1324288818compendium of Best Practices CE 29 Sep 2022
1324288818compendium of Best Practices CE 29 Sep 2022
1324288818compendium of Best Practices CE 29 Sep 2022
PREFACE
As India continues to move towards fulfilling our goal of a TB Mukt Bharat in
2025, it is now more important than ever to reflect on the approaches we have taken
to eliminate TB and highlight the learnings that have emerged from successful
interventions across the country. The Central TB Division’s sub-national certification
process has identified that we are on track in many geographies to achieving the
Honourable PM’s vision of TB elimination by 2025.
In May 2021, the Central TB division shared the community engagement toolkit for
substantiating the efforts of community engagement activities. Subsequent to this,
in September 2021, a community engagement guidance document was released by
Central TB division for operationalizing TB Champion engagement, TB Forums,
community structure engagement and Person Support Groups, in the States/UTs
across the country. Now, it is of key importance to bring the ‘what’ and ‘how’ of best
practices that are improving the identification and notification of persons with TB,
enabling persons with TB to avail of benefits offered by the government, mitigating
the stigma associated with TB, and creating a supportive environment for persons
with TB and their families, resulting in successful outcomes.
This compendium emerges from the ‘National Workshop on Best Practices in
Community Engagement for Ending TB’, held in New Delhi on September 14-15,
2022. The consultation workshop brought together the community, government,
and national TB partners to a common platform to share, deliberate, and reflect
on what has worked well, and the potential for community-based models in ending
TB to be adopted and scaled. The best practices showcased in this document are
notable examples of person-centred and community-driven approaches, several of
which have achieved results through multisectoral collaboration of stakeholders.
The recommendations on their replicability and the potential for scale-up may be
especially useful for states and their partners organizations to adapt these innovations
at the community level.
As the NTEP aims to accelerate TB elimination efforts through the recently-
launched Pradhan Mantri TB Mukt Bharat Abhiyaan, we urge state program
representatives and our partners to make the best use of this compendium as they
formulate their action plans. We appreciate the ongoing commitment of States/
UTs to fulfill the Honourable Prime Minister’s vision of a TB-free India, and look
forward to learning from and sharing their experiences in the coming months
and years.
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Community Engagement in Ending TB: Best Practices Compendium
CONTENTS
Sl. No. Abstract Title State Page No.
TRACK A: COMMUNITY ENGAGEMENT IN ENDING TB 1 - 20
1 Jeevika model : Community Engagement in Ending TB Bihar 2
2 Using a Community Accountability Framework for TB Stigma Reduction Chhattisgarh 6
3 Har Ghar Dastak: A state-level initiative for intensified active case finding Jammu & Kashmir 9
4 Approaching TB elimination through community engagement Karnataka 11
The Community Accountability Framework (CAF): An approach to
5 strengthen community ownership to improve the quality of care in TB Odisha 14
services
Mapping of priority vulnerable populations to bridge the gaps in the
6 Telangana 18
delivery of TB prevention and care services
TRACK B: PERSON-CENTRED MODELS FOR TB CARE 21 - 30
Behaviour Change Solutions triggering health-seeking behaviour towards
1 greater case finding and treatment adherence of TB in 9 TUs of Baksa, Assam 22
Dibrugarh & Kamrup(M) Districts
2 Differentiated TB care model Karnataka 25
3 One Family: A TB prevention care and support service Telangana 28
TRACK C: CONVERGENCE AND COLLABORATION (MULTI-SECTORAL
ENGAGEMENT)
31 - 51
ii
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Community Engagement in Ending TB: Best Practices Compendium
GLOSSARY
AB-HWC Ayushman Bharat Health & Wellness Centre
ACF Active Case Finding
ACSM Advocacy Communication and Social Mobilization
ADS Area Development Society
AI Artificial Intelligence
ALLIES Accountability Leadership by Local communities for Inclusive, Enabling Services
ANM Auxiliary Nurse Midwifes
ARD Animal Resource Department
BAP Block Action Plans
BCS Behaviour Change Solutions
BDC Block Development Council
CAF Community Engagement Framework
CCs Community Coordinators
CDS Community Development Society
CHO Community Health Officers
CS Community Structure
CSG Care and Support Groups
CSGMs Care and Support Group meetings
CTD Central TB Division
DCM Differentiated Care Model
DDC District Development Council
DMCs Designated Microscopy Centres
DRTB Drug-resistant TB
DSTB Drug sensitive TB
FHC Family Health Centre
GP Gram Panchayat
GPAAA Graama Panchayath Arogya Amrutha Abhiyaana
HCP Health Care Providers
JHI Junior Health Inspector
JPHN Junior Public Health Nurse
KII Key Informant Interview
iii
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Community Engagement in Ending TB: Best Practices Compendium
iv
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Community Engagement in Ending TB: Best Practices Compendium
TRACK A:
COMMUNITY
ENGAGEMENT IN
ENDING TB
1
Community Engagement in Ending TB: Best Practices Compendium
BIHAR
Jeevika model: Community Engagement in Ending TB
Sub Track:
Involvement of formal and informal community groups to bridge gaps in TB referrals
and testing
Highlights
• Community structures like Jeevika
can reach each and every individual
in the community.
• They are working to generate
awareness in the vulnerable
community and refer presumptive
persons. They are also supporting
the treatment adherence of persons
with TB, and offer linkages to non-
medical support, e.g. nutrition
support.
• 2377 Jeevika members from 1216
Jeevika groups in three districts of
Bihar have been trained on TB to
conduct community engagement
activities
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Community Engagement in Ending TB: Best Practices Compendium
The National Strategic Plan (NSP) of the National TB Elimination Programme (NTEP) for 2017-25
emphasizes the need for the community’s active participation in ending TB. KHPT is implementing
‘Breaking the Barriers’ project in Bihar funded by USAID for migrants and the urban vulnerable
population.
Objectives:
To develop and implement community engagement strategies for vulnerable population groups such as
the urban vulnerable and migrants for increased case detection, notification and successful treatment
outcomes.
Overall approach
and Key Strategies:
The following activities
have been undertaken:
• C o n s u l t a t i o n / k e y
informant interviews
and interactions with
persons working for TB Community engagement by Jeevika groups
control in the district
• Validating information through focus area mapping
• Shortlist formal, informal and traditional community networks ( Jeevika Groups) that exist
within each of the vulnerable groups using a checklist and conduct consultation with shortlisted
groups
• Conduct perspective-building workshops with the key leaders from these selected Jeevika
Groups on health and TB, the community’s role, PwTB needs and vulnerabilities, and linkages,
and develop a local action plan
• Regular handholding meetings with Jeevika (cluster meeting, Voluntary Organization meeting
& SHG Meetings)
Implementation
The project’s duration is for four years (March 2020 - March 2024). The table below provides information
on the geographies, vulnerable population, and coverage as part of the initiative.
State Districts Type of No. of No. of Total Total
vulnerable TUs Focus Area Population in Vulnerable
population Mapping the TUs Population
sites in the TUs
covered
Urban Vulnerable
Bhagalpur 8 45 462974 86297
Population
Purnea Migrants 8 329 2248052 154170
Bihar
West Champaran Migrants 8 249 2837797 318136
Migrants & Urban
24 623 5548823 558603
Vulnerable
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Community Engagement in Ending TB: Best Practices Compendium
Outcomes:
Mapping of Vulnerable Population:
3 No of Perspective Building
22 40 34 96
Workshops conducted
1 No of Awareness programs
1004 1393 1618 4015
conducted by Jeevika groups
Key Recommendations:
To effectively use the community structures, it is necessary to follow below steps-
• Training of Health staff/Trainers at state/district level
• Identification of villages/sites with a significant vulnerable population
• Listing and training of selected Community Structures/Jeevika Groups working for vulnerable
population
• Handholding of CS during weekly/monthly meetings
• Supporting CS in awareness generation, screening and referral
• Data analysis and gap identification
• Documentation of community engagement effort
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Community Engagement in Ending TB: Best Practices Compendium
5
Community Engagement in Ending TB: Best Practices Compendium
CHHATTISGARH
Using a Community Accountability Framework (CAF) for TB
stigma reduction
Sub Track:
Role of community networks in TB stigma reduction activities in vulnerable settings
Highlights
• Through a consultative process
with the state NTEP, the
TB Champions ideate, and
generate resources to address
identified gaps in the TB
response, especially stigma
• CAF is being implemented
in three districts, covering a
population of approximately
48.26 lakh
• About 9,358 PwTBs were
registered on the Ni-kshay
Portal in three districts in one
year
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Community Engagement in Ending TB: Best Practices Compendium
Objectives
Testing a Community Accountability Framework (CAF) to improve the quality of TB care and services.
7
Community Engagement in Ending TB: Best Practices Compendium
PRI members sensitized on TB have also contributed to TB awareness for stigma reduction. They
have utilized public gatherings for TB awareness and IEC distribution. The sensitization of the school
children on TB have resulted in creation of community volunteers who discuss TB in their families
and identify those with TB symptoms. They inform Mitanins or Auxiliary Nurse Midwifes (ANMs)
about family members with symptoms of TB. Spreading awareness among school children about TB
promotes reduction in TB-associated stigma in the community.
Implementation
The ALLIES project is currently being implemented across three districts, namely Raipur, Durg, and
Balod in Chhattisgarh, covering a population of approximately 48.26 lakh.
Outcomes
About 9,358 PwTB were registered on the Ni-kshay Portal in three districts in one year. TB Champions
covered approximately 3,841 PwTBs which is about 41% of the total PwTBs covered.
Key recommendations
From the experience so far, we can say that the CAF has the potential to reach the last mile towards
TB Elimination, because it attempts not only to identify gaps but also to address them.
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Community Engagement in Ending TB: Best Practices Compendium
Sub Track:
Involvement of formal and informal community groups to bridge gaps in TB referrals
and testing.
Highlights
JAMMU &
• Har Ghar Dastak is a state- KASHMIR
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Community Engagement in Ending TB: Best Practices Compendium
Objectives
• Screening the whole population to detect active/presumptive TB case, reducing the risk of poor
treatment outcomes, and adverse social and economic consequences of TB for the individual,
which in turn can reduce the prevalence and deaths from TB.
• Reducing the duration of TB transmission through active case finding.
• Screening to help identify people who are at a particularly high risk of developing active TB in the
future and thus may require repeated screening.
Implementation
The Har Ghar Dastak initiative was started on December 6, 2021, and continued until the end of April
2022, covering all districts of Kashmir division and a target population of rural, urban, tribal, and hard-
to-reach areas. Through this initiative, a total of 109554 presumptive person were identified, out of
which 17 persons with confirmed TB were detected.
Outcomes
Initially, 56513 presumptive persons were identified, of which 7 with TB were detected in December
2021. There was an increasing trend of identification and detection, and by the end of April 2022,
109554 presumptive persons had been identified, and 17 persons had been detected with TB.
Key Recommendations
All basic facilities should be made available across all health facilities for scaling up of initiatives
like this to achieve targets.
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Community Engagement in Ending TB: Best Practices Compendium
KARNATAKA
Approaching TB elimination through community engagement
Sub Track:
Involvement of formal and informal community groups to bridge gaps in TB referrals
and testing.
Highlights
• The primary objective of
the community engagement
approach is to empower persons
with TB and caregivers among
the vulnerable population and
to create an enabling and non-
stigmatizing environment that
can support their treatment
journey
• The model actively engages
with issues of those diagnosed
A
K
ATA
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Community Engagement in Ending TB: Best Practices Compendium
enhancing the accountability of health services and improving the quality of care. It plays a critical role
in the mission to end TB by supporting early case identification, treatment completion, and scale-up of
TB preventive interventions, while reducing/preventing stigma and discrimination associated with TB,
and addressing the social determinants of TB.
Objectives
The objective of community engagement activities is to empower persons with TB and caregivers
among the vulnerable population and to create an enabling and non-stigmatizing environment that can
support their treatment journey.
Implementation
Formal SHGs in districts have been enlisted and sensitized through the TB programme, and they are
actively involved in symptom screening and referral activities. Similarly, under the Breaking the Barriers
project they have created a pool of individuals called community structures, which include SHGs, youth
groups, informal groups, unions etc.
TB Champions are capacitated and sensitized on TB and their perspective on TB is built. They are
equipped with communication and advocacy skills, and mentored to carry out these activities. Increased
involvement of TB Champions in in-person care and support and advocacy initiatives, working with
Care Support Groups, community structures, and health officials at different levels to support. This
leads to the creation of an enabling environment at the community level. The Champions facilitate
interactions with key stakeholders such as the healthcare providers and NTEP staff, using community-
friendly tools for advocacy at the local level.
Care and Support Groups (CSG) or PwTB-provider meetings also serve as a platform for TB and
their caregivers to support and motivate one another to complete their treatment by sharing their
experiences regarding treatment, consumption of nutritious food, and other concerns like stigma and
discrimination. Persons with TB may also be provided nutrition support and linked to social welfare
schemes for which they are eligible, such as the Ni-kshay Poshan Yojana. The CSGs help staff identify
persons with TB (PwTB), and caregivers as TB Champions actively play a role in addressing systemic
issues by providing feedback to local stakeholders on the quality and availability of drugs and services,
and whether or not they meet person-specific needs.
The Kshaya Muktha Karnataka (TB free Gram Panchayat) programme has conducted IEC activities,
verbal screening for TB in the villages, and linked PwTB to other social welfare schemes.
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Community Engagement in Ending TB: Best Practices Compendium
All these community engagement models actively engage with issues of those diagnosed with TB, link
them to available services through frontline workers and state-mandated structures, and address gender
barriers and stigma to create an enabling environment among communities for PwTB.
Outcomes
• About 657 TB champions have been identified, 377 trained and 473 engaged in various community
engagement activities. About 200-250 SHGs have been trained in the districts of Mandya and
Gadag and have actively involved in TB screening and referral activities, as well as awareness
generation activities.
• A minimum of two person-provider meetings are held every month in each taluk at every district.
• Gram Panchayats have started linking PwTB to various social welfare programs, including nutrition
support, employment, or livelihood under the Kshaya Asare program.
• TB sollisi GP gellisi, (TB Haarega Desh Jeetega) is in campaign mode, through which all GPs have
planned various IEC activities like street plays, essays and quiz competitions in school, colleges.
• Using the health management kit Gram Panchayats conducted 11,116 non-communicable disease
screening camps and screened 4,92,951 persons;12,50,816 individuals were screened under the
Kshaya Nirvana program for TB and referred for testing.
Key recommendations
All these community engagement activities will lead to the active participation of the community
and make them take the responsibility of TB elimination into their own hands.
Conclusion
Community engagement activities will in turn lead to a people’s movement or Jan Andolan in real
terms. Such activities will improve the coverage of specific vulnerable populations, such as urban
vulnerable groups, tribal communities, migrants, and mining/industrial workers, and will contribute
to increased case notification, and improved successful treatment outcomes in drug-sensitive TB and
drug-resistant TB.
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Community Engagement in Ending TB: Best Practices Compendium
ODISHA
The Community Accountability Framework (CAF): An approach
to strengthen community ownership to improve the quality of care
in TB services
Sub Track:
Promoting partnership between Healthcare Providers and TB communities to strengthen
person-centred care.
Highlights
• The Community Accountability
Framework aims improve the
environment for TB elimination
by promoting community action
for accountability.
• CAF processes are being
implemented in 28 Tuberculosis
Unit (TUs) in three districts of
Odisha keeping high burden
TUs a priority.
• The approach has shown
improvements in Ni-kshay
Poshan Yojana bank linkages,
timely treatment initiation, and
treatment adherence.
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Community Engagement in Ending TB: Best Practices Compendium
Objectives:
To improve the environment for TB elimination by promoting community action for accountability.
Implementation
These CAF processes are being implemented in three districts of Odisha, namely, Angul, Bhubaneshwar,
and Mayurbhanj, keeping high burden TUs a priority. These include eight TB units (TUs) in Angul,
a district of the industrial belt; three TUs in Bhubaneswar, an urban belt, and 17 TUs in Mayurbhanj,
a district in the tribal belt. The implementation of CAF was initiated in April 2021 and is continuing.
Through this process, the following are the major activities that are undertaken: local level advocacy
with Health Care Providers (HCP), Panchayati Raj Institution members, and other community-based
stakeholders; community level awareness programs; addressing TB relating stigma; supporting family
visits, and contact tracing in coordination with HCPs. This project (ALLIES) is being implemented by
REACH with support from the United States Agency for International Development (USAID).
Outcomes
There have been significant improvements over this period with the active support of the TB care
program in the areas of Ni-kshay Poshan Yojana, treatment adherence, psychosocial support, family
visits, counselling, and so on. The following graphs highlight the trends.
Graph-01: Proportion of PwTBs who submitted bank documents for NPY linkage within one week, Angul
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Community Engagement in Ending TB: Best Practices Compendium
Graph-01 shows the trend of bank seeding within a week of treatment registration. The graph shows
how coordination and consultation at the field level contributed to the improvement of this indicator
over a period of time. During the CAF implementation process, hand-holding support towards bank
linkages under NPY and coordination at the community level is evident in the positive trends of this
indicator.
Graph-02: Proportion of PWTBs who reported drug interruption during course of treatment, Mayurbhanj
Graph-02 shows the trends in responses of PwTB from the TUs of Mayurbhanj who were assessed
under CAF on their drug interruption over the months from October 2021. The dip in data on drug
interruption depicts a significant impact on treatment adherence due to the regular coordination and
consultation between the treatment supporters, PwTB, and health staff.
Graph-03 shows the trends in the timeliness of the treatment initiation. The data covered here are of
responses from persons with Drug sensitive TB (DSTB) in Mayurbhanj. There have been positive
trends over this period in the treatment initiation within an ideal time frame, i.e. 3 days of diagnosis.
With the active involvement of TB Champions in coordination with the health staff in Mayurbhanj,
this margin of delay in treatment initiation has been addressed, and by end of August 2022, 99% of
PwTB reported that they had initiated their treatment not later than 3 days from the time of their
diagnosis.
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Community Engagement in Ending TB: Best Practices Compendium
Graph- 04: Proportion of PwTB initiated on treatment within 0-3 days of diagnosis, Bhubaneswar
Graph-04 shows the trends of timeliness in initiating the treatment. The data covered here is of responses
from people with DSTB who are currently on treatment. It shows the positive trend over these periods
in the treatment initiation in an ideal time frame, i.e. 3 days of diagnosis, through regular consultation
by the TB Champions in Bhubaneshwar with the Senior TB Supervisors and TB Health Visitors. It
has addressed this margin of delay in treatment initiation, and by end of August 2022, 98% of PwTB
reported that they had initiated their treatment within 3 days of their diagnosis and not later than that.
Key recommendations
• Handholding support and coordination between HCPs and TB Champions can strengthen
the TB elimination programme.
• Utilizing the expertise of TB Champions as community mobilizers and advocates can strengthen
the TB response.
• TB Forum Meeting are opportunities for TB Champions to share their best practices and enable
a consultative process to help improve the quality of care and services in TB.
• Cross-learning visits between districts are an opportunity to highlight the innovations of district
programs for a positive impact on TB elimination in the state.
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Community Engagement in Ending TB: Best Practices Compendium
TELANGANA
Mapping of priority vulnerable populations to bridge the gaps in
the delivery of TB prevention and care services
Sub Track:
Involvement of formal and informal community groups to bridge gaps in TB referrals
and testing
Highlights
• Mapping was conducted in 23
Tuberculosis Units (TUs) in four
districts of Telangana, with a
population of 6.9 million.
• The mapping exercise was one
of the foundational activities
that systematically collected and
collated information on the spread
of the vulnerable population, their
socio-demographic details, and
also information on affordability AN
A
NG
and availability of health care TE
LA
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Community Engagement in Ending TB: Best Practices Compendium
Objectives
The mapping exercise was one of the key foundational activities that systematically collected and
collated information on the spread of the vulnerable population, their socio-demographic details, and
also information on affordability and availability of health care services, socio-cultural barriers etc. The
core objectives of mapping were:
• Identification and prioritization of localities/sites where vulnerable populations are concentrated
• Identification and listing of community structures - informal groups including Self-Help Groups,
labour unions, and youth associations - working in these localities, which can support sustainable
behaviour change for the prevention of TB, improved case detection, and successful treatment
outcomes
Implementation
The mapping exercise was conducted in Telangana during September 2020-March 2021. Data was
collected by the Community Coordinators (CCs) employed by the BTB project for implementation
of the project activities. Involvement in data collection provided them with the opportunity to get
familiar with the community, as well as build a rapport with the NTEP staff and community leaders. In
each of the states, a two-day orientation was organized to train the CCs on the tools, selection of key
informants, and ethics of data collection. Following the orientation, practice sessions were conducted.
Outcomes
Overall, 97 key informant interviews (KII) were conducted in Step-1 in Telangana over six months. We
identified 770 population clusters, which included a vulnerable population size of 2.1 million with 55%
men and 45% women. Out of these, the urban population majorly residing in slums was the dominant
vulnerable group contributing to 72% of the total estimated population size; this was because mapping
was carried out mostly in urban TU clusters. Apart from this population, 11% were factory or industrial
workers, 13% tribal, 3% construction site workers, and another 2% belonged to various other vulnerable
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Community Engagement in Ending TB: Best Practices Compendium
groups. Additionally, it was found that around 40% of the sites reported the presence of persons with
TB, over 60% of the were situated within 1-2 km distance from the nearest public health institution.
Around 43% of the sites reported the presence of community structures who work with vulnerable
groups, out of which nearly 70% were self-help groups (SHGs).
Key recommendations
There are no proven models/approaches that demonstrate success in addressing TB in the unique
socio-cultural and economic contexts of these population groups which are identified as ‘vulnerable’
as per the national guidelines. The learnings from this mapping exercise can potentially help in
identification of the clusters of specific key priority populations in the context of TB.
The mapping process adopted helped in identifying priority populations and to understand their
geographic spread, which are essential to devise relevant TB response strategies that will help to
detect TB and improve treatment outcomes among these groups, thereby accelerating TB response
at the national level. It is recommended that this approach be implemented across all TUs of
NTEP districts.
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Community Engagement in Ending TB: Best Practices Compendium
TRACK B:
PERSON
CENTRED
MODELS FOR
TB CARE
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Community Engagement in Ending TB: Best Practices Compendium
ASSAM
Behaviour Change Solutions triggering health-seeking behaviour
towards greater case finding and treatment adherence of TB in 9
TUs of Baksa, Dibrugarh & Kamrup(M) Districts
Sub Track:
Psychosocial approaches for treatment adherence interventions
Highlights
• Develop and scale up
effective behaviour change
operational models that
improve coverage of
vulnerable populations
(4,88,488) across the 9 TUs.
ASSAM
Introduction
The government of India aims to eliminate TB by 2025. In order to identify and treat persons with TB,
including those who are not diagnosed, there is a need for diverse approaches. Vulnerable populations
like urban vulnerable, mining, migrants, tribal, industrial, and tea garden workers have a higher risk
of developing TB compared to others due to occupational hazards, geographical limitations, socio-
economic inequalities, stigma, and gender discrimination.
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Community Engagement in Ending TB: Best Practices Compendium
In order to ensure they are reached out to a behavioural change intervention guided by behavioural
economics approach that has considered the unique sociocultural contexts of individual vulnerable
groups was piloted in the three districts of Baksa, Dibrugrah and Kamrup (M). Implementation of
these innovative behavioural change solutions (BCS) has resulted in faster TB notification and better
treatment adherence among vulnerable populations.
OBJECTIVES:
• Develop and scale up effective behaviour change operational models that improve coverage of
vulnerable populations (4,88,488) across the 9 TUs.
• Increased case notification, and improved successful treatment outcomes in DS TB and DR TB.
Approach
• Existing Community Structures (SHGs, VHSNCs, VDP, Unions, Mothers/Youth Clubs, other
local associations, etc.) from the vulnerable communities were identified, trained and engaged in
TB response activities.
• The selected community structure leaders undergo capacity-building training on the basics of TB,
followed by regular handholding and guidance on organizing local activities that can influence
health-seeking behaviours among the larger community.
• Active involvement of community structures in leading these local activities in support of TB
Elimination, demonstrates high ownership and stake of the communities.
Key Activities
• Promote positive messaging & awareness (IEC) around TB in communities.
• Refer TB symptomatic for testing.
• Support in DSTB & DRTB notification.
• Mobilise support for PwTB & families (nutrition, counselling, social schemes), while facilitating
treatment adherence.
• Increase demand for services areas.
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Community Engagement in Ending TB: Best Practices Compendium
Outcomes
• Behaviour change solutions are supporting faster TB notification and better treatment adherence
among the vulnerable.
• Greater ownership from communities due to the ease of usage of the solutions.
• District & State NTEP find these very promising.
Name of the BCS Achievement till Person reached/ BCS outcomes
31st August 2022 Diagnosed
TB Soochna 43 sites coverage 346537 reached Increased footfall for TB
related services
TB Jaanch Coupon 1741 coupons distributed 206 diagnosed with TB Conversion rate of 11.83%
Starter Kit Provided to 229 PwTB 228 used starter kit 100% adherence. 1 expired
Health Auto 72 Persons benefited 11 diagnosed Conversion rate of 15.27%
Key Recommendations
• Scientific approaches like behavioural economics can be leveraged successfully to address the
needs of communities.
• Use of such approaches can help policymakers and health care service providers to better
understand the needs of the vulnerable communities and design policies accordingly.
• Several of the BCS may be piloted as Best Practices in wider geographies.
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Community Engagement in Ending TB: Best Practices Compendium
KARNATAKA
Differentiated TB care model
Sub Track:
Novel approaches to address difficult psychosocial attributes (such as alcoholism, living
alone, elderly, etc)
Highlights
• Introduce differentiated PwTB
care based on the assessment
of clinical parameters and
institutionalize a comprehensive
service delivery package for
rapid reduction of preventable
mortality among Persons with
TB.
KA
ATA
RN
KA
25
Community Engagement in Ending TB: Best Practices Compendium
Objectives:
Introduce differentiated person care based on the assessment of clinical parameters and institutionalize
a comprehensive service delivery package for rapid reduction of preventable mortality among Persons
with TB.
Approach
• Not all PwTB are same
• The mortality rate was found to be 3 times higher
among PwTB with any one of these risks when
compared to PwTB having no risks
• DCM prioritises persons through a Risk And
Needs Assessment process to provide personalized
need-based care and support services
Key Activities
• Assessment of persons with active pulmonary TB
• Clinical
• Lab Based
• Imaging
• Risk Stratification of PwTB for referrals
• Referral for hospitalization
• In-person care package
• Follow-up examinations of PwTB
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Community Engagement in Ending TB: Best Practices Compendium
1000
820
(100%)
800
600
423 (52%) 423 (100%)
400 235
(29%) 245 (30%) 235 (56%) 245 (58%)
200 (8%)
68 68 (16%)
0
Total Severe Severe Severe TB - Severe TB - Severe TB Severe TB - Severe TB - Severe TB -
assessed TB TB -Nutr Resp insuff. Unable to Nutr Resp insuff. Unable to
stand stand
Note: The proportions will not add up to 100% as there could be overlap of the severe TB indicators in one patient
Outcomes
• Currently a Commissioner order is in place that every Taluka Hospital and District Hospital is to
allow 2-4 beds for PwTB
• In Karnataka, Ayushman Bharat covers PwTB with insurance
Key Recommendations
• It is important to offer a person-centric package of care, not just TB services.
• The aim is to prevent death. The simple criteria are doable by the Medical Officer
27
Community Engagement in Ending TB: Best Practices Compendium
TELANGANA
One Family: A TB prevention care and support service
Sub Track:
Psychosocial approaches for treatment adherence interventions
Highlights
• Care and Support Group
meetings (CSGMs) aim to
empower persons with TB by
promoting self-confidence and,
and to nurture them into TB
Champions/Advocates.
• CSGMs are being conducted
in 23 Tuberculosis Units across
5 districts in Telangana since
October 2020.
• Between October 2020 - July LA
NG
AN
A
TE
2022, about 1355 CSGMs were
organized, and 107 Care Support
Groups have been formed.
• Around 213 TB champions have
provided support through 517
CSGMs
28
Community Engagement in Ending TB: Best Practices Compendium
It has been evident through years of public health experience with PwTB that psychosocial counselling,
peer support, timely guidance, and building confidence are important drivers for successful treatment
outcomes. Addressing these barriers requires a multi-pronged approach that is defined and driven by
individual needs and contexts of PwTB.
Bringing PwTB together as ‘One Family’ to discuss and provide mutual supportive guidance is an
important and novel approach. With a vision to eliminate TB, the state of Telangana through the
Breaking the Barriers, aims to provide TB prevention care and support services to PwTBs. To achieve
this, the program has initiated a model of ‘Care and Support Group Meetings’ (CSGMs) to address
and navigate solutions to ensure successful treatment outcomes.
Objectives
The goal of CSGMs is to empower PwTB by promoting self-confidence, and instilling hope for the
future, and nurturing them into TB Champions/Advocates. The core objectives of CSGMs are:
• To enable PwTB-friendly interactions between PwTB and health care providers which help them
overcome clinical doubts, psychological issues, and stigma faced by PwTB. Similarly, common
concerns related to treatment, nutrition, follow-up tests, infection control, and side effects are
raised through a friendly discussion.
• To serve as a platform for PwTB and their caregivers to support and motivate one another by
sharing their experiences regarding treatment, consumption of nutritious food, and other concerns
of stigma and discrimination faced by PwTB, and also address the supply system at facility level.
Implementation
CSGMs have been conducted as part of the BTB project in 23 Tuberculosis Units (TUs) across five
districts in Telangana since October 2020. The key target groups are industrial workers, tribal, and
urban vulnerable population groups.
The duration of the CSGMs range between 45 minutes to 1 hour, with an average participation of 6-7
PwTB and 3-4 caregivers. The MO of the DMC addresses the medical aspects while Senior Treatment
Supervisors (STS) / BTB staff members brainstorm on the non-medical needs. The PwTB present
are encouraged to speak and discuss solutions using the behaviour change communication materials
developed by the project.
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Community Engagement in Ending TB: Best Practices Compendium
Outcomes
About 1355 CSGMs were organized, and 107 Care Support Groups formed between October 2020 -
July 2022. About 5971 individual PwTB and 2953 caregivers participated in these meetings. Similarly,
87% of these meetings (1178/1355) were facilitated by DMC staff. Around 213 TB Champions have
been nurtured, who have provided peer support to during 517 CSGMs.
These meetings were not discontinued even during the COVID-19 pandemic. CSGM members formed
a WhatsApp group and meetings were held virtually. Mini–CSGM Groups have been formed in tribal
areas to hold meetings at local level so that people do not have to travel long distance for CSGMs to
DMCs and TUs.
Key recommendations
To sustain the intervention for improved treatment outcomes, this activity should be included as
a performance indicator, which can be captured through the Ni-kshay reporting system for review
and assessment for betterment. Based on the qualitative feedback and reference checks on the use
and effectiveness of Behaviour Change Solutions (BCS), with specific reference to the TB Mukt
Certificate (given to PwTBs who successfully complete their treatment), it is recommended for
implementation across all TUs of NTEP districts.
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Community Engagement in Ending TB: Best Practices Compendium
TRACK C:
CONVERGENCE
AND
COLLABORATION
(Multi-Sectoral
Engagement)
31
Community Engagement in Ending TB: Best Practices Compendium
ASSAM
Women-led Community Structures supporting ACSM and Active
Case Finding in Baksa District
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors
Highlights
• The community structure
engagement approach covers
a vulnerable population of
1,54,405 across three blocks
in Baksa district.
• CS members are actively ASSAM
32
Community Engagement in Ending TB: Best Practices Compendium
Objectives:
• Develop and scale up effective
behaviour change operational
models that improve coverage of
vulnerable populations (1,54,405)
across the 3 TUs of Jalah, Goreshwar
and Mushalpur
• Increased case notification and
improved successful treatment
outcomes in DS TB and DR TB
A community structure meeting in progress
33
Community Engagement in Ending TB: Best Practices Compendium
Implementation
The geography included Goreshwar, Jalah and Mushalpur blocks in Baksa districts covering a total
vulnerable population of 1,54,405 under the Breaking the Barriers project implemented by KHPT
and supported by USAID . This implementation began in January 2022 and will continue until
March 2024.
Outcomes
• CS members were offered First Informant Incentive cheques by NTEP, in recognition of their
contribution.
• Some CS members actively participate in Active Case Finding, door-to-door screening and sputum
collection. In recognition of their support, NTEP has offered them gloves and masks.
• Extension of non-medical support is being provided.
• CS members form an are leading advocacy initiatives.
34
Community Engagement in Ending TB: Best Practices Compendium
Key recommendations
• Capacity-building exercises should be scaled up for all the CSs across the whole district, in
alignment with the CTD Guidance Document.
• CSs can be more involved in ACSM activities
• A cadre of social advocates from within the communities can be developed.
• The most active CS members can be involved in appropriate platforms like the District TB
Forum.
• There can be increasing participation of CSs in the TB response.
35
Community Engagement in Ending TB: Best Practices Compendium
ASSAM
Students contribute to TB awareness and screening in three
districts of Assam
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors
Highlights
• Students are trained as Change
Agents to raise awareness
and screen population to
improve coverage of vulnerable
populations in nine TUs covering
a population of almost 5 lakh.
ASSAM
36
Community Engagement in Ending TB: Best Practices Compendium
seeking behaviour among communities. The teaching fraternity has been extremely supportive of the
entire initiative.
Objectives
• Training students as Change Agents in developing and scaling up effective behaviour change
operational models to improve coverage of vulnerable populations (4,88,488) across nine TUs in
Baksa, Kamrup(M) and Dibrugarh.
• Sensitization and symptomatic screening of the vulnerable population by students.
• Increased case notification, and improved successful treatment outcomes in DS TB and DR TB.
• Establish a robust reporting and responsive mechanism to counter TB, and related health issues in
the community.
37
Community Engagement in Ending TB: Best Practices Compendium
Implementation
Geography covered:
Symptomatic Assessment by Students
Goreshwar, Jalah, Mushalpur, 35000
Pandu, Notboma, MMCH, 30000
Dibrugarh DTC, Moran & 25000
20000
Naharani TUs.
15000
10000
Total Vulnerable
5000
Population: 4,88,488 0
No of No of people No of No of No of No of
Time Period: June 2022 till assesment screened referrals schools students teachers
December 2022 sheet involve involve involve
distributed
Outcomes
Excellent Support from teaching fraternity.
40 schools, 384 teachers and 7705 students supported the pilot phase, resulting in subsequent
planning on larger scale.
Students form an excellent Pressure Group and have the capacity to transform into great advocates.
They form a potent force in promoting health-seeking behavior among vulnerable populations.
This move has been supported by the communities as well.
The concept has been appreciated by officials of the Bodo Territorial Council, with prospects of
scaling up the intervention.
38
Community Engagement in Ending TB: Best Practices Compendium
Greater demand generation and higher participation in the ‘Care & Cure’ Continuum is led
mostly by students.
There is scope for multi-sectoral collaboration with Social Welfare, Education, Health, PRI and
other departments and partners.
NTEP’s TB Elimination Strategies and NHM’s Ayushman Bharat Program can be better
disseminated through this intervention.
Students can address issues like gender inclusion, stigma mitigation, etc.
A productive integrated, inclusive and democratic process of Community Health Action can be
led by students and teachers.
Key recommendations
Orientation and screening exercises can be scaled up as part of the School Health Program, in
collaboration with the RBSK and other programmes/agencies.
The most active students and teachers can be identified as Change Agents and engaged in
ACSM activities.
A cadre of Social Advocates from the communities can be developed.
There is potential for more participation of students in TB Response
39
Community Engagement in Ending TB: Best Practices Compendium
BIHAR
Multi-Sectoral Engagement through TB Person Support Groups
in Bihar
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors.
Highlights
• The process restored the
continuity of diagnosis and
treatment which was disrupted
due to the COVID-19 pandemic
and above all, the confidence of
people affected with TB in the
health system.
• 19,06,459 people were screened
and 40791 with TB symptoms
were tested for TB and 3209
people with TB were notified
and put on treatment.
• Extensive media coverage
influenced the policymakers to
decentralize the rapid molecular
testing up to the block level, and
207 TrueNat machines are now
available for TB testing.
Introduction and rationale
• 34% improvement in TB
TB has been a major public health concern, however, the
notification from 80/Lakh in
investment in terms of newer diagnostics and efforts to
2020 to 122/Lakh (annualized)
contain the spread of the disease through the detection of
from January to July 2022.
infectious pulmonary cases and treating them effectively
has been the cornerstone of the WHO-recommended
DOTS programme.
However, services were disrupted due to the COVID-19
pandemic resulting in a decline of about 20% in TB
notification. It was a major challenge to identify the missing
cases and restore continuity of treatment and support.
40
Community Engagement in Ending TB: Best Practices Compendium
A recently published landmark report in Lancet titled ‘High-quality health systems in the Sustainable
Development Goals era: time for a revolution’ reiterated that it is not the medicines and equipment
that can make a desirable change in terms of suffering and deaths. The quality of care, health outcomes,
people’s confidence in the system, system competence, and user experience are equally important aspects.
The health system includes private health care providers to whom people prefer to go first because of
the perception of better quality of care, less waiting time, and less wage loss. The State Health Society
took the conscious decision in June 2020 to engage private health care providers through contracts with
non-profit NGOs as a person Provider Support Agency (PPSA). It was soon realized that it was not
sufficient to manage the change without engaging the community at large scale, and specifically at local
level.
Objectives
To restore the continuity of diagnosis and treatment which was disrupted due to the COVID-19
pandemic and above all, the confidence of people affected with TB in health system.
Implementation
• 38 Districts, 534 blocks.
• During the course of implementation of ACF campaign, the requirement for a platform where
local officers, PRI representatives can discuss the needs of people affected with TB was realized.
• The CARE India team, which has been supporting health system strengthening in maternal and
child health services, came forward to coordinate at district and block level.
41
Community Engagement in Ending TB: Best Practices Compendium
Outcomes
• 19,06,459 people were screened and 40791 with TB symptoms were tested for TB and 3209 PwTB
were notified and put on treatment.
• In addition, the outstanding support from local level resulted in the involvement of people from
diverse backgrounds to unite against TB during the worst of the COVID-19 pandemic.
• Around 1586 success stories of cured PwTB were published in both the print and electronic media
to facilitate public awareness and address the social stigma associated with TB
• Extensive media coverage influenced the policymakers to decentralize the rapid molecular testing
up to the block level, and 207 TrueNat machines are now available for TB testing.
• There was 34% improvement in TB notification from 80/Lakh in 2020 to 122/Lakh (annualized)
from January to July 2022.
Key recommendations
The experience from the multisectoral approach through PwTB Treatment Support groups may be
utilized for community ownership, demand generation, and advocacy for uptake of TB Preventive
Treatment.
42
Community Engagement in Ending TB: Best Practices Compendium
JHARKHAND
Integration of TB Services at Ayushman-Bharat Health and
Wellness Centres in Jharkhand.
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors.
Highlights
• TB services are now being
integrated at Ayushman Bharat
Health & Wellness Centre
(AB-HWC) in Jharkhand
with the aim to improve reach
of TB services at primary
healthcare level. JHARKHAND
43
Community Engagement in Ending TB: Best Practices Compendium
a huge role in improving the awareness about TB, early identification, ensuring treatment adherence,
providing psychosocial support to PwTB and their families etc. Providing TB services at the doorstep
also will help in saving the travel costs out-of-pocket expenditure.
Objective
The AB-HWCs at the grass root level are at the forefront of providing health care in India and engaging
these centers for service delivery is vital for the effective implementation of all the health-related
programs in the country.
Implementation
The integration of TB services at AB-HWCs was kickstarted by the State TB cell under the guidance
of MD NHM and the Additional Chief Secretary (Health) with the support of Jhpiego, during the TB
Mukt Bharat Campaign March 24- April 13, 2022. The activities planned for integration of TB services
at HWCs were under three heads:
44
Community Engagement in Ending TB: Best Practices Compendium
Outcomes
In order to integrate AB-HWCs with NTEP and provide TB health services in the community,
1536 AB-HWCs have been registered to the Ni-kshay portal and provided their login credentials.
The integration started from January 2022 onwards and HWCs have started enrolling and notifying
Key recommendations:
The AB-HWCs are going to be the future of grassroot-level healthcare in India and engaging these
centres for service delivery is vital for effective implementation of all the health-related programs in
the country. Engaging and capacity building of a large cadre of CHOs is one of the challenges faced.
45
Community Engagement in Ending TB: Best Practices Compendium
HIMACHAL PRADESH
Block TB Forum
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors
Highlights
• Formation and actualization of
the Block TB Forum for effective
implementation of National HIMACHAL PRADESH
Tuberculosis Elimination
programme (NTEP).
• Increased awareness among
the general public and line
departments.
• Platform for Persons with TB to
raise their grievances in front of
appropriate authorities.
• Improved intersectional
coordination between other
government departments and
state NTEP.
Introduction
A Block TB Forum was notified by the Govt. of Himachal Pradesh on 27th September 2021 for effective
implementation of National Tuberculosis Elimination programme (NTEP). A few amendments were
made on 16th January 2022 to revise the Block TB Forum composition. Following the amendments,
certain terms of references were put down for the TB forum for its better functioning. These included:
• Meeting of the TB forum twice a year
• Taking decisions on appropriate local adaptation of national guidelines for NTEP and state TB
elimination strategies and seeking resources beyond the budgeted resources in (NTEP) PIP.
46
Community Engagement in Ending TB: Best Practices Compendium
• Focus on inter-sectoral coordination and explore the role and responsibilities for each of department
and prepare a roadmap for action for TB elimination in the block and resolve the issues of TB
survivors
• Ensure Psychological support/ security will be insured to all TB survivors in the block.
• Review the performance of different stakeholders in TB elimination.
• Take final decisions on procurement of goods and contractual services for TB elimination in the
block.
• Guide and take-up the issues with block and district administration and department of Health&
Family Welfare, Government of HP on recruitment of regular staff to the key positions of TB
control and elimination in the block
• Notice for the block TB form and agenda should be served at least 15 days or a week in advance
prior to the meeting by the convener with approval of Chairpersons.
• Meeting minutes should be submitted to Member Secretary and convener of Block TB Forum
Way Forward
• Composition of Panchayat TB Forum under the chairmanship of Gram Panchayat Pradhan
• Regular Block TB Forum Strengthen the Panchayat TB Forum meetings
47
Community Engagement in Ending TB: Best Practices Compendium
KERALA
System for TB Elimination in Private Sector (STEPS): Private
Participation and Increased TB Notification in Kozhikode District
Sub Track:
Approaches that promote single window platforms for accessing TB and health
information and services across all sectors.
Highlights
• Complete participation of
private hospitals within the
district in TB elimination
programme
• Private hospitals trained on TB
elimination activities
• AKSHAYA KERALA Catch Up
Campaign, an online campaign
covering all the STEPS Centres
in the district resulted in
increased notification rates in
the private sector
• A consortium of private hospital
owners and management,
KERALA
coalition of specialty doctors’
organizations, and private lab
owners association joined the
TB elimination mission
Introduction
Kerala TB elimination mission activities
started in Kozhikode district on
November 1, 2017. The second phase
of TB elimination gave importance to
ensuring private sector participation,
and was initiated in the middle of 2018.
This was recommended by the State
Cell and is essential to achieve the goal
of a TB-free Kerala. District level Inauguration of TB Elimination Mission, Kozhikode.
Inaugurated by Hon.Mayor, Sri:Thotthathil Raveendran &
Corporation Secretery Mrunmayi Joshi IAS
48
Community Engagement in Ending TB: Best Practices Compendium
Objectives
One of the main challenges faced was the dearth and insufficiency of data of TB cases diagnosed and
treated in private hospitals. Our aim was to ensure complete participation of private hospitals within
the district in the TB elimination programme. A consortium of all private hospitals in the district was
formed subsequent to a meeting organized by the District TB Centre with their representatives.
STEPS Centres
• After the state-level launch of private sector engagement on February 10, 2019, various training
programs and System for TB Elimination in Private Sector (STEPS) Centres were set up in private
hospitals.
• Special training programs were organized for the STEPS Centre officials in Kozhikode district.
• In connection with the World TB Day observance on March 24, 2019, district level and private
hospital-level STEPS logo release programs were organized.
• NTEP IECs were exhibited at all STEPS Centres.
• Government benefits and facilities became available to PwTB at the STEPS Centres.
• Subsequent review meetings were held to evaluate the performance of the STEPS Centres.
• With the support of the JEET Coordinator, the district under the guidance of the DTO opened
about 30 STEPS units across the districts.
• Pulmonologists at District TB Centres were given the charge of centres.
• As a result, the number of TB notifications from private hospitals in the district has increased
significantly.
• They are provided with diagnostic request form, sputum cups, falcon tubes and ATT drugs
including loose drugs.
• PwTB are given choice to continue treatment at the concerned private hospitals or if required they
are referred to their nearby public health institutions (PHIs).
49
Community Engagement in Ending TB: Best Practices Compendium
50
Community Engagement in Ending TB: Best Practices Compendium
Results/Outcomes:
• STEPS Centres have acquired the ability to
stand on their own.
• An online meeting of the private consortium
and coalition of private doctors was held
on August 12, 2022. The meeting was a
great success in terms of the number of
participants. Many issues related to private
participation in the NTEP were discussed
during the meeting. As a result, the issues are
getting solved one by one. STEPS Review meeting at IQRA Hospital,
Kozhikode district
51
Community Engagement in Ending TB: Best Practices Compendium
52
Community Engagement in Ending TB: Best Practices Compendium
TRACK D:
PRI
ENGAGEMENT
53
Community Engagement in Ending TB: Best Practices Compendium
BIHAR
Engagement of members of Panchayat Raj Institutions (PRI)
in the National Tuberculosis Elimination Programme (NTEP),
Bhojpur District, Bihar
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
• The objective was to enhance
the case finding, outcome, and
quality of TB services with
involvement of PRI members in
decision making
• 270 PRI members of Bhojpur
sensitized through a district-
level sensitisation program.
• There has been a consistent
increase of 30% in TB case
notification in the district post
PRI sensitization in comparison
to 2021.
54
Community Engagement in Ending TB: Best Practices Compendium
Objectives
• To orient, inform and sensitize PRI members on NTEP services and provisions in Bhojpur district
with the aim of them taking ownership of the persons with TB (PwTB) being notified in their
respective area
• To enhance the case finding, outcome, and quality of TB services with involvement of PRI members
in decision making
• To help PwTB get treatment support and reduce stigma in the community
DHS office letter for the PRI sensitization program and photographs of the inauguration
55
Community Engagement in Ending TB: Best Practices Compendium
Implementation
The district-level sensitisation program
for the PRI members of Bhojpur
district was conducted on alternate days
between February 17-25 , 2022. About
270 PRI members participated and were
sensitized. The willingness to initiate
processes towards TB-free Panchayats
were triggered during the session.
The sensitization workshop was
facilitated by the State TB Officer,
WHO-NTEP consultant and District
TB Officer, and the emphasis was on
the roles and responsibilities of PRIs
in making TB-free villages and blocks
in line with community engagement
guidelines received from CTD.
56
Community Engagement in Ending TB: Best Practices Compendium
Key recommendations
The involvement of PRI members in decision making, and their interaction with the PwTB and
healthcare workers seems to be promising in generating community’s commitment and ownership
on health care matters.
57
Community Engagement in Ending TB: Best Practices Compendium
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
JAMMU &
• A ‘TB Mukt Panchayat’ KASHMIR
Objectives
• Sensitization of PRI Members
• Involvement of PRI members in various activities of NTEP Programme
58
Community Engagement in Ending TB: Best Practices Compendium
Implementation
The campaign was started from August 8, 2022 across the district of Kupwara with support of PRI
Members.
Geography covered: The intervention will cover all rural, urban, tribal, and hard-to-reach areas of the
entire district of Kupwara.
Target population: 10.7 lacs.
Time period: 2022 - 2025
Key activities: Awareness, Active screening, Screening of Schools, Dar-ul-ulooms, Boarding Schools,
Nomads etc.
Outcomes
7200 people were screened in the month of August and no person was diagnosed.
Key recommendations
NAAT facilities should be made available at all DMCs for upfront testing.
59
Community Engagement in Ending TB: Best Practices Compendium
KERALA
A Comprehensive TB awareness programme at the Kunhimangalam
Gram Panchayat, Kannur
Sub Track:
Experiences of engaging with PRI at the grassroots as a nodal body to reach the
unreached populations and build effective linkages to health services
Highlights
• A Panchayat meeting was held
on under the chairmanship of
the Gram Panchayat President.
People’s representatives, health
workers, volunteer workers,
and Kudumbashree workers
participated and formed a
Panchayat-level committee to
plan activities
• Ward level health and nutrition
committees met and formed
seven squads in each ward
under the leadership of people’s
representatives
• 92 squads were formed at Gram KERALA
60
Community Engagement in Ending TB: Best Practices Compendium
Objectives
The aim of the program was to create awareness among the entire population of the Gram Panchayat
about the transmission, treatment, and prevention of TB. Awareness, screening, and monthly review
meetings will continue to be organized and symptomatic persons will be screened for further health
management.
Panchayat-level committee:
• A Panchayat meeting was held on March 15, 2022 under the chairmanship of the Gram Panchayat
President. People’s representatives, health workers, volunteer workers, Kudumbashree workers, etc.
participated and formed a Panchayat-level committee to plan the activities.
Seminar on TB:
• On March 22, an extensive seminar was conducted at the Gram Panchayat level with the cooperation
of Payyannur Tuberculosis Unit (TU).
• The Gram Panchayat President presided over the meeting; the TU Medical Officer presented the
subject and the Health Inspector explained matters related to the program.
• People’s representatives, political and social activists, health workers, Kudumbashree activists,
representatives of various departments, religious leaders, volunteer activists, library-club activists
and business representatives participated in the seminar.
Squad formation:
• Ward level health and nutrition committees met and formed seven squads in each ward under the
leadership of people’s representatives.
• 92 squads have been formed at Gram Panchayat level and the squad members were trained by the
Medical Officer and Health Inspector at the Family Health Centre.
• The Junior Health Inspector ( JHI) and Junior Public Health Nurse ( JPHN) were assigned the
charge of all 14 wards.
IEC Activities:
• TB Awareness activities were undertaken in 14 Gram Sabhas.
• The seminar and sessions were organized with the help of the National Service Scheme (NSS) Unit
of Payyannur and Sanskrit Colleges and Student Police Cadets of Kunhimangalam.
• Awareness sessions were held and a pledge to end TB was recited by the Area Development Society
(ADS), CDS (Community Development Society), and 161 Kudumbasree Self-Help Groups.
• Awareness was given to the Mahatma Gandhi National Rural Employment Guarantee Scheme
(MGNREGS) workers.
• Ensured TB awareness through the weekly Non Communicable Diseases (NCD) camps, UPI
clinics and COVID-19 vaccination camps
• Special awareness program were conducted for auto drivers, orphanages, colonies, the elderly, and
for migrant workers.
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Community Engagement in Ending TB: Best Practices Compendium
• Homeo and Ayurveda Hospitals were also provided sputum cups for testing and ensured IEC. Six
people were referred to the Family Health Centre (FHC) .
• Participation was ensured in the private clinic of the Panchayat.
• Sessions on TB were organized in all Anganwadis and schools and questionnaires and notices were
distributed.
• Awareness notices were given in all the clubs, reading rooms, workplaces, workshops, and religious
places.
• 6000 awareness notices and 15000 questionnaires were printed in collaboration with LSG and
distributed to 5210 houses under the leadership of people’s representatives, health workers, and
volunteers.
• An MLA released the notice and questionnaire during the Panchayat-level Working Group General
Body meeting. After that, Gram Panchayat members released and distributed the questionnaires at
the ward level.
• The completed questionnaires were collected from 14 wards. Special boxes were prepared for
depositing the questionnaires at Gram Panchayat Office, Family Health Centre, and Anganwadi.
• Media/social media engagement was ensured for the promotion of the programme.
Program review
• A Panchayat-level Rapid Response Team conducted a separate review.
• A review was conducted at the ICDS sector meeting.
• A Panchayat-level meeting was held once a week under the leadership of the Gram Panchayat
president and a review was conducted.
• A special ASHA review meeting was conducted twice a month.
Result/Outcome
• Through this comprehensive TB awareness program, 86 presumptive persons were found during
the squad operation and underwent a sputum test. One of them was diagnosed with TB.
• On June 14, 2022, the Hon’ble MLA Shri. M. Vijin Kallyassery Niyojakamandalam declared
Kunhimangalam a complete TB Awareness Panchayat.
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Community Engagement in Ending TB: Best Practices Compendium
63
Community Engagement in Ending TB: Best Practices Compendium
KARNATAKA
A convergence approach to engage and empower Gram Panchayats
to improve public health and build TB-free Gram Panchayats
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
• This initiative leveraged the
Gram Panchayat to take health
services to the doorstep of every
household in rural Karnataka
• GPs have started linking PwTB to
various social welfare programs.
• From September 2021 till Aug
2022, 2816 GPs organized a total
of 23,511 COVID vaccination
camps and provided 8,78,088
vaccination doses. Using the
health management kit these GPs
A
K
ATA
64
Community Engagement in Ending TB: Best Practices Compendium
Objectives
The aim of this initiative was to take services to the doorstep of every household in rural Karnataka
through the close collaboration of panchayat and government health services staff including health and
wellness centres (HWC).
Implementation
The Health and Family Welfare Department issued a joint circular from PRS-RDPR (the Rural
Development and Panchayat Raj Department) and PRS-health for the involvement of 500 GPs
acrossall the 31 districts through the District TB Offices (one high TB burden and one low TB burden).
Along with this, the Gram Panchayath Arogya Amrutha Abhiyaana (GPAAA), supported by KHPT,
has implemented KMK-GP activities in 2816 Gram Panchayats in 14 districts of Karnataka. In these
Gram Panchayats, activities addressing TB and other non-communicable diseases (NCD) are being
carried out.
The initiative adopted an approach to train, strengthen and equip GPs to facilitate convergence between
its elected representatives, local health functionaries from across sectoral programs and the community
structures at the village level.
A training module for GP members was developed in the local language in association with KHPT and
USAID.
In the KHPT KMKGP districts, Task Force members were trained to screen for TB, NCD and to
address child marriage issues in their areas. Health management kits were distributed to GPs to aid in
health promotion activities under GPAA.
The Kshaya Muktha Karnataka (TB free GP) program has conducted IEC campaigns, undertaken
verbal screening for TB in the villages, and facilitated linkages of persons with TB (PwTB) to other
social welfare schemes.
Key results
GPs have started linking PwTB with various social welfare programs, including nutritional support,
employment, or livelihoods, such as the Kshaya Asare program.
TB sollisi GP gellisi (TB Harega Desh Jeetega), is being conducted in campaign mode, where all GPs
have planned various IEC activities like street plays, essays and quiz competitions in school and colleges.
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Community Engagement in Ending TB: Best Practices Compendium
GPs started using the health management kits and conducted health camps in coordination with the
Department of Health in the GPAA districts.
From September 2021 until Aug 2022, 2816 GPs organized a total of 23,511 COVID vaccination
camps and provided 8,78,088 vaccination doses. Using the health management kit, these GPs conducted
11,116 NCD camps and screened 4,92,951 persons, and 12,50,816 individuals were screened under
Kshaya Mukt Programme for TB and referred for testing.
Key recommendations
It is evident that this holistic approach at the GP level has the potential to reach persons at the
grassroots. PRI engagement is perhaps the only existing mechanism to achieve large-scale community
participation and reach the marginalized and vulnerable.
Conclusion
Gram Panchayats can leverage community networks to meet the needs of the most vulnerable and
unreached populations. By involving the Gram panchayat, it is possible to ensure a viable, accessible,
and community-centered programme for TB-free Gram Panchayats.
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Community Engagement in Ending TB: Best Practices Compendium
ODISHA
PRI sensitization and their engagement in TB response at
Panchayat Level
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
• The ALLIES Project
interventions intend to create
an enabling environment with
elected representatives for
improved quality of TB care
and services.
• TB Champions are instrumental
in sensitizing PRI members by
ODISHA
sharing with them their own
TB journey and seeking the
Panchayat’s engagement in TB
response
• Overall, 33 PRI members are
engaged in the program and
have supported PwTBs in
different ways.
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Community Engagement in Ending TB: Best Practices Compendium
Outcomes
Some PRI members sensitized about the NTEP
and ALLIES project by our TB Champions
realized the nutritional needs of the persons with
TB (PwTB) and provided nutritional support to
them. Some of them are:
• Delho Baskey, Sarpanch of Banakati Gram
Panchayat (GP), Bijatala Block, Mayurbhanj
district
• Basanti Murmu, Chandua GP, Kuliana
Sarpanch providing PWTB in Kuliana block of
Block of Mayurbhanj
• Rani Hembrum, Block Chairman of Bijatala Block, Mayurbhanj
• Kabitra Ugrassandi, Sarpanch of Padmapakhari Gp, Kaptipada Block, Mayurbhanj
• Nanda Kishore Hembrum, Sarpanch, Bholagadia GP, Khunta block of Mayurbhanj
• Basanti Singh, Sarpanch, Ambhagadia GP, Betanoti, Mayurbhanj
• Mahi Majhi, Sarpanch of Kohi GP, Kisantandi, Mayurbhanj
• Mangal Hansadah, Sarpanch of Kendudiha GP, Badasi block, Mayurbhanj
Besides them, Hwasi Tudu, Sarpanch of Kujidihi GP, Kosta block, and Mayurbhanj supported a PwTB
in buying seeds for developing a kitchen garden.
Ramesh Chandra Hansdah, Sarpanch of Keutunimari GP under Kuliana block, Mayurbhanj; Laxman
Marandi, Naeb Sarpanch of Sargachhida GP under Kuliana TU, Kuliana block, Mayurbhanj provided
financial support to a TB Champion to do wall painting on TB.
Some of the PRI members participated in a TB awareness campaign, addressing the stigma associated
with TB. On World TB Day 2022, many of the Elected Representatives joined different meetings
organized by the ALLIES project. Overall, 33 PRI members are engaged in the program and supported
PwTBs in different ways.
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Community Engagement in Ending TB: Best Practices Compendium
Gram-Sabha of Morada GP of Mayurbhanj, where TB TBC Shubhrakanta sharing about TB and stigma at
and Stigma was one of the core agenda to discuss in the Gram-Sabha of Bholgadia of Dukura- Mayurbhanj
meeting with the presence of all PRIs,TBC Basudev had
sensitized them on TB.
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Community Engagement in Ending TB: Best Practices Compendium
RAJASTHAN
TB Mukt Gram Panchayat Abhiyaan
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
• The TB Mukt Gram Panchayat
aims at creating awareness
regarding TB, supporting early
diagnosis, as well as supporting
persons with TB and their
families. RAJASTHAN
Introduction
The National Tuberculosis Elimination Programme (NTEP), Medical and Health Department,
Rajasthan, in collaboration with Panchayati Raj department is organizing a “TB Mukt Gram Panchayat”
campaign from August 15, 2022 to April 24, 2023 (Panchayat Diwas) towards achieving the goal of
elimination of tuberculosis in the state by the year 2025.
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Community Engagement in Ending TB: Best Practices Compendium
Objective
Community and political participation are critical to realize the goal of TB elimination. Guided by this
approach, TB Champions have been identified and sensitized on TB at the Panchayat level through the
program. To ensure their participation in the program, awareness activities at the Panchayat level have
been organized in the presence of local Panchayat leaders.
Key Strategies:
• Case finding- Active and Passive (including post TB, post-COVID and other vulnerable groups)
• Community Awareness activities
• Community Support activities (Ni-kshay Sambal Yojana)
• Public health action for current PwTB including TB Preventive Treatment (TPT) to contacts
Timeline: August 15, 2022, to April 24, 2023
Results/Outcome
The campaign shall be evaluated on process and outcome indicators under the supervision and report of
expert committee constituted by the state comprising of five experts from different fields.
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Community Engagement in Ending TB: Best Practices Compendium
TAMILNADU
Involving Panchayat Raj members and community for IEC on TB
awareness and screening using mobile X rays with AI for early
diagnosis in community setting
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots as
a nodal body to reach the unreached populations and build effective linkages to health
services
Highlights
• To screen presumptive TB/at-
risk individuals using Mobile
X-ray with Artificial Intelligence
(AI) thereby promoting early
diagnosis of TB and cutting down
further spread of transmission.
• The mobile diagnostic units van
also serves as a platform whereby
information on TB can be spread
in the community.
• Integration of chest X-ray
artificial intelligence in the
mobile diagnostic units can
rapidly expedite the case findings
U
setting.
M
TA
Introduction
The common approach to case finding has been detecting TB cases at the facility level for individuals
presenting with suggestive symptoms. It has been noticed that this approach leads to an initial delay in
diagnosis of 1 to 1.5 months, especially among individuals with poor health-seeking behavior.
The aim of any TB program is to prevent the spread of transmission by early diagnosis and cure for the PwTB,
but the very purpose is not achieved in facility-based case findings, and this calls for effective community-
based strategies. In order to have an effective approach for early detection of TB, specifically in vulnerable
communities, the focus needs to be on scaling up of diagnostic capacities in the community setting.
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Community Engagement in Ending TB: Best Practices Compendium
Objectives
• To screen presumptive TB/at-risk individuals using Mobile X-ray with AI thereby promoting early
diagnosis of TB and cutting down further spread of transmission
• To augment community-based activities of NTEP program and state specific health initiatives (eg:
Makkalai Thedi Maruthuvam, Varummun Kaapom thittam).
• To improve community awareness on NTEP services – thereby promoting demand among the
people.
Key Activities
• The MDU team of six members comprising of 1. Driver,2. Radiographer, 3. Senior Treatment
Supervisor (STS), NTEP,4. Health Visitor (HV), NTEP, 5. Women health volunteers (WHV)
from the public health side 6. TB champions, 7. Mid-level healthcare provider (MLHP), from the
public health side (support in the preparation of the tour plan).
The MDU provides the following services:
• Screening and diagnostic services for TB for those in the community setting
• Carries out IEC/BCC campaign for TB (NTEP) and other health problems involving the PRI
• Those visiting the MDUs are made to undergo a verbal screening by the STS/HV/WHV for
the 4S complex
The population categories covered under the MDU are:
B Clinical group People having contact with an index PwTB (Pulmonary TB case), People
(both at communi- previously treated for TB , People living with HIV / People attending for
ty and facility) HIV testing, People with diabetes mellitus, People who smoke / People with
chronic respiratory disease, Undernourished people, People with an alco-
hol-use disorder / Injection drug users, People with chronic renal failure/dial-
ysis, Elderly people (>60 years), People with mental health issues/illness
C Congregate set- Prisoners and prison staff, People residing in shelters, and Other congregate
tings institutions (such as orphanages, elderly homes, etc)
D Migration and Migrant workers (without social security and poor access to health care),
refugee related Refugees/camps
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Community Engagement in Ending TB: Best Practices Compendium
The MDU is monitored at three levels of input, processes and output. These include:
1. Number of individuals 1. Number of Chest X-ray taken per 1. Number TB cases diagnosed
screened per week in month in the community. among screened.
the community.
2. Proportion of Chest x-ray abnormality 2. Proportion of clinically diag-
2. Number of days vehicle detected among persons screened in nosed/microbiologically con-
utilized: MDU (by AI). firmed, pulmonary/extra-pulmo-
nary TB cases among the overall
3. Of the abnormal detected by AI, discor- screened
dance rate (with HCP interpretation)
4. Of the abnormal (AI/MO), number
referred to TB diagnostic centre
Outcome
The following table captures the outcome for the months of July and August 2022.
Total No.of Total No.of pre- Total No.of Ab- Total microbiologi- No. Clinical- Total TB diag-
population sumptive normal X rays cal confirmed TB ly diagnosed nosed
covered TB
screened with
chest x-ray
Key Recommendations
• Integration of chest X-ray artificial intelligence in the mobile diagnostic units can rapidly
expedite the case findings strategies in the community setting
• The MDU van also serves as a platform whereby information on TB can be spread in the
community.
• PRI involvement in community mobilization prior to the activity increases the coverage and
utilization of the X-ray van.
• Such initiative can ensure close coordination with the general health system and integration
with the general health system is strengthened.
• Media coverage in newspapers with elected representatives additionally has a greater reach in
the community
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Community Engagement in Ending TB: Best Practices Compendium
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Community Engagement in Ending TB: Best Practices Compendium
WEST BENGAL
Institutionalization of social assistance schemes under the
leadership of Panchayati Raj Institution in Purba Medinipur
district in West Bengal
Sub Track:
Experiences of engaging with the Panchayat Raj Institutions (PRI) at the grassroots
level as a nodal body to reach the unreached populations and build effective linkages to
health services
Highlights
• The state engaged with PRIs
to provide social assistance
schemes to PwTBs beyond the
scope of the Ni-kshay Poshan
Yojana
• The initiative covers two NTEP
districts – Purba Medinipur and WEST BENGAL
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Community Engagement in Ending TB: Best Practices Compendium
The PRI is a powerful community structure in the state. As an awardee of the Gold Medal under the
NTEPs Sub-national Certification process last year, Purba Medinipur district institutionalized the
social support scheme as a regular and sustained process under the leadership of PRI.
In 2020 and 2021, the state successfully provided social support to 4806 and 5840 PwTB respectively,
leveraging resources from around 20 social assistance schemes. The state felt that this should be
mainstreamed. While the state is in dialogue with the PRI and other departments at the apex level
to extend the Community Support initiative (under Ni-kshay Mitra), Purba Medinipur has already
institutionalized it.
Key activities:
• The District Administration oriented stakeholders of all blocks on the involvement of PRI and
block administration during their development meeting in the Zila Parishad, the administrative
platform of PRI.
• A list of 1864 Ni-kshay registered persons currently on treatment were identified. Among
them, PwTB with electronic ration cards were selected as eligible.
• The programme was launched in Kolaghat Tuberculosis Unit (TU) in May 2022, with the
involvement and support of departments of Health, Forest, ARD, National Rural Livelihood
Mission, and was led by PRI.
• Following the launch, in Purba Mednipur, the Block Sabhapati (Block Head) of the PRI has
been leading distribution events along with the Block Development Officer, ARD Officer and
other stakeholders of the community. They have distributed materials include chicks, bamboo
basket as shelters for chicks, Mehagani saplings, dry ration, clothes etc.
• After the distribution, stakeholders share information on TB with the community to create an
enabling environment for early diagnosis and treatment. Each event usually covers a gathering
of 100-150 people.
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Community Engagement in Ending TB: Best Practices Compendium
Outcomes
Until July 2022, 12 TUs out of 26 have organized such events to benefit around 600 PwTB who are
now continuously getting benefits of dry rations, apart from the initial benefits of chicks and saplings.
Key recommendations
TB services should be extended through the involvement of all line departments beyond
health to disseminate messages on TB, and the services available for treatment, and social
assistance to the larger community.
Community stakeholders should be sensitized to create an enabling environment for PwTB
for early detection of presumptive cases . They can also help in overcoming stigma, treatment
adherence. An empathetic attitude through such social assistance may help people overcome
social hurdles.
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Community Engagement in Ending TB: Best Practices Compendium
CRITERIA OF BEST
PRACTICES SELECTION
In order to select “best” practices, the criteria used for assessment were grouped into
CORE and QUALIFIER criteria. The Core criteria included assessing the effectiveness
and efficiency of the practice and how the practice has addressed equity issues.
The Qualifier criteria included assessing whether the practice contains elements that are
relevant for its transfer to other settings.
Core Criteria:
1. Effectiveness and efficiency of the intervention: It measured the extent to which the
objectives of quantity, quality, and time have been met under real conditions at the
lowest possible cost.
2. Equity: The relevant dimensions of equity were adequately and actively considered
throughout the process of implementing the practice
Qualifier Criteria:
1. Transferability: This criterion measured the extent to which the implementation results
were systematized and documented, making it possible to transfer it to other contexts/
settings/countries or to scale it up to a broader target population/geographic context.
2. Sustainability: This criterion assessed the practice’s ability to be maintained in the long-
term with the available resources, adapting to social, economic, and environmental
requirements of the context in which it is developed.
3. Participation: This criterion assessed the inclusion of stakeholders throughout the whole
life cycle of the process and the ability of the practice to foster collaboration among the
different sectors involved.
4. Intersectoral collaboration: This criterion assessed the ability of the practice to foster
collaboration among the different sectors (e.g. health, social, education) involved in the
domain of interest (e.g., health promotion, disease prevention and management, etc.).
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