
4.44
Croatia 4.43 69.33
(2001)
429,421 9.6%
59
4.36
Georgia 4.36 12.79 137,806 3.2%
(2008)
15.15
Kazakhstan 15.68 132.23 403,400 2.7%
(2005)
Kyrgyzstan 5.28 4.42 n/a n/a n/a
2.04
Macedonia 2.04 9.52 26,781 1.3%
(2006)
3.76
Moldova 3.63 6.05 164,891 4.4%
(2005)
0.62
Montenegro 0.62 4.52 67,000 10.8%
(2008)
21.55
Romania 21.51 200.071 539,241 2.5%
(2007)
142.10
Russia 141.80 1,607.82 13,014,00 9.2%
(2007)
Serbia 7.35 50.06 n/a n/a n/a
6.17
Tajikistan 6.84 5.19 104,272 1.7%
(2000)
Turkmenistan 5.03 18.27 n/a n/a n/a
47.45
Ukraine 46.26 180.36 2,500,000 5.3%
(2004)
26.49
Uzbekistan 27.31 22.3 n/a n/a
(2006)
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