Ellis, Wojnar, & Pettinato, 2015
Ellis, Wojnar, & Pettinato, 2015
Ellis, Wojnar, & Pettinato, 2015
org
Original Research
Introduction: Like members of any other population, transgender and gender variant people - individuals whose gender identity varies from the
traditional norm or from the sex they were assigned at birth - often seek parenthood. Little is known about the decision making and experiences of
these individuals, including male-identified and gender-variant natal females who wish to achieve parenthood by carrying a pregnancy. This pilot
qualitative study used grounded theory methodology to explore the conception, pregnancy, and birth experiences of this population of parents.
Methods: A grounded theory methodology was used to guide data collection and analysis. Eight male-identified or gender-variant gestational
parents participated in the study. Data collection included individual 60-minute to 90-minute interviews conducted by recorded online video
calls, as well as a self-administered online demographic survey. Data were collected from September 2011 through May 2012. Data saturation was
achieved at 6 interviews, after which 2 more interviews were conducted. The interviews were transcribed verbatim, and a constant comparative
method was used to analyze the interview transcripts.
Results: Loneliness was the overarching theme that permeated participants’ experiences, social interactions, and emotional responses during
every stage of achieving biologic parenthood. Within this context of loneliness, participants described complex internal and external processes
of navigating identity. Navigating identity encapsulated 2 subthemes: undergoing internal struggles and engaging with the external world. The
preconception period was identified as participants’ time of greatest distress and least involvement with health care.
Discussion: The findings of this study suggest that culturally-sensitive preconception counseling could be beneficial for transgender and gender-
variant individuals. The grounded theory produced by this pilot investigation also provides insights that will be useful to health care providers
and others working with male-identified and gender-variant prospective parents.
J Midwifery Womens Health 2015;60:62–69 c 2014 by the American College of Nurse-Midwives.
Keywords: cultural competency, gender identity, parenting, preconception care, testosterone, transgender, vulnerable populations
INTRODUCTION The current study sought to begin filling the gap in knowl-
Conservative estimates suggest that between 2% and 6% of edge by investigating the conception, pregnancy, and child-
the US population are transgender or gender variant,1 mean- birth perspectives of male and gender-variant gestational par-
ing their gender identity varies from the traditional norm ents who have undergone social or medical gender transition
(see Table 1 for definitions of gender-related terms). All prior to pregnancy.
gender-variant individuals face multiple barriers to access-
ing equitable health care,2–5 particularly in the area of repro- METHODS
ductive health.6–10 While limited research has demonstrated Grounded theory methodology as described by Glaser guided
that transgender and gender-variant individuals often de- the investigation.16 This is an inductive research approach that
sire parenthood, and can and do undertake pregnancy,11,12 requires openness of the researchers for data to inductively
published guidelines specific to gender-variant health con- emerge from the participants’ narratives.17 This approach is
tain very limited information on conception, pregnancy, and considered ideal for exploring social relationships and behav-
parenting.13,14 iors of groups when there has been little exploration of the
To date, no research has been published on physiologic contextual factors that affect individuals’ lives.18 The goal of
aspects of pregnancy after undergoing testosterone hormone our investigation was to explore social relationships and be-
therapy (HT) for masculinizing gender affirmation. Scarce havior patterns of male and gender-variant gestational parents
and conflicting information exists as to whether androgenic to guide clinical interventions.19
agents such as testosterone increase the risk of virilization Ethical approval for the protection of human subjects was
of the female fetus during pregnancy.15 No research has ad- obtained from the institutional review board at Seattle Uni-
dressed the medical or emotional consequences of HT discon- versity prior to participant recruitment. Participants were in-
tinuation or the feasibility and safety of pregnancy following formed of risks and benefits of participation, confidentiality
HT discontinuation. procedures, and their right to withdraw from the research.
Each signed consent forms prior to participating.
Address correspondence to Simon Adriane Ellis, CNM, MSN, Cedar Inclusion criteria were: 1) natal female sex; 2) lack of cur-
River Clinics, 263 Rainier Ave South, Suite 200, Renton, WA 98057. rent pregnancy at time of interview; 3) history of carrying
E-mail: [email protected] a pregnancy within the past 5 years that did not result in
62 1526-9523/09/$36.00 doi:10.1111/jmwh.12213
c 2014 by the American College of Nurse-Midwives
✦ People whose gender identity varies from the traditional normal or from the sex they were assigned at birth can and do
achieve parenthood through pregnancy.
✦ Persistent loneliness and navigating identity formed a constant and significant backdrop of daily life for all participants,
requiring a considerable investment of energy and attention.
✦ Emotional responses to the process of achieving gestational parenthood ranged from joy to intense distress, with highest
levels of distress during the preconception period.
✦ Culturally sensitive preconception counseling could be beneficial for this population. Health care providers need to better
understand and support male and gender-variant individuals undertaking pregnancy.
pregnancy loss; 4) self-identification as male or gender vari- participants who reported multiple gender identities, 4 iden-
ant at the time of conception and throughout pregnancy and tified as male, 4 as transgender, 3 as genderqueer, 3 as female-
birth; 5) disclosure of gender identity to at least some health to-male, 2 as gender variant, one as two-spirit, and one as
care providers during conception, pregnancy, and birth; 6) androgynous. Six participants reported their sexual orienta-
having given birth in the United States; and 7) fluency in tion as gay, one as bisexual, and one did not disclose sexual
English. Study participants were recruited directly by health orientation.
care and social service providers using text provided by the Six study participants had legally changed their names
authors. Additionally, several participants self-initiated re- whereas 2 had not. Six had undergone testosterone HT
cruitment efforts within their community networks. Data col- whereas 2 had not. Seven study participants had undergone
lection took place from September 2011 through May 2012. gender affirming surgery whereas one had not. Six partici-
Saturation of the data occurred at 6 interviews, after which 2 pants had a male gender marker on their legal identification,
more were conducted. whereas 2 had a female gender marker. Methods of concep-
Data collection included individual 60-minute to 90- tion, birth setting, and health care providers varied among
minute interviews conducted by recorded online video calls, participants, with the majority (n = 5) conceiving or attempt-
as well as a self-administered online demographic survey. All ing to conceive via sexual intercourse, and 6 giving birth in
interviews were conducted by the primary author, and data a hospital setting with an obstetrician-gynecologist or fam-
analysis included all authors. All transcripts were initially ily physician (see Table 2). Several participants used multi-
coded using line-by-line gerund coding to protect against ple methods of conception as a result of difficulties conceiv-
premature theory formation.20,21 Focused coding was subse- ing. For example, participants who were partnered with natal
quently used to interpret larger fragments of data through the males attempted to conceive first via sexual intercourse and
lens of frequently occurring codes, and analysis was a nonlin- then sought fertility treatment as needed.
ear process of memo writing and constant comparison guided Loneliness was the overarching theme that permeated all
by the emerging data.20 This analytical process resulted in participants’ experiences, social interactions, and emotional
the creation of a schematic representation of grounded the- responses through every stage of achieving gestational par-
ory that reflected participants’ experiences. Continued memo enthood. Within this context of loneliness, which surfaces re-
writing, review of the data, conversations with experts, and peatedly throughout participant narratives, participants de-
member checking interviews with 7 out of 8 participants fur- scribed complex internal and external processes of navigating
ther contributed to the development and affirmation of the identity. A schematic representation of the grounded theory
emerging grounded theory. that emerged from the participants’ narratives is depicted in
Figure 1.
RESULTS
In total, 15 individuals requested to participate in the study.
Navigating Identity
Of these, 12 met all participation criteria. Four were lost to
follow-up prior to interview. The final sample was 8 individ- Navigating identity encapsulated 2 subthemes and their
uals. There was no participant dropout. related social processes. The first, undergoing internal strug-
All participants self-identified as white, and they reported gles, refers to participants’ wrestling with their own sense of
a wide range of spiritual/religious affiliations. Participants also self, thinking about the most feasible method of achieving
reported a broad spectrum of gender identities and sexual ori- parenthood, and decision making about disclosure. The sec-
entations for themselves and their partners, as well as many ond, engaging with the external world, refers to participants’
levels of gender transition and gender identity disclosure (see social interactions and use of disclosure or nondisclosure to
Table 2 for additional participant demographic information). best protect self and the future child. These themes and related
Six participants reported more than one gender identity, and processes constituted an integral part of participants’ daily
the other 2 participants identified solely as male. Of the 6 lives that infused most decisions, actions, and interactions.
Undergoing Internal Struggles could be congruent with their gender identity; for others,
it was a means to achieving parenthood that was markedly
For each study participant, some degree of conflict ex-
incongruent with their identity. One participant stated that he
isted between the internal sense of self and dominant
had always wanted to be pregnant; another did not think about
social norms that define a pregnant person as woman and
the possibility until he was partnered—and then thought it
a gestational parent as mother. This conflict informed par-
would be “a really cool thing to do.” Other participants were
ticipants’ experience of achieving parenthood in the form
not interested in pregnancy itself, but stated a strong desire to
of internal struggles throughout each stage of becoming a
be a part of creating a new life:
parent.
Pregnancy Planning and the Preconception Period
Becoming pregnant started with a deliberate decision for all Even though I really hated the idea that I had to be seen
participants. For some, pregnancy was a desired state that as a woman in some places by some people to be pregnant,
Loneliness
Loneliness
Choosing Gestational Entering the Unknown Using Coping Strategies Creating a Unique
Parenthood Family Narrative
Figure 1. Male and Gender-variant Pregnancy: Navigating Identity Through the Stages of Achieving Gestational Parenthood
consistent aspect of one’s identity, usually related to gender I really went through the pregnancies in a fog. . . . I just
expression. pushed it aside. . . . I knew there was something growing
inside me but I wasn’t connecting with it as a baby. It was
Pregnancy
more of a thing, an organism, a parasite, anything. . . . I
Most participants felt a sense of relief from gaining the
wasn’t thinking of myself as a mother who’s pregnant at all.
concrete “mission” and timeline that pregnancy afforded;
nonetheless, the theme of navigating identity continued to Birth
dominate everyday life and to present pleasant surprises as Most participants described strong feelings about the birth
well as challenges. process. Some desired connection with the process, whereas
Some participants shared that they felt physically attrac- others desired disconnection from the physiologic reality of
tive or that their partner found them particularly attractive birth. For some, the idea of having a vaginal birth, with
during pregnancy, and others described a sense of embodi- their genitals exposed for extended periods of time, was emo-
ment, peace, access to self, and connection with the develop- tionally unsettling. Thus, some described a preference for
ing fetus. One participant stated: “I really liked it . . . I felt a cesarean:
really strong connection to my babies. And I don’t know if
that would make me less of a man, but I enjoyed it.” Another I want[ed] the c-section. . . . I think that emotionally it was
described gaining a sense of wholeness during pregnancy: a better choice than having to push a baby out. . . . I had
This whole process has made me more, I guess at peace with just made it so that it was—this was how we were having a
my own body and even with how I was born. . . . I’m more family, and the thought of that part of my body being . . . on
accepting of the trans part of myself, or the female part of display . . . was just a little too much for me. I didn’t want a
myself. . . . The whole pregnancy and birth has made me natural delivery.
more whole and more comfortable in my own skin, more
comfortable with myself and my past. Others strongly preferred a physiologic vaginal birth, and
described birth as a physically painful but emotionally mean-
For others, pregnancy was marked by a deep sense of dis- ingful experience. Participants who gave birth vaginally noted
connection; these participants experienced disembodiment, a lack of inhibition during labor and birth that transcended
lack of access to self, and lack of connection to the developing their usual concerns about gender identity and revealing their
fetus. One participant stated that he “hated being pregnant,” bodies to others.
and described profound loneliness about this feeling both dur-
Transition to Parenthood
ing preconception and pregnancy:
In the postpartum period, navigation of identity extended be-
I think it felt really lonely. . . . I was like am I the only one yond the immediate self and moved into the realm of the
that feels like this? Like it super sucks, like it’s scary and it’s, family unit. The process of creating a unique family narra-
um, lonely and, you know my boyfriend’s [a natal male] and tive began with developing an internal parental identity. For
he wasn’t going through it so he didn’t understand what I some participants a singular, paternal role was a comfortable
was feeling. fit; others described fulfilling dual parental roles. One partici-
pant said, “I’m serving 2 roles. I’m going to be their father, but
Another participant, who also experienced loneliness and I’m also being my own surrogate so I’m . . . the birth mother
emotional discomfort throughout pregnancy, reported: at the same time.” Another participant reflected:
Abbreviations: L&D, labor and delivery; WIC, Women, Infants, and Children.
mean he’s my kid, I had him. . . . So you know, you wanna racial, ethnic, and socioeconomic diversity; however, efforts
be fair about that too. to increase the accessibility of the study were not successful
and must be improved upon in the future. Further research
is needed to explore the experiences of gender-variant indi-
viduals from diverse racial and socioeconomic backgrounds,
DISCUSSION as well as the experiences of those who do not wish to un-
In this study, the stages leading to achieving gestational par- dergo physical transition and those who choose to breast-
enthood were consistent with that of heterosexual and les- feed. Rigorous scientific research is needed to explore the
bian parenthood.23–26 However, the journey to parenthood physiologic relationships between HT and fertility and allow
had unique features not typical for other populations of par- for evidence-based preconception and perinatal care for this
ents. The unique finding of this study was that participants ex- population.
perienced significant and persistent loneliness on their paths Despite these limitations, this research makes important
to parenthood and that, within this context of loneliness, the contributions to the limited knowledge base on transgender
process of navigating identity formed a constant backdrop and gender-variant parenting. Although the findings of this
of daily life that required considerable energy and attention. pilot study must be applied with caution related to its small
With a lack of clear models of what a positive, well-integrated, sample size, foundational knowledge contributed by this work
gender-variant parental role might look like, navigating iden- includes the identification of the preconception period as the
tity extended into parenthood as well. time of greatest distress and least involvement with health
Similar to lesbian, gay, and bisexual parents,24,27 some par- care—a finding that has bearing on the creation of culturally
ticipants felt comfortable with themselves as gestational par- responsive models of health care for this population and casts
ents, whereas others felt quite constrained by external factors new light on current standards of preconception care.
and loneliness. Also consistent with prior reports,28 partici- The experiences of participants suggest that culturally
pants articulated expectations of strained or negative expe- sensitive preconception counseling could be beneficial for this
riences with their health care providers. Although nearly all population. Simple interventions such as asking, “[A]re you
participants stated that they were “surprised” by the compas- interested in becoming a parent someday?” and if so, “[H]ave
sion and professionalism of their health care providers, the 2 you thought about how you would like to become a parent?”
participants who had not undergone HT found that their neg- may provide an entry point to health care by positioning the
ative expectations were confirmed by at least one health care provider as an informed and nonjudgmental resource. The
provider. This research also revealed that key points of ten- grounded theory produced by this pilot investigation also pro-
sion in health care settings were not limited to direct provider- vides insights that will be useful to health care providers and
to-patient interactions (see Table 3). In social contexts, others working with male and gender-variant prospective ges-
participants were acutely aware they were transgressing ex- tational parents.
pectations that male and gender-variant people will not use Key strategies for patient advocacy and addressing points
their bodies to bear children. This led to feelings of loneliness of tension in perinatal health care settings emerged from par-
and marginalization. ticipant narratives (see Supporting Information Appendices
As with any research, this study has several limitations. A and B). These strategies included: providing training to all
The intended sample for this study aimed to include greater staff, documenting preferred name and pronouns clearly in