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Pranee Liamputtong
Editor
Handbook
of Social
Inclusion
Research and Practices in
Health and Social Sciences
Handbook of Social Inclusion
Pranee Liamputtong
Editor
Handbook of Social
Inclusion
Research and Practices in Health and
Social Sciences
This Springer imprint is published by the registered company Springer Nature Switzerland AG.
The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
In loving memory of my younger daughter,
Emma Inturatana Rice, who will forever be
in my heart
Preface
The focus of this Handbook is on social inclusion in health and social care. Social
inclusion stems from the ideal of an inclusive society where each individual can feel
valued, differences between individuals are respected, the needs of each person are
met, and everyone living with dignity is “the norm.” Social inclusion can explain
why some individuals are situated at the center of society or its margins, as well as
the consequences of the social layer in society. Social inclusion refers to “a multi-
faceted construct” that embraces both a social and a physical state that leads to
experience across a spectrum of inclusion/exclusion. At the macro level, social
inclusion is linked to access to affordable education, equal employment opportunity
and its legislation, as well as gender and cultural norms. At the micro levels, social
inclusion/exclusion is distinct from, but highly associated with, poverty, as well as
occupational status, income, and social networks relating to gender, ethnicity/race,
and religion. Social inclusion has also been perceived as a health determinant, which
sits alongside economic position, housing, and education. It is a crucial component
of quality of life for many individuals because it increases their sense of belonging
and allows them to become contributing members of society. It has been suggested
that social inclusion enhances self-esteem, confidence, mental health, independence,
and decision-making capacity, which results in better well-being of many people
who are located in marginal positions in the society.
Closely related to the concept of social inclusion is social exclusion. Social
exclusion refers to the process of marginalizing individuals or groups and excluding
them from full participation in social, economic, and political activities. Social
exclusion is marked by unequal access to capabilities, rights, and resources. It
engages at the individual, household, community, nation, and global level. Social
exclusion renders some individuals or groups socially vulnerable. Thus, these
individuals or communities are unable to prevent negative situations that impact
their lives. Several factors work to preclude some individuals and groups from
access to and use of health and social services, and from taking part in economic
activities and policy capacities. Social factors such as gender, social class, ethnicity,
caste, indigenous origin, and religion, diseases such as tuberculosis and HIV/AIDS,
and migration and displacement status and disability are some of the marks which
people are made to exclude.
vii
viii Preface
methods), issues and research that promote social inclusion in different communi-
ties/individuals, and programs and interventions that would lead to more social
inclusion in society. The aims and scope of the book are to provide discussions
about (1) social inclusion and social exclusion in different societies; (2) theories that
are linked to social inclusion and exclusion; (3) discussions about issues and
research with diverse groups of vulnerable and marginalized individuals and com-
munities; (4) inclusive research methods that promote social inclusion of vulnerable
and marginalized groups of people; (5) research methodologies that enhance social
inclusion; and (6) discussions regarding programs and interventions that can lead to
more social inclusion of vulnerable and marginalized people.
The Handbook is divided into seven sections to cover the field of social inclusion
comprehensively. Each section is dedicated to a particular perspective relating to
social inclusion as indicated in the points given above. The reader or user of this
Handbook will learn about concepts of social inclusion/exclusion and theories
relating to social inclusion/exclusion. The reader will also learn about research
methodologies and programs/interventions that can enhance social inclusion in
different population groups. As examples from the research are included in this
Handbook, the reader will be able to see the real-life situations that can promote
social inclusion in different groups that they can adopt in their own work. A good
understanding of matters that can include or exclude people in the society may lead
to sensitive health and social care for vulnerable and marginalized groups that will
ultimately lead to the attempt at “no one will be left behind” in society.
In bringing this Handbook to life, I owe my sincere gratitude to many people.
First, I would like to express my thanks to all contributors, many of whom worked
hard to deliver their chapters within the time frame that I set. I thank Janet Kim,
Mokshika Gaur, Tina Shelton, Divya Nithyanandam, and Shobeya Sweetlin James
of Springer who helped to bring it to fruition. I thank the reviewers who kindly
agreed to review a number of chapters in the Handbook. I greatly appreciate their
assistance. This book is dedicated to my younger daughter, Emma Inturatana Rice,
who physically left us behind in late 2018, but is still present in our lives and our
heart. I forever love you, my little one.
Volume 1
xi
xii Contents
Volume 2
Volume 3
111 Social Inclusion and the Role of the Health Care System . . . . . . . 2215
Yvonne Parry and Nina Sivertsen
Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2289
About the Editor
xxi
xxii About the Editor
Ali Adan Abdi is studying at Jomo Kenyatta University of Agriculture and Tech-
nology in Nairobi, Kenya. He was awarded the DAFI (Albert Einstein German
Academic Refugee Initiative) scholarship in 2017. Born in Somalia, Ali sought
asylum in Kenya in 2011. After completing his schooling in exile, he worked as
an Islamic Religious Education teacher at Kakuma Refugee Camp. He co-facilitated
the Kakuma Youth Research Group from 2016 to 2017.
Mujibul Anam is a research fellow in Culture and Rural Health at the Department
of Rural Health at the University of Melbourne. Mujibul is also a professor
(on leave) in the Department of Anthropology at Jahangirnagar University,
Bangladesh. His areas of interest are rural health anthropology, social justice, and
the environment.
xxv
xxvi About the Contributors
Jill Bamforth is Academic Director for Work Integrated Learning at the School of
Business, Law and Entrepreneurship at Swinburne University. She is committed to
researching, developing, and supporting best practice education and work-integrated
learning pathways that build economic inclusion, increase resilience, and improve
work readiness, particularly for those who are marginalized. She publishes journal
About the Contributors xxvii
articles examining how people and technology come together to transform industries
and shape lives and communities.
Sarah Bendall is a clinical psychologist and associate professor at Orygen and the
University of Melbourne. She researches trauma-informed care in youth mental
health and the development of new psychological therapies for recovery in youth
mental health. She is the author of over 80 research papers and three psychological
treatment manuals.
Christine Bigby is Professor and Director of the Living with Disability Research
Centre at La Trobe University, Australia. She has a long track record of working in
partnership with disability support organizations investigating the effectiveness of
social programs and policies aiming to support the social inclusion of adults and
older people with intellectual disabilities. Chris is a member of the College of
Experts of the Australian Research Council and the founding editor of Research
and Practice in Intellectual and Developmental Disabilities.
Simon Biggs is Honorary Professor at the School of Social and Political Sciences,
University of Melbourne. He has been Director of the Institute of Gerontology at
Kings College London and a founding member of the World Economic Forum’s
Global Agenda Council on Ageing. His interests include intergenerational relations,
older workers, elder abuse, social aspects of dementia, and social policy.
Lisa Bourke is a professor and Director of the Department of Rural Health at the
University of Melbourne. Lisa has worked in rural health for over 20 years and is
passionate about inclusion in rural communities.
Eloise Brook is Media Manager at the Gender Centre Inc. She also works as a
researcher, across gender, political science, media, and communication. Her main
focus as an academic has been the intersection of these various areas in transgender
and gender diverse lives.
Ashley Carr was a research fellow at the School of Social and Political Science,
University of Melbourne, where he worked on two national dementia studies –
dementia in the public domain and the role of regulation in dementia care – as part
of the Cognitive Decline Partnership Centre, from 2015 to 2019. He currently works
at the Victorian Electoral Commission, researching voter trends and behaviors, with
an interest in the inclusion of underrepresented groups in the electoral process.
Stephen Case is Professor and Head of Social and Policy Studies at Loughborough
University, UK. His research expertise lies in the field of youth justice, where he is
particularly focused on “Child First,” rights-compliant, and anti-risk responses to
children who offend as a means of promoting positive outcomes and behaviors. He
has conducted funded research for the Home Office, Youth Justice Board, Nuffield
Foundation, and Leverhulme Trust, and published over 60 peer-reviewed articles in
the field of youth justice.
Angela Paredes Castro is a PhD candidate at the Institute for Health and Sport at
Victoria University, Melbourne, Australia. Her research interests are issues related to
the social, psychological, and financial well-being of women, migrant communities,
and socio-economically disadvantaged groups.
Carmel Cefai is Founding Director of the Centre for Resilience and Socio-
Emotional Health and Professor in the Department of Psychology at the University
of Malta. He is joint founding editor of the International Journal of Emotional
Education. His research interests are focused on how to create healthy spaces which
promote the resilience, well-being, and psychological well-being of children and
young people.
Vivian Chávez is a public health professor at San Francisco State University. She is
a somatic movement educator and yoga teacher rooted in Guatemalan culture and
spirituality. Her scholarship explores language, power, and privilege to create inclu-
sive relationships fueled by love, solidarity, and awareness. She has presented her
work internationally in Japan, Cuba, Peru, and Argentina, studied in India, and
lectured throughout the USA.
Lucy Chipchase is a clinical dean and professor at the College of Nursing and
Health Science at Flinders University. She has extensive leadership experience in the
education and health care sector as well as professional services organizations. She
provides leadership in relation to research as it relates to mental, emotional, and
physical health and well-being, and physical activity and exercise, and is a
non-executive director on the Australian Physiotherapy Council and for Healthcare
Learning Solutions.
Charlotte Clarke is Professor of Sociology and Executive Dean for the Faculty of
Social Sciences & Health at Durham University, UK. Her research focuses on risk
management and the experiences of people living with dementia. Her interest in
citizenship and quality of life influences the ways in which she has sought to carry
out research that concerns people with a dementia diagnosis as inclusively and
democratically as possible. Charlotte has also worked at the Universities of
About the Contributors xxxi
Alan Crouch is a senior research fellow in the Department of Rural Health at the
University of Melbourne. Alan’s current research interests include the determinants
of health disadvantage in rural Victoria and globally.
Vanessa Currie is Executive Director of the International Institute for Child Rights
and Development. She has spent the last two decades working in children’s rights
with a focus on children’s meaningful participation and partnership in their
protection.
Nada DeCat is an activist who has lived as an undocumented migrant most of her
life and writes on racism and sex work. Her work “The Racism of Decriminaliza-
tion” has been published in peer sex work activist journal Tits and Sass and her latest
writing, “Aesthetic of Migrant Sex Work: Creation of White Identity and Perceived
Moral Superiority,” will be published this year as part of a book about racism and the
contemporary trafficking industry edited by Kamala Kempadoo and Elena Shih.
Jacinta Douglas is a professor and Deputy Director of the Living with Disability
Research Centre at La Trobe University, Australia. She has extensive research and
clinical experience in the rehabilitation of adults with acquired brain injury and has
authored over 140 journal articles and 10 book chapters. Her research contribution
has advanced knowledge particularly in the domains of interpersonal communica-
tion and psychosocial functioning.
Asmae Doukani is a research fellow at the London School of Hygiene and Tropical
Medicine (LSHTM). She has worked across a range of research projects involving
the development, evaluation, and implementation of e-mental health interventions
across both low- and high-income settings. She is also a PhD student at LSHTM, and
About the Contributors xxxiii
Ella Dumaresq is a dance movement therapist with practice expertise in aged care
and community correctional settings. Her PhD project explored the intersections of
dance/movement therapy, ethnography, embodied research methodologies, social
justice, and criminalization processes. Ella teaches and researches as part of the
Masters of Creative Arts Therapy program, The University of Melbourne.
Mei Lan Fang is a research fellow at the School of Nursing and Health
Sciences at the University of Dundee, and a research associate at the Science
and Technology Research Ageing Institute at Simon Fraser University.
She has developed theory, methods, and practice in health-related areas of
critical public health, ethnic and migration studies, environmental gerontol-
ogy, aging and technology, global health promotion, and mental health and
addiction.
Lee-Ann Fenge is Professor of Social Care and Director of the Centre for Seldom
Heard Voices at Bournemouth University. She uses participative approaches in her
research to involve the voices of marginalized groups and those who are seldom
heard within society. Her projects have used arts-based participatory approaches to
promote engagement with the lived experience of individuals including older people,
disabled youth, and homeless people.
Sarah Gordon leads the “World of Difference” service user academia education
and research team as part of the Department of Psychological Medicine at the
University of Otago Wellington, New Zealand. The education and research programs
being led or co-produced by the World of Difference team are focused on ending
discrimination and promoting recovery, inclusion, and respect for the human rights
of people who experience mental distress.
Marta Graça is a former social worker and an action researcher. She holds a PhD in
Education and her work focuses on sex workers’ rights. She is interested in educa-
tional sciences and sociology, with a focus on gender studies and politics of
inclusion. She works at the University of Aveiro.
Thomas E. Guadamuz received his PhD from the Johns Hopkins University
Bloomberg School of Public Health and completed postdoctoral fellowships in
social and behavioral interventions, medical anthropology, and HIV research ethics.
He studies the social determinants of HIV and STIs, violence, and substance use
among marginalized populations in Southeast Asia, including men who have sex
with men, transgender women, sex workers, and migrants.
Irja Haapala has been Senior Research Fellow at the School of Social and Political
Sciences, University of Melbourne, Senior Lecturer in Food and Nutrition in teacher
education at the University of Eastern Finland, and special editions Editor for Public
Health Nutrition. Her interests include public health nutrition and older people,
social aspects of dementia, intergenerational relations, and teacher education.
Bill Heibein was diagnosed with early-onset dementia in 2000. After a 38-year
career in public accounting, he took early retirement and retreated to his farm. Bill is
About the Contributors xxxvii
Michele Heisler is Professor of Internal Medicine and Public Health at the Univer-
sity of Michigan and Co-Director of the Michigan Center for Diabetes Translational
Research. She has developed and tested multiple peer support models to improve
health behaviors that were found more effective than comparison groups in improv-
ing diabetes outcomes. These include community health worker, peer coach, and
reciprocal peer support models.
Philippa Hemus has a deep passion for improving mental health care for all. She
works in a public hospital in a Lived Experience role and endeavors to create a space
where all services, staff, and consumers can have a trauma-informed approach and
consumer voices and experiences can be centered throughout the hospital.
Sophie Hickey is an early career researcher. She currently manages a large longi-
tudinal cohort study of First Nations mothers and children designed to provide
feedback to local service providers on best practice maternity care, which has seen
a profound reduction in preterm birth for women accessing the new model of care.
Sophie works in a multidisciplinary team and uses institutional ethnography, partic-
ipatory action research, and implementation science to improve health services for
First Nations people.
xxxviii About the Contributors
Nicholas Hill is an early career researcher located in the Social and Global Studies
Centre at RMIT University, Australia. He is a critical mental health and well-being
scholar whose work examines the lived experience of mental health services,
everyday happiness and well-being, and psychological and emotional distress.
Nicholas uses participatory and creative methods to promote alternative representa-
tions of distress and contribute to the ongoing project of social justice.
Lisa Hodge is a research fellow at the Institute for Health and Sport at Victoria
University, Melbourne, Australia. Her primary research interests include gender and
mental health and the development of research methods for investigating vulnerable
population groups.
Cathy Hope is Coordinator of the Play, Creativity and Culture Project at the Centre
for Creative and Cultural Research at the University of Canberra. Cathy has written
extensively on alternative cultures in their initial experimental phases – including
film festivals, farmers’ markets, and Australian youth radio station Triple J.
Dell Horey is an associate professor and academic advisor (coursework) for the
College of Science, Health and Engineering at La Trobe University. She has
qualifications in science and epidemiology and has a strong history in consumer
participation. Her more than 50 peer-reviewed publications cover a range of meth-
odological approaches, both qualitative and quantitative, and focus on difficult
health decisions and vulnerable population groups.
Kath Hulse is Emeritus Professor at the Centre for Urban Transition, Swinburne
University of Technology. Her primary research interest is in the housing and urban
drivers and consequences of economic, social, political, and cultural change. Her
recent research has focused on socio-economic and housing system change in areas
such as housing wealth and inequality, socio-spatial disadvantage, the decline in
home ownership and growth of the private rental sector, and sustainable housing
renovations.
About the Contributors xxxix
Boyd Hunter works at the Centre for Social Research Methods, at the Australian
National University. He is an economist who has been grappling with the issues of
social inclusion and exclusion of Indigenous people for over 25 years. His main area
of research and teaching involves the economic history of “The Indigenous Econ-
omy” and renewing Indigenous economies.
Ghouwa Ismail is a registered research psychologist at the Institute for Social and
Health Sciences at the University of South Africa, with a background in psychology,
criminology, and public health. Her research interests include the development of
measuring instruments, cross-cultural evaluation of assessment tools, and child well-
being. She also has a keen interest in community-engaged research and participatory
research methodologies.
Andy Jolly is a research associate at the Institute for Community Research and
Development (ICRD) at the University of Wolverhampton. His research explores the
interaction between child welfare and immigration control. He trained as a social
worker and before entering academia managed an advocacy project for migrant
children.
Lisa Joyce is a Health Promotion professional with a passion for health equity. She
believes all Australians have the right to make informed decisions about their health
and have equitable access to the services they need. Lisa currently works at
BreastScreen Victoria where she partners with vulnerable communities to increase
breast health literacy and reduce barriers to breast screening.
Adela Tesarek Kincaid is a faculty researcher at the Applied Research and Inno-
vation Center at Selkirk College in the West Kootenays of British Columbia,
Canada. Adele focuses on rural, community-based research and on the methodolog-
ical area of situational analysis, which she has applied to animal–human interactions
and to Indigenous relationships with animals.
Hala Kurban graduated from the School of Public Health at La Trobe University,
Australia. She conducted her honors thesis on social inclusion/exclusion among
young refugees from the Middle East under the supervision of Pranee Liamputtong.
She has published several papers from this project.
Daniel W. L. Lai is Chair Professor and Head of the Department of Applied Social
Sciences, and Director of the Institute of Active Ageing, the Hong Kong Poly-
technic University. He is a scholar in social work and gerontology, health and
aging, culture and immigration, and outcome evaluation. He has worked to inte-
grate research and practice knowledge that aims at strengthening the linkages
between social policy, social service provision, and academic teaching and
research.
Dianne Lalonde is a research associate with the Learning Network at the Centre for
Research & Education on Violence Against Women & Children (CREVAWC) at
Western University, Canada. Her role involves knowledge mobilization activities on
the continuum of gender-based violence. Dianne is also a PhD candidate (ABD) in
Political Science at Western University, where her research explores the politics of
identity and systemic oppression.
Eric Leake is an assistant professor of English at Texas State University. His areas
of research include the intersection of rhetoric and psychology as well as civic
literacies and writing pedagogy.
Barry M. W. Lee is a registered social worker, and guest lecturer with the Depart-
ment of Special Education and Counselling at the Education University of Hong
Kong. His primary areas of interest and research include masculinities, sexual health,
sexual minorities, and sexuality.
About the Contributors xliii
Kate Lessing has 20 years’ experience as a social worker in a broad range of health
and community settings. Her research interests include the use of telehealth in
mental health services, the impact of social determinants on mental health outcomes,
and centering the voice of service users through the mutual, authentic exploration
and dismantling of systemic power and privilege.
Kerrianne Markulin is a non-First Nations woman who has lived with and among
Wiradjuri people for over 20 years. Her areas of research are determined by the First
Nations people with whom she works, as is the way the research is conducted. Her
current research is a collaborative project exploring the extensive cultural signifi-
cance and influence that esteemed Wiradjuri Elder Aunty Flo Grant had on younger
Wiradjuri women in the Grant family, and the pathways she forged for younger First
Nations women.
Robyn Martin is a social work researcher from RMIT University, Melbourne. Her
research and practice focuses on the meaningful inclusion of people with lived
experience. Her specific interests include homelessness, mental distress, critical
mental health, family violence, and trauma.
Brent McDonald is an associate professor at the Institute for Health and Sport at
Victoria University. He teaches in the area of the sociology of sport, and physical
activity and health, and his research focuses on “race,” social inclusion, migration,
and gender in the context of sport in contemporary Australian society.
Katrina Skewes McFerran is Professor of Music Therapy and Head of the Crea-
tive Arts Therapy program at the University of Melbourne. She is a world leading
expert on music and adolescents and is a critical scholar who uses qualitative data
and interpretive and participatory approaches to research. She is also the creator of
the Massive Open Online Course on “How Music Can Change Your Life”
(Coursera).
Erin Flynn McKenna holds a PhD in Recreation, Sport and Tourism from the
University of Illinois at Urbana-Champaign. Her research focuses on tourism trends
that proclaim to be beneficial or supportive of host communities, and she addresses
questions pertaining to status and power. She works on projects to support people
with disabilities, including one that would use tourism as a means to create employ-
ment opportunities.
Kim McLeod is Senior Lecturer at the School of Social Sciences at the University
of Tasmania. She uses philosophically informed and arts-based approaches to
explore the social dimensions of health and well-being. Kim develops best practice
in teaching health profession students about diversity and cultural safety.
Paul Milner was a senior researcher with the Donald Beasley Institute (DBI) for
17 years, where he specialized in inclusive methods. Having recently retired from his
research role with the DBI Paul now cooks and gardens and helps with road patrol on
a Friday, all the while thinking about the places and ideas he could not have got to
without researchers with a learning disability.
Olivia Mitchell is a research fellow in Culture and Rural Health in the Department
of Rural Health at the University of Melbourne. Olivia’s research interests include
organizational change within health care, cultural inclusion, and improving access to
health care for marginalized populations.
Romana Morda is a research fellow at the Institute for Health and Sport at Victoria
University, and a registered psychologist. Her research interests include women and
leadership, examining student transition to university, and intercultural
psychology.
Haydn Morgan is a lecturer in the Department for Health at the University of Bath.
His research is primarily concerned with marginalized youth populations, examining
how engagement with sport and physical activity may facilitate access to education,
employment, and training; develop citizenship qualities; or enable young people to
accumulate and enhance various forms of capital.
Rosediani Muhamad is an associate professor and the head of the Family Medi-
cine Department at Universiti Sains Malaysia (USM), and runs a women’s and
sexual health clinic at Hospital USM. She has published around 40 papers in reputed
journals as well as book chapters, and has been serving as a reviewer for many
indexed and Publons journals, especially related to women’s and sexual health
issues.
Lucy Murrieta ’s family migrated to the USA seeking better opportunities. After
witnessing her parent’s endless labor in the agricultural fields, she realized that
education was the only way to a better future. Through education, she could
empower herself, her family, and others in the community. The desire to advocate
led her to Sunset Community Health Center where she is now Community Relations,
Outreach and Eligibility Director.
An Nguyen is currently doing her PhD at Monash University in Australia. She has a
physical disability due to polio. She had been working and researching with people
with disabilities in Vietnam for more than 10 years prior to coming to Australia. She
is interested in sexual and reproductive health among people with disabilities in
Vietnam and has published several papers resulting from her research in the last few
years.
the National Centre for Research Methods and a fellow of the Academy of Social
Sciences. Her books include What Is Inclusive Research? (2014) and (with Curtin
and Hall) Research Methods for Pedagogy (2018), both published by Bloomsbury
Academic.
Robert Nonomura is a research associate for the Centre for Research & Education
on Violence Against Women & Children (CREVAWC), and a part-time assistant
professor of Sociology at Western University, Canada. His sociological research is in
social ethics, critical theory, and inequality, with a focus on the social-structural
dimensions and intersections of gender-based violence. He coauthored the report
“Toward a Trauma- and Violence-Informed Research Ethics Module: Considerations
and Recommendations” for CREVAWC.
Youdiil Ophinni is a research fellow at the Ragon Institute of MGH, MIT and
Harvard, USA. His main work in the past decade has involved both basic and clinical
research in the field of HIV/AIDS in Indonesia.
Smita Pakhalé is a clinician scientist and clinical research chair in Equity and
Patient Engagement in Vulnerable Populations at the Ottawa Hospital Research
Institute, and an associate professor at the School of Epidemiology and Public
Health at the University of Ottawa. She also leads the Bridge Engagement Centre,
a community research office that conducts health equity research in Ottawa,
Canada.
Yvonne Parry is internationally and nationally recognized for her skills in framing
acute care and community-based research that validates improving professional
practice in complex social systems, making a major contribution to improving health
care and building stronger communities for underserviced, disadvantaged, and
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The Project Gutenberg eBook of Deux années
en Ukraine (1917-1919)
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Language: French
PARIS
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3, Rue de Rivoli, 3
1919
AVANT-PROPOS